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Nonprofiteer
← AMERICAN PARKINSON DISEASE ASSOC

Form 990 for tax year 2024

Filed by AMERICAN PARKINSON DISEASE ASSOC.

Totals

Total revenue
$18,843,184
Total expenses
$19,401,728
Contributions and grants received
$18,582,613
Grants paid
$3,462,822
Program service revenue
$0
Investment income
$361,583
Other revenue
-$101,012
Total assets, end of year
$30,155,971
Total liabilities, end of year
$3,030,984
Net assets or fund balances, end of year
$27,124,987
Program services expenses (Part IX)
$14,522,681
Management and general expenses
$1,796,689
Fundraising expenses
$3,082,358
Program service expenses (Part III)
$14,522,681

Program services were 74.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $121,626

  • 1c · Fundraising events

    $2,864,199

  • 1f · All other contributions, gifts and grants

    $15,596,788

  • 3 · Investment income

    total $159,909 · excluded $159,909

  • 6a · Gross rents

    real property $34,512

  • 6b · Less rental expenses

    real property $0

  • 6c · Rental income or loss

    real property $34,512

  • 6d · Net rental income or loss

    total $34,512 · excluded $34,512

  • 7a · Gross sales of assets other than inventory

    securities $14,445,139

  • 7b · Less cost or other basis and sales expenses

    securities $14,243,465

  • 7c · Gain or loss

    securities $201,674

  • 7d · Net gain or loss

    total $201,674 · excluded $201,674

  • 8a · Fundraising events: gross income

    $251,215

  • 8a · Fundraising events: contributions included on line 1c

    $2,864,199

  • 8b · Fundraising events: direct expenses

    $509,206

  • 8c · Net income from fundraising events

    total -$257,991 · excluded -$257,991

  • 9a · Gaming: gross income

    $24,212

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $24,212 · excluded $24,212

  • 11a · Other revenue: MISCELLANEOUS

    total $98,255 · excluded $98,255

  • 11e · Other revenue, total

    $98,255

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $3,406,572 · program services $3,406,572

  • 3 · Grants to foreign organizations and individuals

    total $56,250 · program services $56,250

  • 5 · Compensation of officers, directors and key employees

    total $1,158,114 · program services $926,491 · management and general $88,017 · fundraising $143,606

  • 7 · Other salaries and wages

    total $5,072,720 · program services $4,058,176 · management and general $385,526 · fundraising $629,018

  • 8 · Pension plan contributions

    total $504,411 · program services $403,529 · management and general $38,335 · fundraising $62,547

  • 9 · Other employee benefits

    total $869,457 · program services $695,565 · management and general $66,079 · fundraising $107,813

  • 10 · Payroll taxes

    total $431,966 · program services $345,573 · management and general $32,829 · fundraising $53,564

  • 11b · Fees: legal

    total $142,380 · program services $368 · management and general $140,933 · fundraising $1,079

  • 11c · Fees: accounting

    total $176,951 · management and general $176,951

  • 11e · Fees: professional fundraising services

    total $239,519 · fundraising $239,519

  • 11f · Fees: investment management

    total $86,523 · program services $69,219 · management and general $6,921 · fundraising $10,383

  • 11g · Fees: other

    total $1,781,471 · program services $892,516 · management and general $592,520 · fundraising $296,435

  • 12 · Advertising and promotion

    total $241,086 · program services $210,689 · management and general $20,015 · fundraising $10,382

  • 13 · Office expenses

    total $155,881 · program services $115,183 · management and general $9,757 · fundraising $30,941

  • 14 · Information technology

    total $570,254 · program services $435,020 · management and general $39,468 · fundraising $95,766

  • 16 · Occupancy

    total $221,376 · program services $177,588 · management and general $16,262 · fundraising $27,526

  • 17 · Travel

    total $247,065 · program services $205,375 · management and general $19,511 · fundraising $22,179

  • 19 · Conferences, conventions and meetings

    total $442,938 · program services $354,351 · management and general $33,663 · fundraising $54,924

  • 22 · Depreciation, depletion and amortization

    total $197,610 · program services $158,088 · management and general $15,018 · fundraising $24,504

  • 23 · Insurance

    total $98,732 · program services $78,985 · management and general $7,504 · fundraising $12,243

  • 24a · Other expenses: PRINTING, POSTAGE AND S

    total $2,671,199 · program services $1,527,798 · management and general $79,081 · fundraising $1,064,320

  • 24b · Other expenses: MAILINGS

    total $352,327 · program services $169,857 · management and general $6,307 · fundraising $176,163

