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Nonprofiteer
← ARIZONA HEMOPHILIA ASSOCIATION INC

Form 990 for tax year 2022

Filed by ARIZONA HEMOPHILIA ASSOCIATION INC.

Totals

Total revenue
$1,594,171
Total expenses
$1,586,449
Contributions and grants received
$1,218,753
Grants paid
$22,423
Program service revenue
$12,483
Investment income
$360,608
Other revenue
$2,327
Total assets, end of year
$1,883,270
Total liabilities, end of year
$603,244
Net assets or fund balances, end of year
$1,280,026
Program services expenses (Part IX)
$1,333,745
Management and general expenses
$86,081
Fundraising expenses
$166,623
Program service expenses (Part III)
$1,333,745

Program services were 84.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $84,410

  • 1f · All other contributions, gifts and grants

    $1,134,343

  • 2a · Program service revenue: HEALTH CENTER FEES

    total $987 · related or exempt $987

  • 2b · Program service revenue: CAMP & CONFERENCE FEES

    total $11,496 · related or exempt $11,496

  • 3 · Investment income

    total $360,608 · excluded $360,608

  • 6a · Gross rents

    real property $28,000

  • 6b · Less rental expenses

    real property $20,122

  • 6c · Rental income or loss

    real property $7,878

  • 6d · Net rental income or loss

    total $7,878 · excluded $7,878

  • 8a · Fundraising events: gross income

    $107,991

  • 8a · Fundraising events: contributions included on line 1c

    $84,410

  • 8b · Fundraising events: direct expenses

    $114,508

  • 8c · Net income from fundraising events

    total -$6,517 · excluded -$6,517

  • 11a · Other revenue: OTHER

    total $966 · excluded $966

  • 11e · Other revenue, total

    $966

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $22,423 · program services $22,423

  • 5 · Compensation of officers, directors and key employees

    total $128,173 · program services $87,158 · management and general $10,254 · fundraising $30,761

  • 7 · Other salaries and wages

    total $256,949 · program services $198,019 · management and general $7,327 · fundraising $51,603

  • 10 · Payroll taxes

    total $28,458 · program services $21,073 · management and general $1,298 · fundraising $6,087

  • 11b · Fees: legal

    total $13,147 · program services $2,185 · management and general $10,962

  • 11c · Fees: accounting

    total $13,338 · program services $1,491 · management and general $11,847

  • 11g · Fees: other

    total $117,749 · program services $103,410 · management and general $1,622 · fundraising $12,717

  • 12 · Advertising and promotion

    total $26,526 · program services $807 · management and general $4,611 · fundraising $21,108

  • 14 · Information technology

    total $9,124 · program services $1,836 · management and general $5,248 · fundraising $2,040

  • 16 · Occupancy

    total $30,186 · program services $24,149 · management and general $1,207 · fundraising $4,830

  • 17 · Travel

    total $388,145 · program services $382,847 · management and general $78 · fundraising $5,220

  • 20 · Interest

    total $18,502 · program services $14,802 · management and general $740 · fundraising $2,960

  • 22 · Depreciation, depletion and amortization

    total $9,203 · program services $7,363 · management and general $368 · fundraising $1,472

  • 23 · Insurance

    total $16,805 · program services $13,444 · management and general $672 · fundraising $2,689

  • 24a · Other expenses: SUPPLIES AND MATERIALS

    total $51,724 · program services $36,304 · management and general $6,479 · fundraising $8,941

  • 24b · Other expenses: PROGRAM ACTIVITIES

    total $98,022 · program services $96,672 · management and general $1,350

  • 24c · Other expenses: EQUIPMENT RENT AND REPAIR

    total $37,162 · program services $13,637 · management and general $13,080 · fundraising $10,445

  • 24d · Other expenses: MEALS FOOD AND BEVERAGES

    total $299,318 · program services $298,791 · management and general $421 · fundraising $106

  • 24e · All other expenses

    total $21,495 · program services $7,334 · management and general $8,517 · fundraising $5,644

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $276,028 · end of year $254,393

  • 2 · Savings and temporary cash investments

    beginning of year $904,400 · end of year $910,003

  • 3 · Pledges and grants receivable

    beginning of year $21,600 · end of year $20,254

  • 4 · Accounts receivable

    beginning of year $2,000

  • 9 · Prepaid expenses and deferred charges

    beginning of year $51,246 · end of year $49,905

  • 10a · Land, buildings and equipment: cost or other basis

    $835,256

  • 10b · Land, buildings and equipment: accumulated depreciation

    $216,851

  • 10c · Land, buildings and equipment, net

    beginning of year $636,451 · end of year $618,405

  • 15 · Other assets

    beginning of year $5,748 · end of year $30,310

  • 17 · Accounts payable and accrued expenses

    beginning of year $33,627 · end of year $26,883

  • 21 · Escrow or custodial account liability

    beginning of year $1,194 · end of year $1,194

  • 23 · Secured mortgages and notes payable

    beginning of year $590,348 · end of year $549,658

  • 25 · Other liabilities

    end of year $25,509

  • 27 · Net assets without donor restrictions

    beginning of year $489,981 · end of year $1,056,481

  • 28 · Net assets with donor restrictions

    beginning of year $782,323 · end of year $223,545

Mission and programs · 2022

Mission

THE AHA IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR THOSE LIVING WITH CHRONIC BLEEDING DISORDERS WHILE ADVOCATING FOR A CURE.

