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Nonprofiteer
← I AM ALS

Form 990 for tax year 2024

Filed by I AM ALS.

Totals

Total revenue
$4,117,942
Total expenses
$2,566,630
Contributions and grants received
$4,027,369
Grants paid
$5,255
Program service revenue
$0
Investment income
$64,456
Other revenue
$26,117
Total assets, end of year
$3,413,223
Total liabilities, end of year
$57,550
Net assets or fund balances, end of year
$3,355,673
Program services expenses (Part IX)
$1,760,872
Management and general expenses
$569,286
Fundraising expenses
$236,472
Program service expenses (Part III)
$1,760,872

Program services were 68.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $4,027,369

  • 3 · Investment income

    total $64,456 · excluded $64,456

  • 7a · Gross sales of assets other than inventory

    securities $10,336

  • 7b · Less cost or other basis and sales expenses

    securities $10,336

  • 7c · Gain or loss

    securities $0

  • 7d · Net gain or loss

    total $0

  • 11a · Other revenue: OTHER INCOME

    total $26,117 · related or exempt $26,117

  • 11e · Other revenue, total

    $26,117

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,146 · program services $1,146

  • 2 · Grants to domestic individuals

    total $4,109 · program services $4,109

  • 5 · Compensation of officers, directors and key employees

    total $273,000 · program services $223,860 · management and general $27,300 · fundraising $21,840

  • 7 · Other salaries and wages

    total $1,034,595 · program services $863,089 · management and general $105,653 · fundraising $65,853

  • 8 · Pension plan contributions

    total $51,017 · program services $6,928 · management and general $43,686 · fundraising $403

  • 9 · Other employee benefits

    total $281,655 · program services $191,935 · management and general $67,448 · fundraising $22,272

  • 10 · Payroll taxes

    total $92,476 · program services $79,557 · management and general $6,573 · fundraising $6,346

  • 11c · Fees: accounting

    total $101,273 · management and general $101,273

  • 11d · Fees: lobbying

    total $68,588 · program services $68,588

  • 11g · Fees: other

    total $247,155 · program services $117,969 · management and general $77,594 · fundraising $51,592

  • 12 · Advertising and promotion

    total $29,731 · fundraising $29,731

  • 13 · Office expenses

    total $169,373 · program services $87,529 · management and general $60,681 · fundraising $21,163

  • 14 · Information technology

    total $65,227 · program services $42,157 · management and general $14,082 · fundraising $8,988

  • 16 · Occupancy

    total $34,741 · program services $26,162 · management and general $8,579

  • 17 · Travel

    total $39,439 · program services $16,087 · management and general $15,068 · fundraising $8,284

  • 19 · Conferences, conventions and meetings

    total $7,454 · program services $6,521 · management and general $933

  • 23 · Insurance

    total $9,592 · management and general $9,592

  • 24a · Other expenses: MISCELLANEOUS

    total $55,599 · program services $24,775 · management and general $30,824

  • 24b · Other expenses: RECRUITMENT FEES

    total $460 · program services $460

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,300,164 · end of year $1,069,885

  • 2 · Savings and temporary cash investments

    beginning of year $387,004 · end of year $1,435,252

  • 4 · Accounts receivable

    beginning of year $151,013 · end of year $93,501

  • 9 · Prepaid expenses and deferred charges

    beginning of year $12,327 · end of year $21,521

  • 11 · Investments: publicly traded securities

    end of year $791,612

  • 15 · Other assets

    beginning of year $1,452 · end of year $1,452

  • 17 · Accounts payable and accrued expenses

    beginning of year $57,081 · end of year $43,320

  • 25 · Other liabilities

    beginning of year $0 · end of year $14,230

  • 27 · Net assets without donor restrictions

    beginning of year $1,494,879 · end of year $3,255,673

  • 28 · Net assets with donor restrictions

    beginning of year $300,000 · end of year $100,000

Mission and programs · 2024

Mission

I AM ALS EXISTS TO SUPPORT AND MOBILIZE THE ALS COMMUNITY FOR THE PURPOSES OF IMPROVING QUALITY OF LIFE, RAISING AWARENESS, INCREASING FUNDING FOR RESEARCH AND ACCESS, AND IDENTIFYING TREATMENTS AND CURES FOR ALS.