  • 24c · Other expenses: DUES, SUBSCRIPTIONS, LI

    total $154,835 · program services $137,559 · management and general $13,009 · fundraising $4,267

  • 24d · Other expenses: MISCELLANEOUS EXPENSES

    total $81,058 · program services $65,012 · management and general $5,969 · fundraising $10,077

  • 24e · All other expenses

    total $41,033 · program services $32,917 · management and general $3,014 · fundraising $5,102

  • 26 · Joint costs (an allocation of the lines above)

    total $3,589,073 · program services $1,661,153 · management and general $96,820 · fundraising $1,831,100

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $7,557,291 · end of year $2,799,313

  • 2 · Savings and temporary cash investments

    beginning of year $1,136,880 · end of year $7,453,524

  • 3 · Pledges and grants receivable

    beginning of year $7,331,474 · end of year $1,901,668

  • 9 · Prepaid expenses and deferred charges

    beginning of year $317,402 · end of year $399,195

  • 10a · Land, buildings and equipment: cost or other basis

    $4,946,539

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,548,294

  • 10c · Land, buildings and equipment, net

    beginning of year $2,440,156 · end of year $2,398,245

  • 11 · Investments: publicly traded securities

    beginning of year $6,934,667 · end of year $10,481,105

  • 15 · Other assets

    beginning of year $4,599,408 · end of year $4,722,921

  • 17 · Accounts payable and accrued expenses

    beginning of year $1,058,864 · end of year $1,055,894

  • 18 · Grants payable

    beginning of year $2,076,000 · end of year $1,394,750

  • 25 · Other liabilities

    beginning of year $661,438 · end of year $580,340

  • 27 · Net assets without donor restrictions

    beginning of year $21,720,247 · end of year $20,157,415

  • 28 · Net assets with donor restrictions

    beginning of year $4,800,729 · end of year $6,967,572

Mission and programs · 2024

Mission

SEE SCHEDULE O

Activities or mission (Part I)

EVERY DAY WE PROVIDE THE SUPPORT, EDUCATION, AND RESEARCH THAT WILL HELP EVERYONE IMPACTED BY PARKINSON'S DISEASE LIVE LIFE TO THE FULLEST.

  • PUBLIC AWARENESS - APDA CURRENTLY PROVIDES (ON-LINE AND IN PRINT) MORE THAN 66 FREE EDUCATIONAL PUBLICATIONS, 36 IN ENGLISH, 22 IN SPANISH, AND 8 IN SIMPLIFIED CHINESE TO ADDRESS MEDICAL AND SOCIAL ASPECTS OF THE DIAGNOSIS, TREATMENT, AND CARE OF PEOPLE WITH PARKINSON DISEASE. THESE PUBLICATIONS AND ADDITIONAL INFORMATION DISTRIBUTED THROUGH APDA'S 12 ACTIVE CHAPTERS, 17 INFORMATION & REFERRAL CENTER GRANTS (7 TRADITIONAL CENTERS AND 10 PROJECTS, EXTENSIVE WEBSITE IN ENGLISH AND SPANISH, AND "800" TELEPHONE HELPLINE IN SEVERAL LANGUAGES. APDA ALSO RAISES AWARENESS THROUGH TELEVISION PUBLIC SERVICE ANNOUNCEMENT (PSA) CAMPAIGNS ENTITLED "LIVE WITH OPTIMISM," "LOOK CLOSER, AND "MIRA MAS DE CERCA" THAT HAVE AIRED NATIONWIDE SINCE 2015. APPROXIMATELY 240,000 NEWSLETTERS ARE MAILED ANNUALLY, AND ADDITIONAL 720,000 SENT VIA EMAIL. CONTRIBUTED SERVICES INCLUDE DONATED MEDIA (TELEVISION AND RADIO BROADCASTING AND OTHER FORMS OF MEDIA, INCLUDING PUBLIC SERVICE ANNOUNCEMENTS) VALUED AT $10,593,719 FOR THE YEAR ENDED AUGUST 31, 2025. THE FAIR VALUE OF THE DONATED MEDIA IS DETERMINED BASED ON CONSIDERATION OF CASH PAYMENTS TYPICALLY MADE BY BUYERS FOR SIMILAR ADVERTISING AND MEDIA, STANDARD DISCOUNTS GIVEN FOR SIMILARLY PLACED MEDIA, THE MEDIA TYPE AND PLACEMENT AND OTHER CONSIDERATIONS. APDA DOES NOT RECOGNIZE ANY REVENUE OR EXPENSE FROM SERVICES CONTRIBUTED BY VOLUNTEERS BECAUSE IT DOES NOT MEET THE CRITERIA FOR RECOGNITION UNDER FASB ASC 958, NOT-FOR-PROFIT ENTITIES.

