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← BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

Form 990 for tax year 2022

Filed by BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION.

Totals

Total revenue
$1,099,485
Total expenses
$858,302
Contributions and grants received
$1,064,250
Grants paid
$40,000
Program service revenue
$6,000
Investment income
$19,641
Other revenue
$9,594
Total assets, end of year
$1,291,125
Total liabilities, end of year
$17,543
Net assets or fund balances, end of year
$1,273,582
Program services expenses (Part IX)
$486,723
Management and general expenses
$317,221
Fundraising expenses
$54,358
Program service expenses (Part III)
$486,723

Program services were 56.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $1,064,250

  • 1g · Noncash contributions included above

    $4,600

  • 2a · Program service revenue: PROGRAM SERVICE FEES

    total $6,000 · related or exempt $6,000

  • 3 · Investment income

    total $19,641 · related or exempt $19,641

  • 11a · Other revenue: CREDIT CARD REWARDS

    total $9,594 · related or exempt $9,594

  • 11e · Other revenue, total

    $9,594

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $40,000 · program services $40,000

  • 5 · Compensation of officers, directors and key employees

    total $94,760 · program services $49,035 · management and general $33,938 · fundraising $11,787

  • 7 · Other salaries and wages

    total $165,280 · program services $85,526 · management and general $59,195 · fundraising $20,559

  • 9 · Other employee benefits

    total $9,700 · management and general $9,700

  • 10 · Payroll taxes

    total $21,757 · program services $11,035 · management and general $8,069 · fundraising $2,653

  • 11c · Fees: accounting

    total $26,469 · program services $292 · management and general $26,107 · fundraising $70

  • 11g · Fees: other

    total $27,407 · program services $2,147 · management and general $25,256 · fundraising $4

  • 13 · Office expenses

    total $86,641 · program services $17,287 · management and general $51,129 · fundraising $18,225

  • 14 · Information technology

    total $15,467 · program services $11,033 · management and general $4,434

  • 16 · Occupancy

    total $42,148 · management and general $42,148

  • 17 · Travel

    total $140,565 · program services $138,571 · management and general $1,220 · fundraising $774

  • 19 · Conferences, conventions and meetings

    total $93,224 · program services $92,816 · management and general $408

  • 22 · Depreciation, depletion and amortization

    total $11,623 · management and general $11,623

  • 23 · Insurance

    total $4,894 · management and general $4,894

  • 24a · Other expenses: PROGRAM EXPENSES

    total $31,438 · program services $31,341 · management and general $97

  • 24b · Other expenses: BAD DEBT EXPENSE

    total $25,185 · management and general $25,185

  • 24c · Other expenses: BANK FEES

    total $9,060 · program services $19 · management and general $9,036 · fundraising $5

  • 24d · Other expenses: MEALS

    total $5,565 · program services $4,213 · management and general $1,352

  • 24e · All other expenses

    total $7,119 · program services $3,408 · management and general $3,430 · fundraising $281

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $532,183 · end of year $810,980

  • 4 · Accounts receivable

    beginning of year $94,596 · end of year $26,000

  • 9 · Prepaid expenses and deferred charges

    end of year $4,282

  • 10a · Land, buildings and equipment: cost or other basis

    $100,514

  • 10b · Land, buildings and equipment: accumulated depreciation

    $54,529

  • 10c · Land, buildings and equipment, net

    beginning of year $57,608 · end of year $45,985

  • 11 · Investments: publicly traded securities

    beginning of year $518,660 · end of year $397,068

  • 15 · Other assets

    beginning of year $5,460 · end of year $6,810

  • 17 · Accounts payable and accrued expenses

    beginning of year $3,714 · end of year $17,543

  • 24 · Unsecured notes and loans payable

    beginning of year $49,532

  • 27 · Net assets without donor restrictions

    beginning of year $946,699 · end of year $416,780

  • 28 · Net assets with donor restrictions

    beginning of year $208,562 · end of year $856,802

Mission and programs · 2022

Mission

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

  • PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE.

    Expenses $352,376 · Revenue $6,000

  • GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE.

    Expenses $41,531 · Grants $40,000

  • CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE.

    Expenses $92,816

As filed on the 2022 return.

Listed in Part VII

  • Amy Fenton Parker

    PRESIDENT &

    Total calculated
    $94,760
    From this org
    $94,760
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Darlene Royalty

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Barbara Wuebbels

    BOARD VICE C

    Total calculated
    $0
    Hours/week
    1

  • Fred Surrey

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Donna Fogle

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • John Ireland

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • John Patterson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Tony Ferrandino

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kate Haller

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Barbara McDonough

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Trent Lewis

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • David Pearce

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Rene Martinez

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
15 November 2023
IRS schema version
2022v5.0
Source object
202303199349308420

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