Totals
- Total revenue
- $92,600
- Total expenses
- $98,411
- Contributions and grants received
- $92,600
- Grants paid
- not reported
- Program service revenue
- not reported
- Membership dues (line 3)
- not reported
- Investment income (line 4)
- not reported
- Gain or loss on sale of assets (line 5c)
- not reported
- Gaming and fundraising events, net (line 6d)
- not reported
- Gross profit on inventory sales (line 7c)
- not reported
- Other revenue (line 8)
- not reported
- Total assets, end of year
- $26,463
- Total liabilities, end of year
- $32,274
- Net assets or fund balances, end of year
- -$5,811
- Program service expenses (Part III)
- $37,089
Program services were 37.7% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.
Mission and programs · 2022
Primary exempt purpose
OUR MISSION IS TO MAKE INDIVIDUALIZED MEDICINES ROUTINELY AND RAPIDLY ACCESSIBLE TO RARE DISEASE PATIENTS WORLDWIDE.
-
TO SUPPORT SCIENTIFIC RESEARCH AND THE DEVELOPMENT OF INDIVIDUALIZED MEDICINES FOR PATIENTS WITH RARE DISEASE. SPECIFIC EXAMPLE: BEGAN PILOT DATABASES TO AGGREGATE AND DISSEMINATE PRECLINICAL AND CLINICAL DATA. SCOPED FUTURE DATA
Expenses $16,690
-
TO EDUCATE THE GLOBAL COMMUNITY ABOUT INDIVIDUALIZED MEDICINES. ACCOMPLISHMENT: EXPANDED WORKGROUPS (PATIENT IDENTIFICATION, PRECLINICAL DESIGN, DATA COORDINATION, CLINICAL OUTCOME MEASURES, AND INSTITUTIONAL IMPLEMENTATION), AND ESTABLISHED GOALS, OVERALL PRIORITIES, AND KEY MILESTONES. HOSTED COLLABORATIVE MEETINGS AND WORKSHOPS TO BEGIN WORKSTREAMS. SPECIFIC EXAMPLE: CREATED SIGNIFICANT COMMUNITY MOMENTUM FOR STANDARDS AND DESIGN SERVER; WILLINGNESS EXPRESSED BY MANY TO COLLABORATE ON THIS.
Expenses $16,688
-
TO EDUCATE THE GLOBAL COMMUNITY ABOUT INDIVIDUALIZED MEDICINES. SPECIFIC EXAMPLE: HELD CONFERENCES AND SEMINARS OPEN TO ALL STAKEHOLDERS TO ADVANCE IMPORTANT CONVERSATIONS.
Expenses $3,711
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part IV
-
Winston YanWINSTON YAN
PRESIDENT
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 5
-
Julia VitarelloJULIA VITARELLO
SECRETARY
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 5
-
Tim YuTIM YU
TREASURER
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 5
-
Annemieke Aartsma-RusANNEMIEKE AARTSMA-RUS
BOARD MEMBER
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 2
-
Keith FlanagamKEITH FLANAGAM
BOARD MEMBER
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 2
-
Holm GraessnerHOLM GRAESSNER
BOARD MEMBER
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.5
-
Nicole BoiceNICOLE BOICE
BOARD MEMBER
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.5
Compensation is as filed in Part IV of the Form 990-EZ: compensation, contributions to benefit plans, expense account, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990_ez
- Tax year
- 2022
- Filed
- 10 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202323179349205232
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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