    Expenses $6,135,417

  • PATIENT SERVICES AND EDUCATIONAL PROGRAMS - APDA AIMS TO SUPPORT EVERY PERSON AND EVERY FAMILY IMPACTED BY PARKINSON'S. THROUGH ITS NATIONWIDE SYSTEM OF CHAPTERS, INFORMATION & REFERRAL (I&R) CENTERS, AND COMMUNITY PARTNERS. APDA UNIQUELY DELIVERS EDUCATION, SUPPORT AND PATIENT SERVICES TO ANYONE WITH PARKINSON'S DISEASE AND THEIR FAMILIES EACH DAY. 17 INFORMATION AND REFERRAL CENTERS ARE GRANT FUNDED ALONG WITH COMMUNITY GRANTS ACROSS IN THE US TO EXPAND THE REACH IN UNDERSERVED COMMUNITIES. APDA CONDUCTED OVER 50 PATIENT EDUCATION WEBINARS VIRTUALLY AND IN PERSON REGARDING EDUCATION ON TOPICS THAT ADDRESS THE SYMPTOMS, TREATMENTS, AND CHALLENGES OF LIVING WITH PARKINSON'S DISEASE AND HAS REACHED OVER 165,000 VIEWS. APDA OFFERED 45 NATIONAL SUPPORT GROUP PROGRAMS "PRESS", PARKINSON'S ROADMAP FOR EDUCATION AND SUPPORT SERVICES, "PRESS ON, AND CARE PARTNER CONNECTION IN 30 MARKETS AND 35 CONNECTING THROUGH ART PROGRAMS IN 25 MARKETS. APDA PROVIDES VETTED PD INFORMATION VIA FACTSHEETS AND BOOKLETS WITH 170,000 DOWNLOADS AND MAILINGS ACROSS THE US.

    Expenses $5,824,232 · Grants $2,116,749

  • RESEARCH - APDA PROUDLY INVESTS IN EIGHT CENTERS FOR ADVANCED RESEARCH AND SUPPORTS GRANTS TO FUND THE MOST PROMISING SCIENCE FOCUSED ON DISCOVERING THE CAUSE(S) AND FINDING THE CURE FOR PARKINSON'S DISEASE. SINCE ITS FOUNDING IN 1961, APDA HAS BEEN A FUNDING PARTNER IN MANY OF THE MAJOR PD SCIENTIFIC BREAKTHROUGHS.

    Expenses $2,563,032 · Grants $1,346,073

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Bernard Battista

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    1.5

  • Donna Jc Fanelli Dnp

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1.5

  • Patrick McDermott

    TREASURER

    Total calculated
    $0
    Hours/week
    1.5

  • Sally Ann Esposito Browne

    SECRETARY

    Total calculated
    $0
    Hours/week
    1.5

  • Thomas K Penett Esq

    EXECUTIVE COMMITTEE MEMBER

    Total calculated
    $0
    Hours/week
    1.5

  • David G Standaert MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Elena Maestrone Imperato

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Elizabeth Braun RN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Lisa Esposito DVM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Mario J Esposito Jr

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Tom Liodice

    OUTGOING DIRECTOR (JAN 2025)

    Total calculated
    $0
    Hours/week
    0.5

  • Leslie A Chambers

    PRESIDENT/CEO

    Total calculated
    $392,353
    From this org
    $331,025
    From related orgs
    $0
    Other
    $61,328
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $324,166
    Bonus
    $0
    Other
    $6,859
    Deferred
    $42,173
    Nontaxable benefits
    $19,155
    Filer's total
    $392,353

  • Michelle McDonald

    CHIEF OPERATIONS OFFICER

    Total calculated
    $267,534
    From this org
    $209,003
    From related orgs
    $0
    Other
    $58,531
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $208,146
    Bonus
    $0
    Other
    $857
    Deferred
    $26,627
    Nontaxable benefits
    $31,904
    Filer's total
    $267,534

  • Rebecca Gilbert

    CHIEF MISSION OFFICER

    Total calculated
    $238,382
    From this org
    $211,444
    From related orgs
    $0
    Other
    $26,938
    Hours/week
    32

    Schedule J breakdown matched by us

    Base
    $211,000
    Bonus
    $0
    Other
    $444
    Deferred
    $26,938
    Nontaxable benefits
    $0
    Filer's total
    $238,382