  • COMMUNITY SUPPORTTHE I AM ALS COMMUNITY SUPPORT TEAM PROVIDES DIRECT EMOTIONAL SUPPORT SERVICES, SUPPORT GROUPS, PEER MATCHING, AND INFORMATION AND RESOURCES TO INDIVIDUALS LIVING WITH ALS, LOVED ONES, AND CAREGIVERS.

    Expenses $548,250

  • GOVERNMENT AFFAIRS, POLICY, AND REASEARCHI AM ALS ENABLES THE COMMUNITY ADVOCATES TO INFLUENCE CHANGES TO FEDERAL FUNDING AND TRANSFORM RESEARCH SYSTEMS, INSTITUTIONAL POLICY, AND REGULATORY PROCESSES WITH THE GOALS OF INCREASING RESEARCH FUNDING; IMPROVING PATIENT ACCESS TO TREATMENT; AND SPEEDING THE DEVELOPMENT AND ACCESS OF TREATMENTS AND CURES FOR PEOPLE LIVING WITH ALS.

    Expenses $416,876

  • COMMUNITY ORGANIZING AND COMMUNICATIONI AM ALS MOBILIZES THE ALS COMMUNITY AND FACILITATES WEEKLY TOPIC-BASED, SELF-ORGANIZED TEAMS. INDIVIDUAL ADVOCATES ENGAGE IN VIRTUAL, DIGITAL, AND IN-PERSON ACTIONS TO CATALYZE POLICY CHANGE AND RESEARCH PROGRESS TO END ALS' INCREASE PUBLIC AND PROFESSIONAL AWARENESS AND COMPETENCY; CHANGE POLICY OUTCOMES; IMPROVE TRIALS AND TREATMENT ACCESS; AND MORE.

    Expenses $455,010

  • Expenses $340,736 · Grants $5,255

As filed on the 2024 return.

Listed in Part VII

  • Sandra Abrevaya

    CO-FOUNDER

    Total calculated
    $0
    Hours/week
    2
  • Brian Wallach

    CO-FOUNDER

    Total calculated
    $0
    Hours/week
    2
  • Peggy Plews-Ogan

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    2
  • Jennifer Fortner

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    2
  • Peter Bowen

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2
  • Jano Cabrera

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Louise Langheier

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Michael O'Neil

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Neel Parekh

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Juan A Reyes

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Michael Slaby

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Dan Tate

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Andrea Goodman

    CEO

    Total calculated
    $315,762
    From this org
    $258,050
    From related orgs
    $0
    Other
    $57,712
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $258,050
    Bonus
    $0
    Other
    $0
    Deferred
    $11,750
    Nontaxable benefits
    $45,962
    Filer's total
    $315,762
  • Aditi Narayan Minkoff

    VP OF COMMUNITY SUPPORT

    Total calculated
    $194,466
    From this org
    $153,495
    From related orgs
    $0
    Other
    $40,971
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $153,495
    Bonus
    $0
    Other
    $0
    Deferred
    $6,757
    Nontaxable benefits
    $34,214
    Filer's total
    $194,466
  • Michael Lecker

    VP OF COMMUNITY ORGANIZING

    Total calculated
    $174,198
    From this org
    $139,867
    From related orgs
    $0
    Other
    $34,331
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $139,867
    Bonus
    $0
    Other
    $0
    Deferred
    $6,228
    Nontaxable benefits
    $28,103
    Filer's total
    $174,198
  • Sonya Elling

    CHIEF GOVERNMENT AFFAIRS OFFICER

    Total calculated
    $255,846
    From this org
    $194,838
    From related orgs
    $0
    Other
    $61,008
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $194,838
    Bonus
    $0
    Other
    $0
    Deferred
    $8,935
    Nontaxable benefits
    $52,073
    Filer's total
    $255,846

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · Travel for companions
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 1A
PER OUR BOARD REIMBURSEMENT POLICY, I AM ALS COVERS TRAVEL COSTS FOR CAREGIVERS OF BOARD MEMBERS WHO ARE LIVING WITH ALS WHEN TRAVEL IS REQUIRED FOR I AM ALS BOARD ACTIVITIES.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
10 November 2025
IRS schema version
2024v5.2
Source object
202523179349304112

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