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← EHE FOUNDATION

Form 990 for tax year 2023

Filed by EHE FOUNDATION.

Totals

Total revenue
$414,593
Total expenses
$562,349
Contributions and grants received
$359,411
Grants paid
$217,320
Program service revenue
$0
Investment income
$55,182
Other revenue
$0
Total assets, end of year
$1,902,421
Total liabilities, end of year
$176,830
Net assets or fund balances, end of year
$1,725,591
Program services expenses (Part IX)
$485,379
Management and general expenses
$41,714
Fundraising expenses
$35,256
Program service expenses (Part III)
$485,379

Program services were 86.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $359,411

  • 3 · Investment income

    total $55,182 · related or exempt $1,376 · excluded $53,806

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $114,728 · program services $114,728

  • 2 · Grants to domestic individuals

    total $2,000 · program services $2,000

  • 3 · Grants to foreign organizations and individuals

    total $100,592 · program services $100,592

  • 5 · Compensation of officers, directors and key employees

    total $13,288 · program services $10,897 · management and general $1,063 · fundraising $1,328

  • 7 · Other salaries and wages

    total $3,412 · program services $2,798 · management and general $273 · fundraising $341

  • 9 · Other employee benefits

    total $136 · program services $111 · management and general $12 · fundraising $13

  • 10 · Payroll taxes

    total $1,947 · program services $1,597 · management and general $155 · fundraising $195

  • 11c · Fees: accounting

    total $8,856 · management and general $8,856

  • 11f · Fees: investment management

    total $6,955 · management and general $6,955

  • 11g · Fees: other

    total $275,942 · program services $223,573 · management and general $20,635 · fundraising $31,734

  • 12 · Advertising and promotion

    total $237 · program services $194 · fundraising $43

  • 13 · Office expenses

    total $20,501 · program services $17,550 · management and general $1,366 · fundraising $1,585

  • 17 · Travel

    total $11,594 · program services $9,507 · management and general $2,087

  • 23 · Insurance

    total $1,496 · program services $1,197 · management and general $299

  • 24a · Other expenses: DUES & SUBSCRIPTIONS

    total $500 · program services $500

  • 24b · Other expenses: ALL OTHER

    total $165 · program services $135 · management and general $13 · fundraising $17

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $328,997 · end of year $105,814

  • 2 · Savings and temporary cash investments

    beginning of year $766,143 · end of year $865,160

  • 3 · Pledges and grants receivable

    beginning of year $125,000 · end of year $50,000

  • 4 · Accounts receivable

    beginning of year $116 · end of year $28,579

  • 11 · Investments: publicly traded securities

    beginning of year $878,822 · end of year $852,868

  • 17 · Accounts payable and accrued expenses

    beginning of year $12,882 · end of year $76,830

  • 18 · Grants payable

    beginning of year $275,000 · end of year $100,000

  • 27 · Net assets without donor restrictions

    beginning of year $1,489,096 · end of year $1,478,491

  • 28 · Net assets with donor restrictions

    beginning of year $322,100 · end of year $247,100

Mission and programs · 2023

Mission

TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS.

  • RESEARCH: THE EHE FOUNDATION FUNDED RESEARCH PROJECTS IN BASIC AND TRANSLATIONAL SCIENCE AIMED TO ADVANCE KNOWLEDGE IN THE DISEASE, ENABLING THE IDENTIFICATION OF EFFECTIVE TREATMENTS FOR EHE. IN ADDITION TO FUNDING EXTERNAL RESEARCH, THE FOUNDATION FUNDED AND ADVANCED PATIENT-LED RESEARCH INITIATIVES INCLUDING BIOBANKING OF EHE BIOSPECIMENS, DEVELPMENT OF A GLOBAL PATIENT REGISTRY, AND EXPANDING EHE CELL-LINE DEVELOPMENT. THE FOUNDATION CONTINUED ITS GROWTH OF A GLOBAL PATIENT-LED RESEARCH NETWORK, INCLUDING CLINICIAN-SCIENTISTS, RESEARCHERS, AND ADVOCATES IN A SCIENTIFIC SYMPOSIUM.

    Expenses $437,128 · Grants $217,320

  • PATIENT SERVICES: THE EHE FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT EHE, INCLUDING PHYSICIANS EXPERIENCED IN TREATING EHE, AND TREATMENT OPTIONS BY DEVELOPING AND PUBLISHING EDUCATIONAL CONTENT, HOSTING EDUCATIONAL CONFERENCES, AND PROVIDING ONLINE AND 1:1 PEER SUPPORT.

    Expenses $48,251

As filed on the 2023 return.

Listed in Part VII

  • Tammy Silverthorne

    EXECUTIVE DI

    Total calculated
    $13,288
    From this org
    $11,342
    From related orgs
    $0
    Other
    $1,946
    Hours/week
    40

  • Denise Robinson

    BOARD MEM./R

    Total calculated
    $70,400
    From this org
    $70,400
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Julia Wahl

    BOARD VP/FIN

    Total calculated
    $41,100
    From this org
    $41,100
    From related orgs
    $0
    Other
    $0
    Hours/week
    45

  • Jenni Kovach

    PRESIDENT

    Total calculated
    $0
    Hours/week
    7

  • Sarah Bright

    TREASURER

    Total calculated
    $0
    Hours/week
    3

  • Leeann Conner

    BOARD MEMBER

    Total calculated
    $22,500
    From this org
    $22,500
    From related orgs
    $0
    Other
    $0
    Hours/week
    25

  • Amy Baghdadi

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

  • John McFadden

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

  • David Casimir

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
13 May 2024
IRS schema version
2023v5.0
Source object
202411359349304156

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