  • Ann Hubbard

    CHIEF PUBLIC POLICY OFFICER

    Total calculated
    $0
    Hours/week
    40

  • Heather Ann Hays

    VP, DEVELOPMENT

    Total calculated
    $233,027
    From this org
    $178,578
    From related orgs
    $0
    Other
    $54,449
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $177,903
    Bonus
    $0
    Other
    $675
    Deferred
    $22,751
    Nontaxable benefits
    $31,698
    Filer's total
    $233,027

  • Eloise Caggiano

    VP DEVELOPMENT/MKTG & COMMUNICATION

    Total calculated
    $197,567
    From this org
    $159,646
    From related orgs
    $0
    Other
    $37,921
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $159,332
    Bonus
    $0
    Other
    $314
    Deferred
    $20,339
    Nontaxable benefits
    $17,582
    Filer's total
    $197,567

  • William Patjane

    REGIONAL DIRECTOR

    Total calculated
    $184,059
    From this org
    $135,341
    From related orgs
    $0
    Other
    $48,718
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $134,620
    Bonus
    $0
    Other
    $721
    Deferred
    $17,242
    Nontaxable benefits
    $31,476
    Filer's total
    $184,059

  • Jean Allenbach

    REGIONAL DIRECTOR

    Total calculated
    $183,536
    From this org
    $145,296
    From related orgs
    $0
    Other
    $38,240
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $145,016
    Bonus
    $0
    Other
    $280
    Deferred
    $18,511
    Nontaxable benefits
    $19,729
    Filer's total
    $183,536

  • Catherine Krane

    REGIONAL DIRECTOR

    Total calculated
    $180,973
    From this org
    $142,724
    From related orgs
    $0
    Other
    $38,249
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $141,262
    Bonus
    $0
    Other
    $1,462
    Deferred
    $18,183
    Nontaxable benefits
    $20,066
    Filer's total
    $180,973

  • Chris Salicco

    VP FINANCE AND ADMINISTRATION

    Total calculated
    $172,448
    From this org
    $130,001
    From related orgs
    $0
    Other
    $42,447
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $129,751
    Bonus
    $0
    Other
    $250
    Deferred
    $16,562
    Nontaxable benefits
    $25,885
    Filer's total
    $172,448

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

  • UNIVERSITY OF ALABAMA AT BIRMINGHAM

    $293,750

    RESEARCH GRANT - $93,750, MEDICAL RESEARCH-ADVANCED CENTERS - $125,000 & INFORMATION AND REFERRAL - $75,000,

  • UNIVERSITY OF PITTSBURGH

    $245,000

    MEDICAL RESEARCH - $56,250 & MEDICAL RESEARCH - ADVANCED CENTERS - $188,750

  • WASHINGTON UNIVERSITY SCHOOL OF MEDICINE

    $238,750

    MEDICAL RESEARCH - $125,000 & MEDICAL RESEARCH - ADVANCED CENTERS - $113,750

  • THE BRIGHAM & WOMENS HOSPITAL

    $232,500

    COTZIAS - $100,000, MEDICAL RESEARCH-ADVANCED CENTERS - $113,750 & MEDICAL RESEARCH - $18,750

  • TRUSTEES OF BOSTON UNIVERSITY

    $222,000

    MEDICAL RESEARCH - $56,250, MEDICAL RESEARCH GRANT-ADVANCED CENTERS - $113,750 & OTHER GRANTS - REHAB CENTER $52,000

  • RUTGERS THE STATE UNIVERSITY OF NJ

    $188,750

    INFORMATION AND REFERRAL - $75,000 & MEDICAL RESEARCH - ADVANCED CENTERS - $113,750

  • EMORY UNIVERSITY SCHOOL OF MEDICINE

    $171,250

    FELLOWSHIP GRANT - $12,500, MEDICAL RESEARCH GRANT-ADVANCED CENTERS - $133,750 & INFORMATION & REFERRAL - $25,000

  • CLEVELAND CLINIC FOUNDATION

    $131,250

    MEDICAL RESEARCH

  • UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE

    $131,250

    INFORMATION AND REFERRAL - $75,000 & MEDICAL RESEARCH - $56,250

  • REGENTS OF THE UNIVERSITY OF CALIFORNIA

    $112,500

    COTZIAS- $50,000, MEDICAL RESEARCH - $37,500 & INFORMATION & REFERRAL - $25,000

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
10 March 2026
IRS schema version
2024v5.5
Source object
202600699349300640

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