Totals
- Total revenue
- $147,641
- Total expenses
- $108,398
- Contributions and grants received
- $116,078
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $30,650
- Other revenue
- $913
- Total assets, end of year
- $664,057
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $664,057
- Program services expenses (Part IX)
- $91,998
- Management and general expenses
- $12,652
- Fundraising expenses
- $3,748
- Program service expenses (Part III)
- $91,998
Program services were 84.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1a · Federated campaigns
$0
-
1b · Membership dues
$0
-
1c · Fundraising events
$5,300
-
1d · Related organizations
$0
-
1e · Government grants (contributions)
$0
-
1f · All other contributions, gifts and grants
$110,778
-
1g · Noncash contributions included above
$0
-
3 · Investment income
total $30,650 · related or exempt $30,650 · unrelated business $0 · excluded $0
-
4 · Income from investment of tax-exempt bond proceeds
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
5 · Royalties
total $0 · related or exempt $0 · unrelated business $0 · excluded $0
-
6c · Rental income or loss
real property $0 · personal property $0
-
7c · Gain or loss
securities $0 · other assets $0
-
8a · Fundraising events: contributions included on line 1c
$0
-
11d · All other revenue
total $913 · related or exempt $913 · unrelated business $0 · excluded $0
-
11e · Other revenue, total
$913
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0 · program services $0
-
2 · Grants to domestic individuals
total $0 · program services $0
-
3 · Grants to foreign organizations and individuals
total $0 · program services $0
-
4 · Benefits paid to or for members
total $0 · program services $0
-
5 · Compensation of officers, directors and key employees
total $0 · program services $0 · management and general $0 · fundraising $0
-
6 · Compensation of disqualified persons
total $0 · program services $0 · management and general $0 · fundraising $0
-
7 · Other salaries and wages
total $0 · program services $0 · management and general $0 · fundraising $0
-
8 · Pension plan contributions
total $0 · program services $0 · management and general $0 · fundraising $0
-
9 · Other employee benefits
total $0 · program services $0 · management and general $0 · fundraising $0
-
10 · Payroll taxes
total $0 · program services $0 · management and general $0 · fundraising $0
-
11a · Fees: management
total $55,750 · program services $46,500 · management and general $7,000 · fundraising $2,250
-
11b · Fees: legal
total $0 · program services $0 · management and general $0 · fundraising $0
-
11c · Fees: accounting
total $433 · program services $0 · management and general $433 · fundraising $0
-
11d · Fees: lobbying
total $0 · program services $0 · management and general $0 · fundraising $0
-
11e · Fees: professional fundraising services
total $0 · fundraising $0
-
11f · Fees: investment management
total $26 · program services $0 · management and general $26 · fundraising $0
-
11g · Fees: other
total $40,941 · program services $40,941 · management and general $0 · fundraising $0
-
13 · Office expenses
total $386 · program services $0 · management and general $386 · fundraising $0
-
14 · Information technology
total $2,280 · program services $0 · management and general $2,280 · fundraising $0
-
15 · Royalties
total $0 · program services $0 · management and general $0 · fundraising $0
-
16 · Occupancy
total $0 · program services $0 · management and general $0 · fundraising $0
-
17 · Travel
total $0 · program services $0 · management and general $0 · fundraising $0
-
18 · Travel or entertainment for public officials
total $0 · program services $0 · management and general $0 · fundraising $0
-
19 · Conferences, conventions and meetings
total $2,961 · program services $2,961 · management and general $0 · fundraising $0
-
20 · Interest
total $0 · program services $0 · management and general $0 · fundraising $0
-
21 · Payments to affiliates
total $0 · program services $0 · management and general $0 · fundraising $0
-
22 · Depreciation, depletion and amortization
total $0 · program services $0 · management and general $0 · fundraising $0
-
23 · Insurance
total $650 · program services $0 · management and general $650 · fundraising $0
-
24a · Other expenses: Bloomerang (donor management service)
total $1,498 · program services $0 · management and general $0 · fundraising $1,498
-
24b · Other expenses: Bethany Lutheran (HDSA symposium venue)
total $750 · program services $750 · management and general $0 · fundraising $0
-
24c · Other expenses: Google Workspace
total $432 · program services $0 · management and general $432 · fundraising $0
-
24d · Other expenses: Constant Contact
total $846 · program services $846 · management and general $0 · fundraising $0
-
24e · All other expenses
total $1,445 · program services $0 · management and general $1,445 · fundraising $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $100,406 · end of year $54,802
-
2 · Savings and temporary cash investments
beginning of year $0 · end of year $0
-
