Form 990 for tax year 2023

Totals

Total revenue

$18,385,764

Total expenses

$18,303,331

Contributions and grants received

$17,954,505

Grants paid

$5,840,759

Program service revenue

$0

Investment income

$324,486

Other revenue

$106,773

Total assets, end of year

$16,414,111

Total liabilities, end of year

$9,968,654

Net assets or fund balances, end of year

$6,445,457

Program services expenses (Part IX)

$13,519,736

Management and general expenses

$1,359,746

Fundraising expenses

$3,423,849

Program service expenses (Part III)

$13,519,736

Program services were 73.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• RESEARCH AND GRANTING PROGRAMS:IN 2023, CCRF AWARDED OVER $6 MILLION IN RESEARCH AND PROGRAM GRANTS DESIGNED TO FUND THE BEST, MOST INNOVATIVE RESEARCH TO ADVANCE TOWARD BREAKTHROUGH TREATMENTS FOR CHILDREN WITH CANCER, IN THESE AREAS OF FOCUS: - HARD TO TREAT CANCERS: WE PRIORITIZE RESEARCH FOR CANCERS WITH PERSISTENTLY LOW SURVIVAL RATES OR THOSE SHOWING LITTLE IMPROVEMENT OVER THE YEARS. THIS ENCOMPASSED HIGHLY AGGRESSIVE AND OFTEN FATAL CANCERS SUCH AS BRAIN TUMORS, SARCOMAS, AND CERTAIN TYPES OF LEUKEMIAS. IN 2023, WE ALLOCATED $1.3 MILLION TOWARDS A RESEARCH INITIATIVE AT CHILDREN'S HOSPITAL OF PHILADELPHIA, FOCUSING THEIR EFFORTS ON NEUROBLASTOMA. COLLABORATING WITH ORGANIZATIONS NATIONWIDE, WE CONTRIBUTED TO A $1.5 MILLION OSTEOSARCOMA SUPER GRANT AWARDED TO A RESEARCH AT NEW YORK MEDICAL COLLEGE. MOREOVER, WE PROVIDED $1.0 MILLION IN FUNDING FOR BRAIN TUMOR RESEARCH AT THE UNIVERSITY OF MINNESOTA. - SURVIVORSHIP: MANY SURVIVORS OF CHILDHOOD CANCERS GRAPPLE WITH ENDURING CONSEQUENCES OF CHEMOTHERAPY, RADIATION, OR SURGICAL INTERVENTIONS, INCLUDING HEARING IMPAIRMENT, CARDIAC ISSUES, AND INFERTILITY. FURTHER INVESTIGATION IS ESSENTIAL TO DEVELOP STRATEGIES FOR EFFECTIVELY MANAGING POST-CANCER CONDITIONS IN CHILDREN AND YOUNG-ADULTS, AIMING TO MITIGATE OR ERADICATE THESE LONG-TERM EFFECTS, PARTICULARLY CONCERNING NOVEL IMMUNE-BASED AND TARGETED THERAPIES DEVELOPED IN RECENT YEARS. NOTEWORTHY IN 2023, WE GRANTED $250,000 TO A RESEARCHER AT WASHINGTON UNIVERSITY IN ST. LOUIS, CONCENTRATING ON LONG-TERM COGNITIVE OUTCOMES IN SURVIVORS OF PEDIATRIC BRAIN TUMORS. - HEALTH DISPARITIES: DISPARITIES IN CANCER OUTCOMES AMONG CHILDREN ARE INFLUENCED BY FACTORS SUCH AS RACE, ETHNICITY, AND SOCIOECONOMIC BACKGROUND. OUR FUNDING SUPPORTS RESEARCH AIMED AT UNCOVERING THE ROOT CAUSES OF THESE DISPARITIES AND DEVISING INTERVENTIONS TO RECTIFY THEM. IN 2023, WE ALLOCATED $250,000 TO RESEARCH BEING DONE AT DANA-FARBER CANCER INSTITUTE, DEDICATED TO INVESTIGATING POVERTY-INDUCED DRUG RESISTANCE IN PATIENTS WITH ACUTE LYMPHOBLASTIC LEUKEMIA (ALL). - EMERGING SCIENTISTS: WE IDENTIFY AND SUPPORT EXCEPTIONALLY SKILLED RESEARCHERS AT THE OUTSET OF THEIR CAREERS, AIDING THEM IN ESTABLISHING THEIR LABORATORIES AND CONDUCTING PRELIMINARY INVESTIGATIONS. THIS SUPPORT LAYS THE FOUNDATION FOR THEM TO SECURE THE ESSENTIAL FEDERAL GRANTS NECESSARY TO ADVANCE NOVEL THERAPIES AND POTENTIAL CURES FOR PEDIATRIC CANCERS. NOTABLY, WE GRANTED $200,000 TO RESEARCHERS AT VIRGINIA POLYTECHNIC INSTITUTE & STATE UNIVERSITY AND ST. JUDE RESEARCH HOSPITAL FOR THEIR EFFORTS FOCUSED IN OSTEOSARCOMA RESEARCH AND THE DEVELOPMENT OF TARGETED THERAPIES. - SUSTAINING PROMISING RESEARCH INITIATIVES: RECOGNIZING THE POTENTIAL OF TWO PREVIOUSLY SUPPORTED RESEARCH ENDEAVORS THAT HAVE EXHIBITED ENCOURAGING RESULTS, WE EXTENDED ADDITIONAL FUNDING TO THE INVESTIGATORS, ENABLING THEM TO CONTINUE THEIR MOMENTUM. A TOTAL OF $375,000 WAS GRANTED TO RESEARCHERS AT DANA-FARBER CANCER INSTITUTE AND UNIVERSITY OF SOUTHERN CALIFORNIA SAN FRANCISCO, SUPPORTING THEIR ONGOING INVESTIGATIONS INTO SARCOMA CANCERS AND RELAPSED LIVER CANCER. THIS EXTENSION ENSURE THE CONTINUITY AND PROGRESSION OF THEIR VITAL WORK IN THESE CRITICAL AREAS OF STUDY.

