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Nonprofiteer
← DOWN SYNDROME ASSOCIATION OF MINNESOTA

Form 990 for tax year 2022

Filed by DOWN SYNDROME ASSOCIATION OF MINNESOTA.

Totals

Total revenue
$700,680
Total expenses
$837,724
Contributions and grants received
$213,529
Grants paid
$36,598
Program service revenue
$420,326
Investment income
$0
Other revenue
$66,825
Total assets, end of year
$460,589
Total liabilities, end of year
$13,422
Net assets or fund balances, end of year
$447,167
Program services expenses (Part IX)
$647,251
Management and general expenses
$99,387
Fundraising expenses
$91,086
Program service expenses (Part III)
$647,251

Program services were 77.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $213,529

  • 2a · Program service revenue: Annual Conference

    total $28,053 · related or exempt $28,053

  • 2b · Program service revenue: Bike Camp

    total $14,700 · related or exempt $14,700

  • 2c · Program service revenue: Step Up for DS Walk

    total $360,387 · related or exempt $360,387

  • 2d · Program service revenue: Youth & Adult Programs

    total $17,186 · related or exempt $17,186

  • 3 · Investment income

    total $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6d · Net rental income or loss

    total $0

  • 7d · Net gain or loss

    total $0

  • 8a · Fundraising events: gross income

    $70,676

  • 8b · Fundraising events: direct expenses

    $32,418

  • 8c · Net income from fundraising events

    total $38,258

  • 9c · Net income from gaming

    total $0

  • 10c · Net income from sales of inventory

    total $0

  • 11a · Other revenue: Calendars and Tshirts

    total $28,567 · related or exempt $28,567

  • 11e · Other revenue, total

    $28,567

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $6,850 · program services $6,850

  • 2 · Grants to domestic individuals

    total $29,748 · program services $29,748

  • 3 · Grants to foreign organizations and individuals

    total $0

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $110,000 · program services $77,000 · management and general $11,000 · fundraising $22,000

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $209,701 · program services $161,470 · management and general $20,970 · fundraising $27,261

  • 8 · Pension plan contributions

    total $0

  • 9 · Other employee benefits

    total $0

  • 10 · Payroll taxes

    total $31,480 · program services $24,240 · management and general $3,148 · fundraising $4,092

  • 11a · Fees: management

    total $90,495 · program services $90,495

  • 11b · Fees: legal

    total $0

  • 11c · Fees: accounting

    total $23,448 · management and general $23,448

  • 11d · Fees: lobbying

    total $0

  • 11e · Fees: professional fundraising services

    total $2,160 · fundraising $2,160

  • 11f · Fees: investment management

    total $6,593 · management and general $6,593

  • 11g · Fees: other

    total $14,580 · program services $14,580

  • 12 · Advertising and promotion

    total $1,365 · program services $1,365

  • 13 · Office expenses

    total $36,350 · program services $27,980 · management and general $3,662 · fundraising $4,708

  • 14 · Information technology

    total $35,633 · program services $27,438 · management and general $3,563 · fundraising $4,632

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $44,621 · program services $34,358 · management and general $4,462 · fundraising $5,801

  • 17 · Travel

    total $20,776 · program services $15,997 · management and general $2,078 · fundraising $2,701

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $122,766 · program services $122,766

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $2,505 · management and general $2,505

  • 23 · Insurance

    total $6,776 · management and general $6,776

  • 24a · Other expenses: Credit Card Fees

    total $10,575 · fundraising $10,575

  • 24b · Other expenses: Fees

    total $7,856 · management and general $7,856

  • 24c · Other expenses: Printing and Publications

    total $7,763 · program services $5,978 · management and general $776 · fundraising $1,009

  • 24d · Other expenses: Mail Processing fees

    total $5,692 · fundraising $5,692

  • 24e · All other expenses

    total $9,991 · program services $6,986 · management and general $2,550 · fundraising $455

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $57,893 · end of year $39,389

  • 2 · Savings and temporary cash investments

    beginning of year $1,403 · end of year $1,304

  • 3 · Pledges and grants receivable

    end of year $0

  • 4 · Accounts receivable

    end of year $0

  • 5 · Loans and receivables from officers and key people

    end of year $0

  • 6 · Loans and receivables from disqualified persons

    end of year $0

  • 7 · Other notes and loans receivable

    end of year $0

  • 8 · Inventories for sale or use

    end of year $0

  • 9 · Prepaid expenses and deferred charges

    end of year $62,675

  • 10a · Land, buildings and equipment: cost or other basis

    $5,010

  • 10c · Land, buildings and equipment, net

    beginning of year $7,514 · end of year $5,010

  • 11 · Investments: publicly traded securities

    beginning of year $576,162 · end of year $352,211

  • 12 · Investments: other securities

    end of year $0

  • 13 · Investments: program-related

    end of year $0

  • 14 · Intangible assets

    end of year $0

  • 15 · Other assets

    beginning of year $1 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $6,209 · end of year $13,422

  • 27 · Net assets without donor restrictions

    beginning of year $616,137 · end of year $447,167

  • 28 · Net assets with donor restrictions

    beginning of year $20,627

Mission and programs · 2022

Mission

IT IS THE MISSION OF DOWN SYNDROME ASSOCIATION OF MINNESOTA TO EMPOWER INDIVIDUALS AND FAMILIES, TO CREATE COMMUNITY AND CELEBRATE THE ABILITIES OF PEOPLE WITH DOWN SYNDROME OUR V ISION IS FOR ALL PEOPLE WITH DOWN SYNDROME TO ACHIEVE THEIR FULLEST POTENTIAL IN AN ACCEPTING AND INCLUSIVE COMMUNITY.

