Form 990 for tax year 2024
Filed by ASXL RARE RESEARCH ENDOWMENT FOUNDATION.
Totals
- Total revenue
- $887,604
- Total expenses
- $474,919
- Contributions and grants received
- $854,303
- Grants paid
- $234,500
- Program service revenue
- $9,154
- Investment income
- $24,147
- Other revenue
- $0
- Total assets, end of year
- $1,081,250
- Total liabilities, end of year
- $1,272
- Net assets or fund balances, end of year
- $1,079,978
- Program services expenses (Part IX)
- $377,717
- Management and general expenses
- $71,159
- Fundraising expenses
- $26,043
- Program service expenses (Part III)
- $377,717
Program services were 79.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Listed in Part VII
-
Amanda Johnson
Executive Director
- Total calculated
- $105,900
- From this org
- $105,900
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Laura Badmaev
President
- Total calculated
- $0
- Hours/week
- 5
-
Daniel Ordower
Treasurer
- Total calculated
- $0
- Hours/week
- 5
-
Michael Salad
Director
- Total calculated
- $0
- Hours/week
- 5
-
Julie Lopez
Director
- Total calculated
- $0
- Hours/week
- 5
-
Lauren Adams
Director
- Total calculated
- $0
- Hours/week
- 5
-
Sankar Madhavan
Director
- Total calculated
- $0
- Hours/week
- 5
-
Amanda Scheirer
Director
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$119,341
Support for various studies regarding outcome measurements and research priorities
-
Support for the ASXL Registry and Biobank held at UCLA
-
$10,000
Support of Young Investigators award
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 3 November 2025
- IRS schema version
- 2024v5.0
- Source object
- 202533179349310028
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