Totals
- Total revenue
- $1,779,389
- Total expenses
- $972,974
- Contributions and grants received
- $1,667,490
- Grants paid
- $426,600
- Program service revenue
- $0
- Investment income
- $115,839
- Other revenue
- -$3,940
- Total assets, end of year
- $2,924,279
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $2,924,279
- Program services expenses (Part IX)
- $709,561
- Management and general expenses
- $197,863
- Fundraising expenses
- $65,550
- Program service expenses (Part III)
- $709,561
Program services were 72.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,667,490
-
1g · Noncash contributions included above
$137,106
-
3 · Investment income
total $31,223 · excluded $31,223
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7a · Gross sales of assets other than inventory
securities $835,852
-
7b · Less cost or other basis and sales expenses
securities $751,236
-
7c · Gain or loss
securities $84,616
-
7d · Net gain or loss
total $84,616 · excluded $84,616
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10a · Gross sales of inventory
$19,851
-
10b · Cost of goods sold
$23,791
-
10c · Net income from sales of inventory
total -$3,940 · excluded -$3,940
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $419,266 · program services $419,266
-
2 · Grants to domestic individuals
total $7,334 · program services $7,334
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $162,500 · management and general $162,500
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $0
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $0
-
11a · Fees: management
total $130,062 · program services $112,500 · management and general $17,562
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $12,237 · management and general $12,237
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $65,550 · fundraising $65,550
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $30,974 · program services $30,974
-
12 · Advertising and promotion
total $5,042 · program services $5,042
-
13 · Office expenses
total $29,440 · program services $29,440
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $6,196 · program services $6,196
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $5,350 · program services $5,350
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $0
-
24a · Other expenses: Contract Research
total $93,005 · program services $93,005
-
24b · Other expenses: Credit Card Processing Fees
total $4,908 · management and general $4,908
-
24c · Other expenses: Bank Charges
total $381 · management and general $381
-
24d · Other expenses: Postage and Shipping
total $334 · program services $334
-
24e · All other expenses
total $395 · program services $120 · management and general $275
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $873,794 · end of year $1,130,575
-
2 · Savings and temporary cash investments
beginning of year $324,470 · end of year $287,702
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
beginning of year $910,333 · end of year $1,506,002
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
27 · Net assets without donor restrictions
beginning of year $2,108,597 · end of year $2,924,279
Mission and programs · 2023
Mission
Find a cure, find treatments, provide therapeutics, advocating for patients, and supporting families for FOXG1 Syndrome.
-
Fund research to find a cure.
Expenses $709,561 · Grants $426,600 · Revenue $1,667,489
As filed on the 2023 return.
Listed in Part VII
-
Nicole Johnson
Executive Director
- Total calculated
- $162,500
- From this org
- $162,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $162,500
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported
- Nontaxable benefits
- not reported
- Filer's total
- $162,500
-
Bram van Den Bergh
Treasurer
- Total calculated
- $0
- Hours/week
- 3
-
Nasha Fitter
CEO
- Total calculated
- $0
- Hours/week
- 7
-
Ryan Phillips
CFO
- Total calculated
- $0
- Hours/week
- 7
-
Magdelena Labbe
Secretary
- Total calculated
- $0
- Hours/week
- 3
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
$299,983
Research
-
$66,271
Research
-
$65,659
Research
-
Gunma University
$40,000
Research
-
$25,997
Research
-
$21,356
Research
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 8 November 2024
- IRS schema version
- 2023v5.1
- Source object
- 202413139349303246
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