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Nonprofiteer
← TEXAS NEUROFIBROMATOSIS FOUNDATION

Form 990 for tax year 2022

Filed by TEXAS NEUROFIBROMATOSIS FOUNDATION.

Totals

Total revenue
$564,208
Total expenses
$576,691
Contributions and grants received
$560,761
Grants paid
$46,475
Program service revenue
$0
Investment income
$2,426
Other revenue
$1,021
Total assets, end of year
$590,826
Total liabilities, end of year
$56,696
Net assets or fund balances, end of year
$534,130
Program services expenses (Part IX)
$176,562
Management and general expenses
$99,647
Fundraising expenses
$300,482
Program service expenses (Part III)
$176,562

Program services were 30.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $446,007

  • 1f · All other contributions, gifts and grants

    $114,754

  • 1g · Noncash contributions included above

    $145,666

  • 3 · Investment income

    total $2,426 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: contributions included on line 1c

    $446,007

  • 11a · Other revenue: Other

    total $1,021 · related or exempt $1,021 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $1,021

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $45,000 · program services $45,000

  • 2 · Grants to domestic individuals

    total $1,475 · program services $1,475

  • 5 · Compensation of officers, directors and key employees

    total $87,000 · program services $34,800 · management and general $43,500 · fundraising $8,700

  • 7 · Other salaries and wages

    total $82,012 · program services $30,033 · management and general $24,572 · fundraising $27,407

  • 10 · Payroll taxes

    total $12,929 · program services $4,960 · management and general $5,207 · fundraising $2,762

  • 11c · Fees: accounting

    total $10,965 · program services $0 · management and general $6,031 · fundraising $4,934

  • 13 · Office expenses

    total $25,459 · program services $7,822 · management and general $12,633 · fundraising $5,004

  • 16 · Occupancy

    total $22,329 · program services $11,165 · management and general $4,466 · fundraising $6,698

  • 24a · Other expenses: Education

    total $24,908 · program services $24,908 · management and general $0 · fundraising $0

  • 24b · Other expenses: Camps and symposiums

    total $11,091 · program services $11,091 · management and general $0 · fundraising $0

  • 24c · Other expenses: Telephone

    total $1,991 · program services $498 · management and general $1,194 · fundraising $299

  • 24d · Other expenses: Special Event

    total $241,791 · program services $0 · management and general $0 · fundraising $241,791

  • 24e · All other expenses

    total $9,741 · program services $4,810 · management and general $2,044 · fundraising $2,887

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,000 · end of year $1,000

  • 2 · Savings and temporary cash investments

    beginning of year $566,157 · end of year $540,057

  • 3 · Pledges and grants receivable

    end of year $2,055

  • 4 · Accounts receivable

    beginning of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $12,626 · end of year $25,528

  • 10a · Land, buildings and equipment: cost or other basis

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 15 · Other assets

    end of year $22,186

  • 17 · Accounts payable and accrued expenses

    beginning of year $7,205 · end of year $9,045

  • 19 · Deferred revenue

    beginning of year $25,965 · end of year $25,465

  • 25 · Other liabilities

    beginning of year $0 · end of year $22,186

  • 27 · Net assets without donor restrictions

    beginning of year $467,184 · end of year $398,382

  • 28 · Net assets with donor restrictions

    beginning of year $79,429 · end of year $135,748

Mission and programs · 2022

Mission

To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.

  • The organization funds and supports neurofibromatosis research projects and participates in a Neurofibromatosis National Affairs Coalition to increase public awareness and insure and increase funding allocated from federally funded programs.

    Expenses $62,459 · Grants $45,000

  • The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis clinics. It conducts a symposium featuring nationally recognized researchers, a yearly family camp, and family support groups. In 2016 the the family camp served 136 patients and family members, 6 support groups serving 95 individuals, total served though events and clinics were 768 patients.

    Expenses $109,322 · Grants $1,475

  • The organization increases neurofibromatosis public awareness by publishing newsletters, public speaking engagements, exhibiting at state educational and medical meetings, and using billboards.

    Expenses $4,781

As filed on the 2022 return.

Listed in Part VII

  • John Lowe

    Director

    Total calculated
    $0
    Hours/week
    1

  • Laura G Lyon

    Director/President

    Total calculated
    $0
    Hours/week
    5

  • Laina Olinger

    Director/ VP

    Total calculated
    $0
    Hours/week
    5

  • Janie Perelman

    Director

    Total calculated
    $0
    Hours/week
    1

  • Tammy Benson O'Brien

    Director

    Total calculated
    $0
    Hours/week
    1

  • Tricia Madden

    Director/Secretary

    Total calculated
    $0
    Hours/week
    5

  • Bob Boronow

    Director

    Total calculated
    $0
    Hours/week
    1

  • Scott Remphrey

    Director

    Total calculated
    $0
    Hours/week
    1

  • Kathryn Loo

    Treasurer

    Total calculated
    $0
    Hours/week
    5

  • John Slopis MD

    Director

    Total calculated
    $0
    Hours/week
    1

  • Cindy Hahn

    Executive Director

    Total calculated
    $87,000
    From this org
    $87,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Paul Schrier

    Director

    Total calculated
    $0
    Hours/week
    1

  • Edel Cuadra

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jeff Davison

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jane Hoskins

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jon Keith

    Director

    Total calculated
    $0
    Hours/week
    1

  • Katie Lange

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
19 June 2023
IRS schema version
2022v5.0
Source object
202331819349300028

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