Skip to content
Nonprofiteer
← ALS UNITED GREATER NEW YORK INC

Form 990 for tax year 2023

Filed by ALS UNITED GREATER NEW YORK INC.

Totals

Total revenue
$4,847,061
Total expenses
$5,179,676
Contributions and grants received
$5,636,962
Grants paid
$320,242
Program service revenue
$0
Investment income
$190,352
Other revenue
-$980,253
Total assets, end of year
$6,951,115
Total liabilities, end of year
$1,307,824
Net assets or fund balances, end of year
$5,643,291
Program services expenses (Part IX)
$4,277,340
Management and general expenses
$477,460
Fundraising expenses
$424,876
Program service expenses (Part III)
$4,277,340

Program services were 82.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $2,413,225

  • 1e · Government grants (contributions)

    $879,709

  • 1f · All other contributions, gifts and grants

    $2,344,028

  • 3 · Investment income

    total $169,312 · excluded $169,312

  • 7a · Gross sales of assets other than inventory

    securities $520,000

  • 7b · Less cost or other basis and sales expenses

    securities $498,960

  • 7c · Gain or loss

    securities $21,040

  • 7d · Net gain or loss

    total $21,040 · excluded $21,040

  • 8a · Fundraising events: gross income

    $312,247

  • 8a · Fundraising events: contributions included on line 1c

    $2,413,225

  • 8b · Fundraising events: direct expenses

    $1,292,500

  • 8c · Net income from fundraising events

    total -$980,253 · excluded -$980,253

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $320,242 · program services $320,242

  • 5 · Compensation of officers, directors and key employees

    total $434,885 · program services $341,139 · management and general $38,924 · fundraising $54,822

  • 7 · Other salaries and wages

    total $1,633,325 · program services $1,281,239 · management and general $146,188 · fundraising $205,898

  • 8 · Pension plan contributions

    total $42,316 · program services $33,194 · management and general $3,787 · fundraising $5,335

  • 9 · Other employee benefits

    total $201,094 · program services $157,745 · management and general $17,999 · fundraising $25,350

  • 10 · Payroll taxes

    total $180,820 · program services $141,842 · management and general $16,184 · fundraising $22,794

  • 11b · Fees: legal

    total $133,877 · management and general $133,877

  • 11c · Fees: accounting

    total $37,726 · management and general $37,726

  • 11d · Fees: lobbying

    total $36,000 · program services $36,000

  • 11g · Fees: other

    total $39 · management and general $39

  • 13 · Office expenses

    total $167,298 · program services $82,525 · management and general $60,439 · fundraising $24,334

  • 16 · Occupancy

    total $92,467 · program services $16,983 · fundraising $75,484

  • 17 · Travel

    total $66 · management and general $66

  • 19 · Conferences, conventions and meetings

    total $1,327 · program services $1,327

  • 21 · Payments to affiliates

    total $64,959 · program services $50,957 · management and general $5,813 · fundraising $8,189

  • 22 · Depreciation, depletion and amortization

    total $20,438 · program services $19,000 · management and general $1,438

  • 23 · Insurance

    total $14,980 · management and general $14,980

  • 24a · Other expenses: PATIENT & CLINIC SUPPOR

    total $1,292,407 · program services $1,292,407

  • 24b · Other expenses: RESEARCH

    total $500,000 · program services $500,000

  • 24c · Other expenses: PUBLIC AWARENESS & EDUC

    total $2,740 · program services $2,740

  • 24d · Other expenses: OTHER FUNDRAISING COST

    total $2,670 · fundraising $2,670

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,112,923 · end of year $884,215

