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Nonprofiteer
← FAM177A1 RESEARCH FUND

Form 990 for tax year 2025

Filed by FAM177A1 RESEARCH FUND.

Totals

Total revenue
$333,831
Total expenses
$272,224
Contributions and grants received
$362,115
Grants paid
$243,153
Program service revenue
$0
Investment income
$4,967
Other revenue
-$33,251
Total assets, end of year
$327,249
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$327,249
Program services expenses (Part IX)
$246,812
Management and general expenses
$2,689
Fundraising expenses
$22,723
Program service expenses (Part III)
$246,812

Program services were 90.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $270,195

  • 1f · All other contributions, gifts and grants

    $91,920

  • 3 · Investment income

    total $4,967 · excluded $4,967

  • 8a · Fundraising events: gross income

    $25,050

  • 8a · Fundraising events: contributions included on line 1c

    $270,195

  • 8b · Fundraising events: direct expenses

    $58,301

  • 8c · Net income from fundraising events

    total -$33,251 · excluded -$33,251

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $89,942 · program services $89,942

  • 3 · Grants to foreign organizations and individuals

    total $153,211 · program services $153,211

  • 11g · Fees: other

    total $22,723 · fundraising $22,723

  • 12 · Advertising and promotion

    total $472 · management and general $472

  • 13 · Office expenses

    total $1,312 · management and general $1,312

  • 19 · Conferences, conventions and meetings

    total $3,659 · program services $3,659

  • 23 · Insurance

    total $905 · management and general $905

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    end of year $33,413

  • 2 · Savings and temporary cash investments

    beginning of year $265,642 · end of year $293,836

  • 27 · Net assets without donor restrictions

    beginning of year $265,642 · end of year $327,249

Mission and programs · 2025

Mission

The FAM177A1 Research Fund is a family-led patient advocacy organization dedicated to improving the lives of everyone impacted by FAM177A1 Disorder. We provide hope to affected families while focusing the global research community on FAM177A1 to develop life-transformative treatm

  • Patient Advocacy & Data: Global Networking: Successfully connected with more families globally, including new cases in the Middle East and Europe, increasing the known patient cohort to facilitate research.

    Expenses $153,211 · Grants $153,211

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $93,601 · Grants $89,942

  • Fundraising & Awareness: The Organization saw a record-breaking year for community engagement: FAM JAM 2025: The 2nd annual FAM JAM event in Seattle raised $280,000, directly fueling the research pipeline. Impact Reporting: Released the 2024 Impact Report in March 2025, providing transparency and documenting the foundations growth and scientific strategy for donors.

As filed on the 2025 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Jill Hawkins

    Founder & President

    Total calculated
    $0
    Hours/week
    25

  • Doug Hawkins

    Vice President

    Total calculated
    $0
    Hours/week
    1

  • Beth Sampson

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Michelle Bice

    Secretary

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
30 March 2026
IRS schema version
2025v4.0
Source object
202600899349300210

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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