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Nonprofiteer
← ALS SOUTHWEST ASSOCIATION

Form 990 for tax year 2024

Filed by ALS SOUTHWEST ASSOCIATION.

Totals

Total revenue
$852,070
Total expenses
$744,303
Contributions and grants received
$638,001
Grants paid
$0
Program service revenue
$0
Investment income
$36,728
Other revenue
$177,341
Total assets, end of year
$1,124,628
Total liabilities, end of year
$16,010
Net assets or fund balances, end of year
$1,108,618
Program services expenses (Part IX)
$595,442
Management and general expenses
$128,959
Fundraising expenses
$19,902
Program service expenses (Part III)
$595,442

Program services were 80.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1e · Government grants (contributions)

    $173,965

  • 1f · All other contributions, gifts and grants

    $464,036

  • 1g · Noncash contributions included above

    $9,621

  • 3 · Investment income

    total $36,728 · unrelated business $36,728

  • 8a · Fundraising events: gross income

    $306,504

  • 8b · Fundraising events: direct expenses

    $129,163

  • 8c · Net income from fundraising events

    total $177,341 · excluded $177,341

Functional expenses

Part IX, the statement of functional expenses.

  • 7 · Other salaries and wages

    total $324,944 · program services $218,568 · management and general $89,949 · fundraising $16,427

  • 11c · Fees: accounting

    total $9,070 · management and general $9,070

  • 13 · Office expenses

    total $17,058 · program services $16,858 · fundraising $200

  • 16 · Occupancy

    total $35,930 · program services $22,165 · management and general $10,490 · fundraising $3,275

  • 22 · Depreciation, depletion and amortization

    total $21,668 · program services $21,668

  • 23 · Insurance

    total $5,790 · management and general $5,790

  • 24a · Other expenses: PROGRAM EXPENSES

    total $88,974 · program services $88,974

  • 24b · Other expenses: COMPUTER ACCESSORIES

    total $51,300 · program services $51,300

  • 24c · Other expenses: RESEARCH

    total $50,000 · program services $50,000

  • 24d · Other expenses: CLINIC SUPPORT

    total $49,000 · program services $49,000

  • 24e · All other expenses

    total $90,569 · program services $76,909 · management and general $13,660

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $966,357 · end of year $1,098,693

  • 10a · Land, buildings and equipment: cost or other basis

    $197,882

  • 10b · Land, buildings and equipment: accumulated depreciation

    $174,234

  • 10c · Land, buildings and equipment, net

    beginning of year $48,637 · end of year $23,648

  • 15 · Other assets

    beginning of year $2,287 · end of year $2,287

  • 17 · Accounts payable and accrued expenses

    beginning of year $16,430 · end of year $16,010

  • 27 · Net assets without donor restrictions

    beginning of year $953,887 · end of year $1,061,654

  • 28 · Net assets with donor restrictions

    beginning of year $46,964 · end of year $46,964

Mission and programs · 2024

Mission

THE ALS ASSOCIATION IS THE ONLY NATIONAL NON-PROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS, OR AMYOTROPHIC LATERAL SCLEROSIS (OFTEN CALLED LOU GEHRIG'S DISEASE). THE ASSOCIATION'S MISSION IS TO FIND A CURE FOR AND IMPROVE THE LIVING CONDITIONS OF THOSE SUFFERING FROM ALS.

Activities or mission (Part I)

THE ALS ASSOCIATION - ORANGE COUNTY CHAPTER IS LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.

  • THE ALS ASSOCIATION PROVIDES PATIENTS AND THEIR FAMILIES WITH CARE SERVICE PROGRAMS INCLUDING TELEPHONE CONSULTATIONS AND IN-HOME VISITS BY CARE SERVICES STAFF, PHYSICAL THERAPISTS AND SPEECH THERAPISTS. THE ASSOCIATION ALSO PURCHASES AUGMENTIVE COMMUNICATION DEVICES FOR ALS PATIENTS AND PROVIDES SUCH DEVICES VIA A COMPUTER LOAN BANK. THE ASSOCIATION HAS HELPED OVER 150 ALS PATIENTS AND RELATIVES THROUGHOUT THE YEAR. RESPITE CARE GRANTS (UP TO $500.00) ARE OFFERED TO ELIGIBLE FAMILIES, FREE TRANSPORTATION TO MD APPOINTMENTS IS OFFERED FOR PATIENTS LIVING WITH ALS. CAREGIVERS REST AND RELAXATION TREATMENT IS TO PRIMARY CARE TAKER. THE LOAN CLOSET PROVIDES A LOT OF EQUIPMENT OR WE PURCHASE NEW EQUIPMENT ITEMS IF THE EQUIPMENT IS NOT AVAILABLE.

    Expenses $595,442

  • THE ALS ASSOCIATION SEEKS TO PROMOTE AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION BY PROVIDING UP-TO-DATE INFORMATION AND EDUCATION MATERIALS TO THE ALS COMMUNITY, ALS PATIENTS AND FAMILIES, CAREGIVERS, RESEARCHERS AND MEMBERS IN THE HEALTH CARE FIELDS. OUR VISION IS TO CREATE A WORLD WITHOUT ALS. OUR MISSION IS TO LEAD THE FIGHT TO TREAT AND CURE ALS THOUGHOUT RESEARCH AND EDUCATION. THE ALS ORANGE COUNTY CHAPTER DONATES CONTRIBUTES $30,000 EVERY YEAR TO THE UCI NEUROLOGY ALS CLINIC TO HELP PROVIDE STAFF, RESEARCH OPPORTUNITIES. IN ADDITION, AN ANNUAL ALS SYMPOSIUM IS OFFERRED TO PALS AND FAMILIES TO LEARN THE LATEST INFORMATION IN RESEARCH AND COMMUNITY RESOURCES. MONTHLY SUPPORT GROUP MEETINGS ARE OFFERED TO BRING EDUCATION AND EXPERIENCE SHARING.

  • EQUIPMENT LOAN PROGRAM: FIXED DONATED EQUIPMENT, PURCHASES OF NEW EQUIPMENT AND REPAIR PART.

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Bill Collins

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    3
  • Jeanne Fendel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Sue Bassett

    TREASURER

    Total calculated
    $0
    Hours/week
    3
  • Natalie Villegas

    EXECUTIVE DIRECTOR

    Total calculated
    $147,557
    From this org
    $147,557
    From related orgs
    $0
    Other
    $0
    Hours/week
    45
  • Tom Motherway

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2
  • Mark Hershey

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2
  • Scott McGinley

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Austin Nieto

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Naomi Saucedo-Tanouye

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Namita Goyal

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • John Porello

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Rick Hoffpauer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Kelley Haghighi

    SECRETARY

    Total calculated
    $0
    Hours/week
    3
  • Alex Young

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Mary Ann Eaton

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
11 November 2025
IRS schema version
2024v5.2
Source object
202533169349308228

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