Totals
- Total revenue
- $306,239
- Total expenses
- $81,485
- Contributions and grants received
- $306,239
- Grants paid
- $29,302
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $265,642
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $265,642
- Program services expenses (Part IX)
- $29,302
- Management and general expenses
- $6,596
- Fundraising expenses
- $45,587
- Program service expenses (Part III)
- $0
Program services were 36.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$253,239
-
1f · All other contributions, gifts and grants
$53,000
-
3 · Investment income
total $0 · related or exempt $0
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$0
-
8b · Fundraising events: direct expenses
$0
-
8c · Net income from fundraising events
total $0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $29,302 · program services $29,302
-
11g · Fees: other
total $6,596 · management and general $6,596
-
24e · All other expenses
total $45,587 · fundraising $45,587
Balance sheet
Part X, book values.
-
2 · Savings and temporary cash investments
beginning of year $40,887 · end of year $265,642
-
17 · Accounts payable and accrued expenses
beginning of year $0 · end of year $0
-
18 · Grants payable
beginning of year $0 · end of year $0
-
19 · Deferred revenue
beginning of year $0 · end of year $0
-
20 · Tax-exempt bond liabilities
beginning of year $0 · end of year $0
-
21 · Escrow or custodial account liability
beginning of year $0 · end of year $0
-
22 · Loans and payables to officers and key people
beginning of year $0 · end of year $0
-
23 · Secured mortgages and notes payable
beginning of year $0 · end of year $0
-
24 · Unsecured notes and loans payable
beginning of year $0 · end of year $0
-
25 · Other liabilities
beginning of year $0 · end of year $0
-
27 · Net assets without donor restrictions
beginning of year $0 · end of year $0
-
28 · Net assets with donor restrictions
beginning of year $0 · end of year $0
-
29 · Capital stock, trust principal or current funds
beginning of year $40,887 · end of year $224,755
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $0 · end of year $40,887
Mission and programs · 2024
Mission
The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatments.
-
We are a family-led, all volunteer organization trying to cure our children's rare diseases. Perlara is a scientific organization that we consult with
Grants $21,250
-
Combined Brain is a non-profit organization that provides scientific consultation and collecting bio-sample data
Grants $2,052
-
Somalogic conducted our proteomic study
Grants $6,000
As filed on the 2024 return.
Listed in Part VII
-
Doug Hawkins
Vice President
- Total calculated
- $0
- Hours/week
- 1
-
Jill Hawkins
Founder and President
- Total calculated
- $0
- Hours/week
- 25
-
Michelle Bice
Advisor
- Total calculated
- $0
- Hours/week
- 1
-
Beth Sampson
Treasurer
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 14 April 2025
- IRS schema version
- 2024v5.0
- Source object
- 202521049349300747
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.