  Expenses $6,423,219 · Grants $5,840,759

• EDUCATION AND AWARENESS PROGRAM:IN ADDITION TO FUNDING RESEARCH AND OFFERING SUPPORT PROGRAMS, WE GENERATE AWARENESS ABOUT THE NEED FOR CHILDHOOD CANCER RESEARCH AND PROVIDE EDUCATIONAL RESOURCES FOR RESEARCHERS. WE REACH MILLIONS OF PEOPLE THROUGH OUR WEBSITE, DIGITAL AND SOCIAL MEDIA PLATFORMS, AND IN-KIND TELEVISION AND PRINT ADVERTISING TO SHARE THE STORIES OF KIDS, FAMILIES, AND RESEARCHERS. WE'RE ALSO PROUD TO SUPPORT THE CANCER SURVIVORSHIP CONFERENCE, THE MARK E. NESBIT LECTURESHIP IN PEDIATRIC ONCOLOGY, AND THE NORMA K.C. RAMSAY, MD, DISTINGUISHED VISITING PROFESSOR LECTURESHIP SERIES. THESE BRING NATIONALLY RECOGNIZED CHILDHOOD CANCER EXPERTS TO MINNESOTA TO SPEAK ON CURRENT SURVIVORSHIP, CLINICAL AND RESEARCH ISSUES, AS WELL AS BUILD NEW RESEARCH COLLABORATIONS.

  Expenses $6,517,863

• FAMILY SUPPORT PROGRAMS:OUR DEDICATED FAMILY PROGRAMS IMPROVE THE WELL-BEING OF KIDS AND FAMILIES AS THEY NAVIGATE THE DIFFICULT EXPERIENCES OF CANCER TREATMENT, SURVIVORSHIP, OR BEREAVEMENT. THESE OFFERINGS INCLUDE: - THE BIG DREAMS TOUR - A CREATIVE OUTLET THAT REDUCES ISOLATION BY LEVERAGING AR, VR, AND XR TECHNOLOGY TO PROVIDE PEDIATRIC CANCER PATIENTS AN OPPORTUNITY TO GAME TOGETHER MONTHLY AND CREATE THEIR OWN ANIMATED MUSIC VIDEO, VIDEO GAME, OR VFX VIDEO; INCLUDING COMMUNITY EVENTS WHERE THEIR CREATIONS ARE BROUGHT TO LIFE IN COLORADO, FLORIDA, MAINE, MINNESOTA, AND NEW JERSEY. - CAMP NORDEN - IN-PERSON AND VIRTUAL FIVE-DAY SUMMER CAMPS ARE DESIGNED ESPECIALLY TO MEET THE UNIQUE NEEDS OF CHILDREN WHO HAVE BEEN DIAGNOSED WITH CANCER AND SUPPORT FRIENDSHIP-BUILDING, SOLIDARITY WITH PEERS, INCREASED SELF-ESTEEM, AND A FEELING OF INDEPENDENCE. THESE CAMPS FOSTER COMMUNITY AND ELIMINATE FINANCIAL OR GEOGRAPHICAL BARRIERS TO ATTEND.

  Expenses $578,654

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• UNIVERSITY OF MINNESOTA FOUNDATION

  $700,000

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#032922-3 UMF FUND #24232 KATIE HAGEBOECK CLINIC PURPOSE: SURVIVORSHIP CARE AND RESEARCH

• UNIVERSITY OF MINNESOTA FOUNDATION

  $650,000

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#032922-5 FUND 24231-KATIE HAGEBOECK CLINIC FUND CAPITAL FUNDING

• FRED HUTCHINSON CANCER CENTER

  $511,640

  FRED HUTCHINSON CANCER CENTER: 2022 RESEARCH FUND DR SOHEIL MESHINCHI 1ST PAYMENT

• UNIVERSITY OF MINNESOTA FOUNDATION

  $250,000

  UNIVERSITY OF MINNESOTA FOUNDATION: GA# 090123-01 24232 KATIE HAGEBOECK UMF #25157- NK CELL THERAPY FOR MALIGNANT BRAIN TUMOR

• UNIVERSITY OF MINNESOTA FOUNDATION

  $250,000

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#090123-01 UMF#25157 NK CELL THERAPY FOR MALIGNANT BRAIN TUMOR PROJECT FUND 22000

• UNIVERSITY OF MINNESOTA FOUNDATION

  $214,901

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#123122-5 OSTEOSARCOMA DR. BEAU WEBBER

• UNIVERSITY OF MINNESOTA FOUNDATION

  $200,000

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#022321-4 FUND 15901 PURPOSE EMERGING SCIENTIST AWARDS

• UNIVERSITY OF MINNESOTA FOUNDATION

  $200,000

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#022321-4 FUND 15901PURPOSE MEDICAL FELLOWSHIPS

• UNIVERSITY OF MINNESOTA FOUNDATION

  $148,756

  UNIVERSITY OF MINNESOTA FOUNDATION: GA#123122-8 22256 CGI EQUIP

• THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA 2022 HARD TO TREAT D

  $125,000

  THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA: 2022 HARD TO TREAT DR JOHN BUSHWELLER

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type

form_990

Tax year

2023

Filed

30 August 2024

IRS schema version

2023v5.1

Source object

202402609349302310

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.