3 · Pledges and grants receivable
beginning of year $0 · end of year $0
-
4 · Accounts receivable
beginning of year $13,145 · end of year $8,825
-
5 · Loans and receivables from officers and key people
beginning of year $0 · end of year $0
-
6 · Loans and receivables from disqualified persons
beginning of year $0 · end of year $0
-
7 · Other notes and loans receivable
beginning of year $0 · end of year $0
-
8 · Inventories for sale or use
beginning of year $0 · end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $0 · end of year $0
-
10c · Land, buildings and equipment, net
beginning of year $0
-
11 · Investments: publicly traded securities
beginning of year $511,454 · end of year $600,430
-
12 · Investments: other securities
beginning of year $0 · end of year $0
-
13 · Investments: program-related
beginning of year $0 · end of year $0
-
14 · Intangible assets
beginning of year $0 · end of year $0
-
15 · Other assets
beginning of year $0 · end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $0 · end of year $0
-
18 · Grants payable
beginning of year $0 · end of year $0
-
19 · Deferred revenue
beginning of year $0 · end of year $0
-
20 · Tax-exempt bond liabilities
beginning of year $0 · end of year $0
-
21 · Escrow or custodial account liability
beginning of year $0 · end of year $0
-
22 · Loans and payables to officers and key people
beginning of year $0 · end of year $0
-
23 · Secured mortgages and notes payable
beginning of year $0 · end of year $0
-
24 · Unsecured notes and loans payable
beginning of year $0 · end of year $0
-
25 · Other liabilities
beginning of year $0
-
29 · Capital stock, trust principal or current funds
beginning of year $0 · end of year $0
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $625,005 · end of year $664,057
Mission and programs · 2023
Mission
Movement Disorders Foundation helps people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer professional and patient-focused education and provide unique care services.
Activities or mission (Part I)
We help people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer patient-focused education or provide unique care services.
-
Research projects funded by the Movement Disorders Foundation GRANT FUNDING program must have a clear possibility of working at scale and for which grant funding has been otherwise difficult to obtain. In 2023, the organization restructured its grant funding program to support early-career research scientists in their advancement of high risk/high reward translational and/or clinical research that advances the understanding, treatment or prevention of multiple movement disorders. Subsequently, the organization did not award any grants in 2023. The new Young Investigator Pilot Grant program formally launched in February 2024 with an invitational request for proposals to research institutions in the United States, Canada and United Kingdom.
Expenses $16,000
-
Movement Disorder Foundation's HUNTINGTON'S DISEASE (HD) CLINIC provides an elite team approach to HD care and research. Patients benefit from expert neurologists, psychiatrists, social workers, therapists, counselors and other professionals who have extensive experience working with families affected by the disease and who work collaboratively to help families plan the best HD care program throughout the course of the disease. With the Huntington's Disease Society of America (HDSA), Movement Disorders Foundation helps fund and administers the Center of Excellence at the Rocky Mountain Movement Disorders Center, a comprehensive clinic where patients can visit with genetic counselors, psychologists, therapists and providers - at no charge. The Center of Excellence distinction is conferred on clinics who share HDSA's commitment to high-quality, comprehensive care and access to clinical research.
Expenses $47,000 · Revenue $42,000
-
Movement Disorders Foundation hosted its annual Huntington's Disease FAMILY EDUCATION DAY symposium in October 2023. The event was held in person and later streamed to a combined audience of over 60 participants.
Expenses $6,498 · Revenue $2,347
-
Movement Disorders Foundation's ENEWSLETTER provides important news, information and resources each Thursday for individuals living with movement disorders and their care partners. Now in its second year, the MDF eNewsletter reaches over 3000 people each week with more than 1600 active readers.
Expenses $22,500
As filed on the 2023 return.
Listed in Part VII
-
Eugene H Sobczak
Executive Director
- Total calculated
- $55,750
- From this org
- $55,750
- From related orgs
- $0
- Other
- $0
- Hours/week
- 12.5
-
Betty Ross
Chairperson
- Total calculated
- $0
- Hours/week
- 2
-
Morris Susman MD
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Peter McKown
Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Rajeev Kumar MD
Board member
- Total calculated
- $0
- Hours/week
- 2
-
Sara Minott
Board member
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 22 June 2024
- IRS schema version
- 2023v5.0
- Source object
- 202401769349300800
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