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Nonprofiteer
← THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC

Form 990 for tax year 2025

Filed by THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC.

Totals

Total revenue
$3,995,717
Total expenses
$2,971,092
Contributions and grants received
$3,826,607
Grants paid
$294,578
Program service revenue
$77,164
Investment income
$91,946
Other revenue
$0
Total assets, end of year
$3,667,992
Total liabilities, end of year
$490,736
Net assets or fund balances, end of year
$3,177,256
Program services expenses (Part IX)
$2,684,982
Management and general expenses
$251,524
Fundraising expenses
$34,586
Program service expenses (Part III)
$2,684,982

Program services were 90.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $3,826,607

  • 2a · Program service revenue: PROGRAM REVENUE

    total $77,164 · related or exempt $77,164

  • 3 · Investment income

    total $91,946 · excluded $91,946

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $279,900 · program services $279,900

  • 2 · Grants to domestic individuals

    total $14,678 · program services $14,678

  • 5 · Compensation of officers, directors and key employees

    total $180,000 · program services $144,000 · management and general $27,000 · fundraising $9,000

  • 7 · Other salaries and wages

    total $397,156 · program services $352,354 · management and general $42,259 · fundraising $2,543

  • 8 · Pension plan contributions

    total $21,281 · program services $17,003 · management and general $3,493 · fundraising $785

  • 10 · Payroll taxes

    total $47,584 · program services $40,446 · management and general $6,186 · fundraising $952

  • 11b · Fees: legal

    total $4,333 · management and general $4,333

  • 11c · Fees: accounting

    total $73,342 · management and general $73,342

  • 11g · Fees: other

    total $440,163 · program services $421,860 · management and general $18,303

  • 12 · Advertising and promotion

    total $234 · management and general $234

  • 13 · Office expenses

    total $23,677 · program services $8,053 · management and general $14,972 · fundraising $652

  • 14 · Information technology

    total $264,503 · program services $259,213 · management and general $5,290

  • 23 · Insurance

    total $8,827 · management and general $8,827

  • 24a · Other expenses: PROGRAMS AND MEETINGS-D

    total $1,119,894 · program services $1,085,895 · management and general $22,666 · fundraising $11,333

  • 24b · Other expenses: TRAINING COSTS

    total $59,930 · program services $57,533 · management and general $2,397

  • 24c · Other expenses: MISCELLANEOUS

    total $16,272 · management and general $16,272

  • 24d · Other expenses: DUES & SUBSCRIPTIONS

    total $9,196 · management and general $3,494 · fundraising $5,702

  • 24e · All other expenses

    total $10,122 · program services $4,047 · management and general $2,456 · fundraising $3,619

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $432,575 · end of year $677,048

  • 2 · Savings and temporary cash investments

    beginning of year $2,041,219 · end of year $2,708,165

  • 3 · Pledges and grants receivable

    end of year $88,000

  • 8 · Inventories for sale or use

    end of year $21,026

  • 9 · Prepaid expenses and deferred charges

    beginning of year $210,893 · end of year $173,753

  • 17 · Accounts payable and accrued expenses

    beginning of year $67,056 · end of year $170,736

  • 19 · Deferred revenue

    beginning of year $465,000 · end of year $320,000

  • 27 · Net assets without donor restrictions

    beginning of year $2,102,631 · end of year $3,177,256

  • 28 · Net assets with donor restrictions

    beginning of year $50,000 · end of year $0

Mission and programs · 2025

Mission

THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT.

  • CONFERENCES AND MEETINGSSPARK IS A TWO-DAY IN-PERSON ANNUAL PATIENT CONFERENCE ATTENDED BY PATIENTS AND THEIR FAMILY MEMBERS. THE EVENT EDUCATES PATIENTS AND CREATES A NETWORK.IGAN INNOVATIONASN KIDNEY WEEK NKF SPRING CLINICAL MEETINGGLOMCON

    Expenses $685,907 · Revenue $60,278

  • EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY, INCLUDING PATIENT AID.PROGRAMS INCLUDE : STIKE OUT IGAN, IGAN AWARENESS DAY, PATIENT ENGAGEMENT PROGRAMS, MONTHLY SUPPORT PROGRAMS, PODCASTS AND WEBINARS, IGAN PLUS MOBILE APPLICATION, GO GLOBAL, AND DIPSTICK URINALYSIS SCREENING INITIATIVE ( DUSI)

    Expenses $1,736,075 · Grants $31,578 · Revenue $16,886

  • RESEARCH GRANTS.COLUMBIA UNIVERSITYUNIVERSITY OF ALABAMA AT BIRMINGHAMLOMA LINDA UNIVERSITY

    Expenses $263,000 · Grants $263,000

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Leonard Erlanger

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Brian Parlato

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Julie Scroggins

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Michael Warner

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Edward Schneider

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Harold Cotler

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Ami Gopalan

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • John Wojtal Esq

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Margaret Warner

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Bonnie Schneider

    EXECUTIVE DIRECTOR

    Total calculated
    $187,200
    From this org
    $180,000
    From related orgs
    $0
    Other
    $7,200
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $180,000
    Bonus
    $0
    Other
    $0
    Deferred
    $7,200
    Nontaxable benefits
    $0
    Filer's total
    $187,200

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 2 · Substantiation required before reimbursing expenses
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
3 September 2026
IRS schema version
2025v4.2
Source object
202622519349300607

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