  • COMMUNITY EDUCATION - PROMOTE COMMUNITY AWARENESS THROUGH VARIOUS CONFERENCES AND OTHER MEDIA:1. VIRTUAL NORTH AMERICAN CAMPING CONFERENCE FOR HEMOPHILIA ORGANIZATIONS - ANNUAL CONFERENCE FOR 200 NATIONAL AND INTERNATIONAL ATTENDEES TO PROMOTE AND ENHANCE THE SUMMER CAMP EXPERIENCE OF CHILDERN WITH BLEEDING DISORDERS.2. VIRTUAL ANNUAL STATEWIDE EDUCATIONAL SYMPOSIUM - BRINGS TOGETHER THOSE WITH BLEEDING DISORDERS AND THEIR FAMILIES FROM ACROSS THE STATE TO PROVIDE EDUCATION TO HELP THEM BETTER MANAGE THIS CHRONIC CONDITION.3. CONDUCTED AN ADVOCACY SUMMIT CONFERENCE VIA ZOOM TO PROMOTE AWARENESS WITHIN THE BLEEDING DISORDER COMMUNITY AND THE GENERAL PUBLIC.4. CONDUCTED A VIRTUAL HISPANIC HERITAGE DAY WITH THE HISPANIC POPULATION AFFECTED BY BLEEDING DISORDERS TO EDUCATE AND SUPPORT THEIR UNIQUE STRUGGLES IN THEIR NATIVE LANGUAGE.5. CONDUCTED A (NOW) CONFERENCE (NATIONAL EDUCATIONAL CONFERENCE FOR INDIVIDUALS AND FAMILIES WHO ARE LIVING WITH VONWILLEBRANDS).

    Expenses $915,046 · Grants $150 · Revenue $11,496

  • COMMUNITY SUPPORT PROGRAMS - PROVIDE EDUCATION AND SUPPORT GROUP MEETINGS INCLUDING:1. QUARTERLY MEETINGS FOR THE COMMUNITY AS A WHOLE THAT INCLUDE EDUCATION, PHARMACEUTICAL INFORMATION, AND TIME FOR INTERACTION.2. EDUCATIONAL MEETINGS THAT INCLUDED: A. LEARNING TO DISCLOSE YOUR BLEEDING DISORDER IN A SAFE WAY. B. UNDERSTANDING INSURANCE AND OPTIONS AVAILABLE TO OUR COMMUNITY. C. HOW TO INTERACT WITH LEGISLATORS TO PROMOTE INSURANCE REFORM. D. NUTRITION AND EXERCISE - HOW TO IMPROVE QUALITY OF LIFE. E. MENTAL HEALTH - HOW TO IMPROVE QUALITY OF LIFE. F. EDUCATIONAL MEETINGS FOR SPANISH-SPEAKING COMMUNITY. G. ON-GOING PROGRAM FOR AT-RISK YOUTH.3. YOUTH CAMPS:

    Expenses $280,269 · Grants $671

  • FAMILY ASSISTANCE - PROVIDE EMERGENCY AND TEMPORARY FINANCIAL ASSISTANCE TO HEMOPHILIA PATIENTS AND THEIR FAMILIES. LIFELINE- PROVIDES ASSISTANCE FOR MEDICAL BILLS, INSURANCE PREMIUMS AND COBRA PAYMENT ASSISTANCE FOR THE COMMUNITY.

    Expenses $128,371 · Grants $21,602

  • HEALTH CENTER - ONGOING COSTS RELATED TO THE MANAGMENT OF MEDICAL RECORDS AND PATIENT ACCOUNTS. THE PROGRAM WAS DISCONTINUED IN SEPTEMBER 2021 AND THE BUIDLING WAS SUBSEQUENTLY SOLD.

    Expenses $10,059 · Revenue $987

As filed on the 2022 return.

Listed in Part VII

  • Leigh Goldstein

    EXECUTIVE DIRECTOR

    Total calculated
    $114,788
    From this org
    $114,290
    From related orgs
    $0
    Other
    $498
    Hours/week
    40

  • Chelsea Guffy

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Jaime Neilson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Sean Okeefe

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Sonia Vohnout

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Evan Rahaeuser

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Ellen Owens-Karcsay

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Karin Gerlach

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • William Kirschner

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Rachel Verdugo

    TREASURER

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

  • AZ BLEEDING DISORDERS HEALTH

    HEALTH CARE · AZ · income $987 · assets $4,794

    Directly controlled by ARIZONA HEMOPHILIA ASSOCIATION

Related partnerships

Part III: related organizations taxable as a partnership, with the filer's share.

  • AZBDBR LLC

    RELATED · SPECIALITY PHARMACY · DE · 49% owned · share of income $293,124

    Directly controlled by BIOTEK REMEDYS INC

Provenance

Return type
form_990
Tax year
2022
Filed
16 January 2024
IRS schema version
2022v5.0
Source object
202400209349300605

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