Skip to content
Nonprofiteer
← THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION

Form 990 for tax year 2023

Filed by THE SUDDEN ARRHYTHMIA DEATH SYNDROMES FOUNDATION.

Totals

Total revenue
$809,771
Total expenses
$812,020
Contributions and grants received
$892,702
Grants paid
$0
Program service revenue
$0
Investment income
$24,826
Other revenue
-$107,757
Total assets, end of year
$891,924
Total liabilities, end of year
$142,320
Net assets or fund balances, end of year
$749,604
Program services expenses (Part IX)
$680,224
Management and general expenses
$41,600
Fundraising expenses
$90,196
Program service expenses (Part III)
$680,224

Program services were 83.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $164,772

  • 1f · All other contributions, gifts and grants

    $727,930

  • 1g · Noncash contributions included above

    $42,194

  • 3 · Investment income

    total $24,998 · related or exempt $24,998

  • 7a · Gross sales of assets other than inventory

    securities $13,341

  • 7b · Less cost or other basis and sales expenses

    securities $13,513

  • 7c · Gain or loss

    securities -$172

  • 7d · Net gain or loss

    total -$172 · related or exempt -$172

  • 8a · Fundraising events: contributions included on line 1c

    $164,772

  • 8b · Fundraising events: direct expenses

    $107,757

  • 8c · Net income from fundraising events

    total -$107,757

Functional expenses

Part IX, the statement of functional expenses.

  • 7 · Other salaries and wages

    total $436,127 · program services $341,923 · management and general $25,990 · fundraising $68,214

  • 10 · Payroll taxes

    total $34,374 · program services $26,950 · management and general $2,048 · fundraising $5,376

  • 11c · Fees: accounting

    total $5,515 · management and general $5,515

  • 11g · Fees: other

    total $155,979 · program services $153,626 · management and general $2,353

  • 12 · Advertising and promotion

    total $3,273 · program services $3,273

  • 13 · Office expenses

    total $50,325 · program services $42,450 · management and general $1,213 · fundraising $6,662

  • 16 · Occupancy

    total $25,449 · program services $19,952 · management and general $1,517 · fundraising $3,980

  • 17 · Travel

    total $30,386 · program services $30,386

  • 19 · Conferences, conventions and meetings

    total $36,812 · program services $36,812

  • 20 · Interest

    total $796 · management and general $796

  • 22 · Depreciation, depletion and amortization

    total $389 · program services $304 · management and general $23 · fundraising $62

  • 23 · Insurance

    total $3,930 · program services $3,930

  • 24a · Other expenses: CREDIT CARD PROCESSING FE

    total $9,858 · program services $7,729 · management and general $587 · fundraising $1,542

  • 24b · Other expenses: MEETING EXPENSE

    total $7,521 · program services $5,385 · management and general $448 · fundraising $1,688

  • 24c · Other expenses: REPAIRS & MAINTENANCE

    total $4,360 · program services $3,418 · management and general $260 · fundraising $682

  • 24d · Other expenses: DUES & MEMBERSHIPS

    total $3,171 · program services $331 · management and general $850 · fundraising $1,990

  • 24e · All other expenses

    total $3,755 · program services $3,755

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $301,560 · end of year $318,111

  • 4 · Accounts receivable

    beginning of year $5,293 · end of year $39,556

  • 9 · Prepaid expenses and deferred charges

    beginning of year $727

  • 10a · Land, buildings and equipment: cost or other basis

    $13,246

  • 10b · Land, buildings and equipment: accumulated depreciation

    $12,857

  • 10c · Land, buildings and equipment, net

    beginning of year $778 · end of year $389

  • 11 · Investments: publicly traded securities

    beginning of year $447,034 · end of year $478,073

  • 15 · Other assets

    beginning of year $80,210 · end of year $55,795

  • 17 · Accounts payable and accrued expenses

    beginning of year $29,845 · end of year $86,888

  • 25 · Other liabilities

    beginning of year $79,568 · end of year $55,432

  • 27 · Net assets without donor restrictions

    beginning of year $621,189 · end of year $580,437

  • 28 · Net assets with donor restrictions

    beginning of year $105,000 · end of year $169,167

Mission and programs · 2023

Mission

THE ORGANIZATION'S MISSION IS TO SAVE THE LIVES OF CHILDREN AND YOUNG ADULTS WHO ARE GENETICALLY PREDISPOSED OR OTHERWISE SUSCEPTIBLE TO SUDDEN DEATH TO CARDIAC ARRHYTHMIAS AND TO PROVIDE EDUCATION AND SUPPORT TO FAMILIES AND THE MEDICAL COMMUNITY WHO ARE DEALING WITH THESE DISORDERS. THE SADS FOUNDATION IS DEDICATED TO PROVIDING INFORMATION, ASSISTANCE, AND HOPE.

  • THE SADS FOUNDATION PROVIDES INFORMATION, ASSISTANCE, AND HOPE RELATED TO THIS DISEASE. IN FULFILLING THIS MISSION, THE ORGANIZATION HAS THE FOLLOWING GOALS: EDUCATION: TO EDUCATE HEALTH CARE PROVIDERS AND LAY PUBLIC TO PROMOTE EARLY DIAGNOSIS AND TREATMENT. PATIENT SERVICES: TO SERVE AS A PHYSICIAN REFERRAL RESOURCE AND TO PROVIDE INFORMATION TO PHYSICIANS WHO CARE FOR PATIENTS WITH CARDIAC ARRHYTHMIAS. SUPPORT SERVICES: TO ASSIST ALL THOSE AFFECTED BY THE SUDDEN DEATH OF AN INFANT. PUBLIC AWARENESS: TO INFORM FAMILIES, PHYSICIANS, AND COMMUNITIES ABOUT THE GENETIC CARDIAC ARRHYTHMIAS IN THE YOUNG AND THEREBY PREVENT SUDDEN CARDIAC DEATH IN YOUNG PEOPLE. RESEARCH: TO ENCOURAGE RESEARCH ON GENETIC CARDIOVASCULAR DISEASES PREDISPOSING THE YOUNG TO SUDDEN DEATH.

    Expenses $680,224

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • ALICE LARA

    EXECUTIVE DI

    Total calculated
    $91,233
    From this org
    $91,233
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • MICHAEL J ACKERMAN MD PHD

    PRESIDENT

    Total calculated
    $0
  • SUSAN ETHERIDGE MD

    VICE PRESIDE

    Total calculated
    $0
  • SCOTT DAILARD

    SECRETARY

    Total calculated
    $0
  • PHILIP MURRAY HOWARD III

    TREASURER

    Total calculated
    $0
  • JOANNA BEWICK

    BOARD MEMBER

    Total calculated
    $0
  • BRYNN DECHERT-CROOKS RN MSN

    BOARD MEMBER

    Total calculated
    $0
  • LAURIE SMITH HOOPER

    BOARD MEMBER

    Total calculated
    $0
  • JEFFREY J KIM MD

    BOARD MEMBER

    Total calculated
    $0
  • ANTHONY LUCATUORTO

    BOARD MEMBER

    Total calculated
    $0
  • CHARLES BERUL MD

    BOARD MEMBER

    Total calculated
    $0
  • GENEVIE ECHOLS

    BOARD MEMBER

    Total calculated
    $0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
16 August 2024
IRS schema version
2023v5.0
Source object
202442299349301814

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.