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Nonprofiteer
← THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC

Form 990 for tax year 2024

Filed by THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC.

Totals

Total revenue
$14,311,761
Total expenses
$12,881,402
Contributions and grants received
$10,008,956
Grants paid
$2,650,583
Program service revenue
$2,234,268
Investment income
$150,586
Other revenue
$1,917,951
Total assets, end of year
$12,567,424
Total liabilities, end of year
$1,109,314
Net assets or fund balances, end of year
$11,458,110
Program services expenses (Part IX)
$11,374,821
Management and general expenses
$843,630
Fundraising expenses
$662,951
Program service expenses (Part III)
$11,374,821

Program services were 88.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • GRETCHEN EGNER

    BOARD CHAIRMAN

    Total calculated
    $0
    Hours/week
    8

  • ALPA KHUSHALANI

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    8

  • DAWN REZKALLA

    TREASURER

    Total calculated
    $0
    Hours/week
    6

  • DEANNE FRIAR

    SECRETARY

    Total calculated
    $0
    Hours/week
    6

  • DAVID N HOFSTEIN

    EXECUTIVE COMMITTEE

    Total calculated
    $0
    Hours/week
    6

  • SUE APKON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JEFFREY BIGELOW

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MARU CHAPUR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TIMOTHY CRIPE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MICHELLE FURLONG

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LANCE HESTER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SUSAN HUANG

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JOHN KILLIAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • RICHARD KLEIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SCOTT PERRIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • COLIN RENSCH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • PATRICIA A FURLONG

    PRESIDENT AND CEO

    Total calculated
    $383,769
    From this org
    $370,075
    From related orgs
    $0
    Other
    $13,694
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $342,375
    Bonus
    $27,700
    Other
    $0
    Deferred
    $13,662
    Nontaxable benefits
    $32
    Filer's total
    $383,769

  • KAYLAN MOITOSO

    CHIEF BUSINESS OFFICER

    Total calculated
    $302,675
    From this org
    $293,650
    From related orgs
    $0
    Other
    $9,025
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $271,250
    Bonus
    $22,400
    Other
    $0
    Deferred
    $8,896
    Nontaxable benefits
    $129
    Filer's total
    $302,675

  • JODI WOLFF

    CHIEF PROGRAM OFFICER

    Total calculated
    $206,964
    From this org
    $194,569
    From related orgs
    $0
    Other
    $12,395
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $194,569
    Bonus
    $0
    Other
    $0
    Deferred
    $9,385
    Nontaxable benefits
    $3,010
    Filer's total
    $206,964

  • ANN MARTIN

    VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV.

    Total calculated
    $193,429
    From this org
    $176,600
    From related orgs
    $0
    Other
    $16,829
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $163,600
    Bonus
    $13,000
    Other
    $0
    Deferred
    $8,888
    Nontaxable benefits
    $7,941
    Filer's total
    $193,429

  • RACHEL SCHRADER

    VICE PRESIDENT, CLINICAL CARE & EDUCATION

    Total calculated
    $208,357
    From this org
    $174,800
    From related orgs
    $0
    Other
    $33,557
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $161,800
    Bonus
    $13,000
    Other
    $0
    Deferred
    $8,800
    Nontaxable benefits
    $24,757
    Filer's total
    $208,357

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
28 July 2025
IRS schema version
2024v5.2
Source object
202522339349301912

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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