  • 2 · Savings and temporary cash investments

    beginning of year $853,504 · end of year $865,474

  • 3 · Pledges and grants receivable

    beginning of year $503,212 · end of year $684,448

  • 9 · Prepaid expenses and deferred charges

    beginning of year $88,509 · end of year $148,332

  • 10a · Land, buildings and equipment: cost or other basis

    $1,387,215

  • 10b · Land, buildings and equipment: accumulated depreciation

    $1,358,566

  • 10c · Land, buildings and equipment, net

    beginning of year $49,087 · end of year $28,649

  • 11 · Investments: publicly traded securities

    beginning of year $3,540,459 · end of year $3,239,144

  • 15 · Other assets

    beginning of year $1,357,640 · end of year $1,100,853

  • 17 · Accounts payable and accrued expenses

    beginning of year $36,410 · end of year $72,119

  • 25 · Other liabilities

    beginning of year $1,533,319 · end of year $1,235,705

  • 27 · Net assets without donor restrictions

    beginning of year $5,920,391 · end of year $5,578,077

  • 28 · Net assets with donor restrictions

    beginning of year $15,214 · end of year $65,214

Mission and programs · 2023

Mission

THE MISSION OF ALS UNITED GREATER NEW YORK IS TO SUPPORT & EMPOWER THE ALS COMMUNITY THROUGH A COLLABORATIVE APPROACH TO FOSTERING BOLD RESEARCH INITIATIVES, ADVANCING NATIONAL & STATE ADVOCACY, & PROVIDING COMPREHENSIVE CARE TO INDIVIDUALS & FAMILIES AFFECTED BY ALS.

Activities or mission (Part I)

DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS.

  • CARE SERVICES: ALS UNITED GREATER NEW YORK PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, LOWER AND MID-HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ORGANIZATION SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.

    Expenses $3,197,569 · Grants $320,242

  • RESEARCH: ALS UNITED GREATER NEW YORK HAS FUNDED MORE THAN $16.5 MILLION IN ALS-SPECIFIC RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE ORGANIZATION IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.

    Expenses $514,237

  • PUBLIC AWARENESS AND EDUCATION: ALS UNITED GREATER NEW YORK WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ORGANIZATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ORGANIZATION CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 63,000 VIEWERS VISIT OUR WEBSITE ANNUALLY TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, X AND LINKEDIN REACH 18,500 FOLLOWERS.

    Expenses $335,413

  • ADVOCACY: ALS UNITED GREATER NEW YORK WORKS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS IN ORDER TO DRIVE THEM TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ORGANIZATION HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ORGANIZATION CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIRECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES.

    Expenses $230,121

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Allen Popowitz Esq

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    4

  • Lennard Katz

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    4

  • W Marc Lane

    TREASURER

    Total calculated
    $0
    Hours/week
    4

  • Nancy Miringoff

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • Erik Berniker

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Lee Brodsky

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Alice Claar

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kevin Glassman MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Dorine Gordon

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Alan Levine

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • David Lubars

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Matthew Perline

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Joshua Rand

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Peter Rosenberger

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Nirali Shah Esq

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Robert Tuchman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kristen Cocoman

    PRESIDENT & CEO

    Total calculated
    $222,608
    From this org
    $215,688
    From related orgs
    $0
    Other
    $6,920
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $215,688
    Bonus
    $0
    Other
    $0
    Deferred
    $6,471
    Nontaxable benefits
    $449
    Filer's total
    $222,608

  • Regina Ackley

    VICE PRESIDENT & COO

    Total calculated
    $210,798
    From this org
    $193,452
    From related orgs
    $0
    Other
    $17,346
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $155,952
    Bonus
    $37,500
    Other
    $0
    Deferred
    $5,804
    Nontaxable benefits
    $11,542
    Filer's total
    $210,798

  • Vivian Banks

    DIR. OF IND. & INST. GIVING

    Total calculated
    $130,164
    From this org
    $115,167
    From related orgs
    $0
    Other
    $14,997
    Hours/week
    40

  • Jordana Newler

    DIR. OF FUNDRAISING & EVENTS

    Total calculated
    $129,694
    From this org
    $114,711
    From related orgs
    $0
    Other
    $14,983
    Hours/week
    40

  • Debbie Schlossberg

    CHIEF CARE SERVICES OFFICER

    Total calculated
    $116,457
    From this org
    $112,777
    From related orgs
    $0
    Other
    $3,680
    Hours/week
    32

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
2 October 2024
IRS schema version
2023v5.1
Source object
202412789349301401

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.