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Nonprofiteer
← CHORDOMA FOUNDATION

Form 990 for tax year 2024

Filed by CHORDOMA FOUNDATION.

Totals

Total revenue
$5,362,824
Total expenses
$6,834,629
Contributions and grants received
$4,859,019
Grants paid
$3,731,199
Program service revenue
$0
Investment income
$445,749
Other revenue
$58,056
Total assets, end of year
$11,385,145
Total liabilities, end of year
$3,665,296
Net assets or fund balances, end of year
$7,719,849
Program services expenses (Part IX)
$5,802,372
Management and general expenses
$422,387
Fundraising expenses
$609,870
Program service expenses (Part III)
$5,802,372

Program services were 84.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $4,859,019

  • 1g · Noncash contributions included above

    $266,328

  • 3 · Investment income

    total $445,749 · excluded $445,749

  • 11a · Other revenue: CONTRACT RESEARCH

    total $37,640 · related or exempt $37,640

  • 11b · Other revenue: OTHER INCOME

    total $15,790 · related or exempt $15,790

  • 11c · Other revenue: CONFERENCE REGISTRATION

    total $4,626 · related or exempt $4,626

  • 11e · Other revenue, total

    $58,056

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,715,621 · program services $2,715,621

  • 2 · Grants to domestic individuals

    total $75,568 · program services $75,568

  • 3 · Grants to foreign organizations and individuals

    total $940,010 · program services $940,010

  • 5 · Compensation of officers, directors and key employees

    total $924,560 · program services $613,127 · management and general $104,839 · fundraising $206,594

  • 7 · Other salaries and wages

    total $970,173 · program services $643,375 · management and general $110,012 · fundraising $216,786

  • 8 · Pension plan contributions

    total $9,416 · program services $6,244 · management and general $1,068 · fundraising $2,104

  • 9 · Other employee benefits

    total $95,908 · program services $63,602 · management and general $10,875 · fundraising $21,431

  • 10 · Payroll taxes

    total $131,078 · program services $86,925 · management and general $14,863 · fundraising $29,290

  • 11b · Fees: legal

    total $30,508 · program services $28,797 · management and general $73 · fundraising $1,638

  • 11c · Fees: accounting

    total $80,469 · management and general $80,469

  • 11f · Fees: investment management

    total $16,582 · management and general $16,582

  • 11g · Fees: other

    total $152,249 · program services $143,706 · management and general $367 · fundraising $8,176

  • 12 · Advertising and promotion

    total $17,311 · program services $11,807 · fundraising $5,504

  • 13 · Office expenses

    total $47,317 · program services $10,704 · management and general $14,480 · fundraising $22,133

  • 14 · Information technology

    total $223,448 · program services $164,572 · management and general $22,958 · fundraising $35,918

  • 16 · Occupancy

    total $2,678 · program services $606 · management and general $819 · fundraising $1,253

  • 17 · Travel

    total $137,969 · program services $81,179 · management and general $14,062 · fundraising $42,728

  • 22 · Depreciation, depletion and amortization

    total $55,203 · program services $49,805 · management and general $2,160 · fundraising $3,238

  • 23 · Insurance

    total $21,996 · program services $13,216 · management and general $8,197 · fundraising $583

  • 24a · Other expenses: IN-KIND CONTRIBUTIONS

    total $121,571 · program services $120,163 · management and general $563 · fundraising $845

  • 24b · Other expenses: EVENTS

    total $44,994 · program services $33,345 · fundraising $11,649

  • 24c · Other expenses: BAD DEBT EXPENSE

    total $20,000 · management and general $20,000

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $3,639,340 · end of year $784,029

  • 2 · Savings and temporary cash investments

    beginning of year $6,083,749 · end of year $8,881,876

  • 3 · Pledges and grants receivable

    beginning of year $1,064,570 · end of year $1,422,306

  • 9 · Prepaid expenses and deferred charges

    beginning of year $15,041 · end of year $51,767

  • 10a · Land, buildings and equipment: cost or other basis

    $240,611

  • 10b · Land, buildings and equipment: accumulated depreciation

    $129,636

  • 10c · Land, buildings and equipment, net

    beginning of year $145,151 · end of year $110,975

  • 15 · Other assets

    beginning of year $90,061 · end of year $134,192

  • 17 · Accounts payable and accrued expenses

    beginning of year $510,650 · end of year $833,241

  • 18 · Grants payable

    beginning of year $1,319,374 · end of year $2,832,055

  • 27 · Net assets without donor restrictions

    beginning of year $4,158,191 · end of year $4,104,641

  • 28 · Net assets with donor restrictions

    beginning of year $5,049,697 · end of year $3,615,208

Mission and programs · 2024

Mission

THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.

  • (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS.

    Expenses $5,063,579 · Grants $3,655,631

  • (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.

    Expenses $738,793 · Grants $75,568

As filed on the 2024 return.

Listed in Part VII

  • KENNY BRIGHTON

    HEAD OF PHIL

    Total calculated
    $229,617
    From this org
    $216,428
    From related orgs
    $0
    Other
    $13,189
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $168,374
    Bonus
    $48,000
    Other
    $54
    Deferred
    $11,203
    Nontaxable benefits
    $1,986
    Filer's total
    $229,617

  • DANIEL FREED

    CHIEF SCIENT

    Total calculated
    $227,559
    From this org
    $204,345
    From related orgs
    $0
    Other
    $23,214
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $178,269
    Bonus
    $26,016
    Other
    $60
    Deferred
    $13,428
    Nontaxable benefits
    $9,786
    Filer's total
    $227,559

  • JOSH SOMMER

    EXEC. DIR. &

    Total calculated
    $202,736
    From this org
    $174,183
    From related orgs
    $0
    Other
    $28,553
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $148,519
    Bonus
    $25,610
    Other
    $54
    Deferred
    $11,852
    Nontaxable benefits
    $16,701
    Filer's total
    $202,736

  • SARA NICK

    HEAD OF ENGA

    Total calculated
    $152,520
    From this org
    $142,821
    From related orgs
    $0
    Other
    $9,699
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $124,062
    Bonus
    $18,699
    Other
    $60
    Deferred
    $8,295
    Nontaxable benefits
    $1,404
    Filer's total
    $152,520

  • SHANNON LOZINSKY

    DIRECTOR OF

    Total calculated
    $139,596
    From this org
    $121,708
    From related orgs
    $0
    Other
    $17,888
    Hours/week
    40

  • LEE DOLAT

    SCIENTIST

    Total calculated
    $128,094
    From this org
    $112,452
    From related orgs
    $0
    Other
    $15,642
    Hours/week
    40

  • SAI PERVEEN CHEMUDUPATI

    DIRECTOR OF

    Total calculated
    $116,606
    From this org
    $105,347
    From related orgs
    $0
    Other
    $11,259
    Hours/week
    40

  • JESSE BONGARTZ

    HEAD OF FINA

    Total calculated
    $112,130
    From this org
    $100,921
    From related orgs
    $0
    Other
    $11,209
    Hours/week
    40

  • LESLIE ADLER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • PAUL FELDMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • STEVEN GOLICK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • CHRISTOPHER HEERY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ALICIA JEFFREYS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SUSAN MAHONY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • STEVEN MANDEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LAUREN MULHOLLAND

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHREYASKUMAR PATEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DAVID SANDAK

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • MEGAN STEWART

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JOHN THERIEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
14 May 2025
IRS schema version
2024v5.0
Source object
202501359349303455

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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