Form 990 for tax year 2023

Totals

Total revenue

$904,148

Total expenses

$616,980

Contributions and grants received

$777,468

Grants paid

$0

Program service revenue

$35,845

Investment income

$39,898

Other revenue

$50,937

Total assets, end of year

$1,522,557

Total liabilities, end of year

$111,825

Net assets or fund balances, end of year

$1,410,732

Program services expenses (Part IX)

$507,194

Management and general expenses

$48,183

Fundraising expenses

$61,603

Program service expenses (Part III)

$507,194

Program services were 82.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• THE PROGRAMS AND SERVICES OFFERED BY THE ORGANIZATION INCLUDE: -DADS IN ACTION: A PROGRAM DESIGNED BY HFA FOR MALE CAREGIVERS OF CHILDREN WITH BLEEDING DISORDERS. THE PROGRAM ENCOURAGES FATHERS TO TAKE AN ACTIVE ROLE IN THEIR CHILD'S LIFE AND PROVIDES INFORMATION, SUPPORT AND MENTORING FOR THEM. -BLOOD BROTHERHOOD: BLOOD BROTHERHOOD IS A NATIONAL PROGRAM DESIGNED BY HFA FOR ADULT MEN, DIAGNOSED AND LIVING WITH BLEEDING DISORDERS. IT IS DESIGNED TO BE A MULTI-AVENUE OUTREACH, TO PROVIDE EDUCATION AND SUPPORT, PROMOTE GOOD HEALTH, AND ESTABLISH A SENSE OF COMMUNITY FOR ADULT MEN. -WOMAN'S TASK FORCE: THIS PROJECT PROVIDES INFORMATION AND PROGRAMING FOR WOMEN WITH BLEEDING DISORDERS. THE PRIMARY FOCUS IS TO PROVIDE OUTREACH TO AID IN EARLIER DIAGNOSIS. WE PRIMARILY SERVE THE BLEEDING IS ORDERS COMMUNITY IN THE 24 COUNTIES IN NORTHEAST OHIO, ALTHOUGH OUR DENTAL PROGRAM AND ADVOCACY PROGRAM SERVES THE ENTIRE STATE. WE HAVE MANY STRONG RELATIONSHIPS IN THE BLEEDING DISORDER COMMUNITY. WE ARE A CHARTER MEMBER OF THE NATIONAL HEMOPHILIA FOUNDATION (NHF) AND A MEMBER ORGANIZATION OF THE HEMOPHILIA FOUNDATION OF AMERICA (HFA). STAFF ATTENDS CONFERENCES THROUGH BOTH ORGANIZATIONS TO KEEP UPDATED ON NEW TREATMENTS, MEDICATION, AND EDUCATIONAL ADVANCEMENTS. WE ARE ALSO A MEMBER OF THE OHIO BLEEDING DISORDER COUNCIL (OBDC). THIS STATEWIDE GROUP PROVIDES INFORMATION ABOUT ADVOCACY WITHIN THE STATE AND NATIONALLY. NOHF PARTICIPATES IN WASHINGTON DAYS AND STATEHOUSE DAYS TO GIVE OUR MEMBERS THE CHANCE TO MEET WITH STATE AND NATIONAL OFFICIALS. -YOUTH GOLF PROGRAM: THIS PROGRAM IS AVAILABLE TO CHILDREN AGE 10 TO 18 TO LEARN THE GAME OF GOLF. THE PROGRAM RUNS WEEKLY FOR 8 WEEKS, AT A CENTRALLY LOCATED COURSE, DURING THE SUMMER TO TEACH NEW SKILLS AND ALSO PROVIDE WEEKLY EDUCATIONAL PROGRAMS RELATING TO THEIR BLEEDING DISORDERS. SIBLINGS ARE ALSO WELCOME TO ATTEND THIS PROGRAM. -SWIM PROGRAM: THIS PROGRAM PROVIDES 8 WEEKS OF SWIM CLASSES AT THREE INDOOR POOLS, INCLUDING YMCA AND COMMUNITY POOLS, IN NORTHEAST OHIO. THE PROGRAM IS OPEN TO ALL AGES TO LEARN HOW TO SWIM OR TO INCREASE THEIR SWIMMING SKILLS. THE PROGRAM RUNS FROM JANUARY THROUGH MARCH. -VARIOUS WELLNESS INITIATIVES: WE OFFER VARIOUS WELLNESS INITIATIVES THROUGHOUT THE YEAR INCLUDING YOGA, RUN TRAINING PROGRAMS AND GUIDED IMAGERY. -STEPS FOR LIVING: A PROGRAM FOR NEWLY DIAGNOSED FAMILIES BASED ON THE MODEL PROVIDED BY NHF. IT PROVIDES EDUCATIONAL QUARTERLY MEETINGS AND SUPPORT FOR PARENTS AND OTHER FAMILY MEMBERS DURING THE EARLY COPING YEARS THROUGH FAMILY-TO-FAMILY SUPPORT AND MENTORING. -COUNSELING: UP TO 500 PER FAMILY PER YEAR FOR INDIVIDUAL OR FAMILY COUNSELING. -CAMP SCHOLARSHIPS: WE SEND CHILDREN TO HEMOPHILIA-GEARED CAMPS AND PROVIDE EITHER TRANSPORTATION OR MILEAGE REIMBURSEMENT. -EDUCATIONAL SCHOLARSHIPS: WE PROVIDE UP TO 500 EACH YEAR FOR PEOPLE WITH BLEEDING DISORDERS AND THEIR CAREGIVERS FOR TUITION, TUTORING OR EDUCATIONAL SUPPLIES, SUCH AS BOOKS. -MEDICALERT: WE PROVIDE EMBLEMS AND YEARLY MEMBERSHIP TO CHILDREN AND ADULTS WITH BLEEDING DISORDERS. -EMERGENCY FINANCIAL ASSISTANCE: ELIGIBLE FAMILIES MAY REQUEST 500 PER YEAR FOR ASSISTANCE IF THEIR FINANCIAL DURESS IS DIRECTLY RELATED TO THEIR BLEEDING DISORDER

  Expenses $507,194

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2023

Filed

12 November 2024

IRS schema version

2023v5.0

Source object

202423189349302542

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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