  • This year Family Connector Program served 221 and an additional 72 families through the emergency financial assistance program. Reached more than 21,000 students through our World Down Syndrome Day and 4,300 people for Step Up for Down Syndrome awareness events. Served 682 through our Parent Support Group programs and an additional 59 parents who welcomed a new child with Ds in 2022. Reached 1,800 individuals with Down syndrome and their families through our direct services programs and community family engagement events. OUR STEP UP FOR DOWN SYNDROME WALK CONTINUES TO BE THE HIGHLIGHT OF THE YEAR FOR MANY OF 0 UR FAMILIES IT IS ONE OF THE LARGEST PUBLIC AWARENESS/CELEBRATORY WALKS IN THE COUNTRY PROMOTING ACCEPTANCE OF INDIVIDUALS WITH DOWN SYNDROME. OUR MISSION STATEMENT CALLS FOR SUPPORT, INFORMATION AND RESOURCES TO PARENTS AND INDIVIDUALS WITH DOWN SYNDROME THE INITIAL SUPPORT IS ACCOMPLISHED THROUGH OUR INFORMATION KITS W HICH ARE AVAILABLE IN ALL HOSPITALS IN MN THAT HAVE BIRTH CENTERS AND THROUGH GENETIC COUNSELORS PARENTS ARE SUPPORTED BY DSAMN AT THE MOMENT THE CONTACT IS MADE WITH US TWO DEDICATED STAFF MEMBERS HANDLE CALLS FROM NEW AS WELL AS EXPECTANT PARENTS RESOURCES ARE SENT THEM IMMEDIATELY UPON THE DIAGNOSIS BEING MADE, CONNECTIONS ARE MADE AND OUR NEW PARENT G IFTS ARE FORWARDED TO THEM WELCOMING THEM TO THE DOWN SYNDROME ASSOCIATION OF MINNESOTA I NFORMATIONAL PUBLICATIONS INCLUDE DOWN COMFORTER A PARENT'S GUIDE TO DOWN SYNDROME FOR NEW AND EXPECTANT PARENTS, SHARING THE NEWS A DIAGNOSIS OF DOWN SYNDROME FOR MEDICAL PROFES SIONALS, AND WE DREAM WHICH INCLUDES INFORMATION AND FACTS FOR THE BROADER COMMUNITY TO BE TTER UNDERSTAND DOWN SYNDROME WE PROVIDE ONGOING OUTREACH AND SUPPORT TO THE MEDICAL COMM UNITY TO PROVIDE ACCURATE INFORMATION AND RESOURCES FOR FAMILIES NEW TO OUR COMMUNMITY WE SUPPORT 19 PHYSICAL PARENT GROUPS THROUGHOUT THE REGION AND EACH OF THE GROUPS HAS A FACE BOOK PAGE FOR GROUP MEMBERS TO COMMUNICATE WITH EACH OTHER THESE GROUPS HAVE A DEDICATED STAFF MEMBER WHO TRAINS THE FACILITATORS, SUPPORTS THEM IN ALL AREAS OF ADMINISTRATIVE AN D CLERICAL NEEDS DSAMN ALSO HOSTS SPECIALTY SUPPORT GROUPS SUCH AS ADULTS MATTER, DUAL DIAGNOSIS, SOMALI MOMS, AND GRANDPARENT GROUPS PARENT TO PARENT CONNECTION IS A SERVICE THAT MATCHES NEW OR EXPECTANT PARENTS THROUGH ONE ON ONE CONVERSATIONS AND MENTORSHIP WITH PARENTS WHO HAVE EXPERIENCED THEIR SAME FEELINGS, STRUGGLES AND CELEBRATIONS WE PROVIDE ENGAGEMENT

    Expenses $647,251

As filed on the 2022 return.

Listed in Part VII

  • Sarah Curfman

    Executive Director

    Total calculated
    $110,000
    From this org
    $110,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $110,000
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $110,000
  • Suzy Lindeberg

    Chairman

    Total calculated
    $0
    Hours/week
    5
  • William Weber

    Treasurer

    Total calculated
    $0
    Hours/week
    1
  • Nicole Kapps

    Secretary

    Total calculated
    $0
    Hours/week
    1
  • Heidi Stuman

    Director

    Total calculated
    $0
    Hours/week
    1
  • Toni Malone

    Director

    Total calculated
    $0
    Hours/week
    1
  • Christine Hendrickson

    Director

    Total calculated
    $0
    Hours/week
    1
  • Teddy Spencer

    Vice President

    Total calculated
    $0
    Hours/week
    1
  • Abigail Cushing

    Director

    Total calculated
    $0
    Hours/week
    1
  • Heather Bradley

    Director

    Total calculated
    $0
    Hours/week
    1
  • Anastasia Ketko

    Vice President

    Total calculated
    $0
    Hours/week
    1
  • Chris Wolf

    Director

    Total calculated
    $0
    Hours/week
    1
  • Cora Holland-Koller

    Director

    Total calculated
    $0
    Hours/week
    1
  • Gina Schmidtiel

    Director

    Total calculated
    $0
    Hours/week
    1
  • Kari Schmitz

    Director

    Total calculated
    $0
    Hours/week
    1
  • Laura Plys

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
15 May 2023
IRS schema version
2022v5.0
Source object
202321359349304512

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