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← EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC

Form 990 for tax year 2024

Filed by EPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK INC.

Totals

Total revenue
$1,117,476
Total expenses
$1,147,877
Contributions and grants received
$888,989
Grants paid
$0
Program service revenue
$201,402
Investment income
$27,085
Other revenue
$0
Total assets, end of year
$2,364,404
Total liabilities, end of year
$446,419
Net assets or fund balances, end of year
$1,917,985
Program services expenses (Part IX)
$879,713
Management and general expenses
$122,273
Fundraising expenses
$145,891
Program service expenses (Part III)
$879,713

Program services were 76.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $259,664

  • 1e · Government grants (contributions)

    $424,392

  • 1f · All other contributions, gifts and grants

    $204,933

  • 2a · Program service revenue: DEPARTMENT OF HEALTH

    total $196,652 · related or exempt $196,652

  • 2b · Program service revenue: FEE FOR SERVICE

    total $4,750 · related or exempt $4,750

  • 3 · Investment income

    total $27,085 · excluded $27,085

  • 8a · Fundraising events: gross income

    $69,279

  • 8a · Fundraising events: contributions included on line 1c

    $259,664

  • 8b · Fundraising events: direct expenses

    $69,279

  • 8c · Net income from fundraising events

    total $0

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $151,863 · program services $116,935 · management and general $12,149 · fundraising $22,779

  • 7 · Other salaries and wages

    total $560,714 · program services $431,749 · management and general $44,857 · fundraising $84,108

  • 8 · Pension plan contributions

    total $20,815 · program services $16,028 · management and general $1,665 · fundraising $3,122

  • 9 · Other employee benefits

    total $81,871 · program services $64,890 · management and general $6,458 · fundraising $10,523

  • 10 · Payroll taxes

    total $57,650 · program services $42,540 · management and general $4,705 · fundraising $10,405

  • 11c · Fees: accounting

    total $11,600 · management and general $11,600

  • 11g · Fees: other

    total $13,686 · program services $13,686

  • 12 · Advertising and promotion

    total $73 · program services $67 · management and general $6

  • 13 · Office expenses

    total $10,549 · program services $9,703 · management and general $846

  • 16 · Occupancy

    total $67,590 · program services $52,043 · management and general $5,409 · fundraising $10,138

  • 21 · Payments to affiliates

    total $25,000 · management and general $25,000

  • 22 · Depreciation, depletion and amortization

    total $4,880 · program services $4,490 · management and general $390

  • 23 · Insurance

    total $13,232 · program services $10,188 · management and general $1,059 · fundraising $1,985

  • 24a · Other expenses: SPECIAL PROJECTS

    total $64,219 · program services $64,219

  • 24b · Other expenses: TRAVEL

    total $9,707 · program services $8,930 · management and general $777

  • 24c · Other expenses: REPAIRS AND MAINTENANCE

    total $8,598 · program services $6,620 · management and general $688 · fundraising $1,290

  • 24d · Other expenses: POSTAGE

    total $8,277 · program services $7,615 · management and general $662

  • 24e · All other expenses

    total $37,553 · program services $30,010 · management and general $6,002 · fundraising $1,541

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $78,866 · end of year $148,034

  • 2 · Savings and temporary cash investments

    beginning of year $63,002 · end of year $3,038

  • 4 · Accounts receivable

    beginning of year $179,561 · end of year $97,552

  • 9 · Prepaid expenses and deferred charges

    beginning of year $8,589 · end of year $25,929

  • 10a · Land, buildings and equipment: cost or other basis

    $40,093

  • 10b · Land, buildings and equipment: accumulated depreciation

    $20,852

  • 10c · Land, buildings and equipment, net

    beginning of year $24,121 · end of year $19,241

  • 11 · Investments: publicly traded securities

    beginning of year $1,750,228 · end of year $1,856,244

  • 15 · Other assets

    beginning of year $278,183 · end of year $214,366

  • 17 · Accounts payable and accrued expenses

    beginning of year $141,587 · end of year $145,612

  • 19 · Deferred revenue

    beginning of year $93,363 · end of year $86,441

  • 25 · Other liabilities

    beginning of year $278,183 · end of year $214,366

  • 27 · Net assets without donor restrictions

    beginning of year $1,869,417 · end of year $1,917,985

Mission and programs · 2024

Mission

THE MISSION OF THE EPILEPSY FOUNDATION IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES.

Activities or mission (Part I)

THE EPILEPSY FOUNDATION LEADS THE FIGHT TO STOP SEIZURES, FIND A CURE AND OVERCOME THE CHALLENGES CREATED BY EPILEPSY.

  • EDUCATIONAL TRAINING TO ASSIST INDIVIDUALS WITH SEIZURE DISORDERS SO THEY MAY LEAD ACTIVE AND FULFILLING LIVES; EDUCATE THE COMMUNITY; HELP FAMILIES COPE WITH A RELATIVE'S SEIZURE.

    Expenses $879,713 · Revenue $201,402

As filed on the 2024 return.

Listed in Part VII

  • BETTY DIMARIA

    PRESIDENT

    Total calculated
    $0
    Hours/week
    0

  • HARRIET KANG

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • KEVIN VOLK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • H MICHAEL OKBY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • LYNNE LONGTIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • CATHRYN SHEEHY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • KAREN WACHS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • NICHOLAS ZARELLI

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    0

  • MICHAEL BRUNELL

    TREASURER

    Total calculated
    $0
    Hours/week
    0

  • JOHN HARWICK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • YVONNE LUTZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • RYAN SENECAL

    SECRETARY

    Total calculated
    $0
    Hours/week
    0

  • DANIEL LEHANE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • DEBORAH STEVENS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • TIM RONK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • MARISSA BROADLEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • VIODELDA HOSHING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • CHRISTOPHER PRIORE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • SHANNON RICHARDS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • SANDRA SPINELLI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0

  • JEANNINE GARAB

    EXECUTIVE DIRECTOR

    Total calculated
    $156,419
    From this org
    $151,863
    From related orgs
    $0
    Other
    $4,556
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,863
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $4,556
    Filer's total
    $156,419

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
23 May 2025
IRS schema version
2024v5.1
Source object
202531689349300903

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