Form 990 for tax year 2023
Filed by THE NEUROMUSCULAR DISEASE FOUNDATION.
Totals
- Total revenue
- $561,017
- Total expenses
- $499,650
- Contributions and grants received
- $491,595
- Grants paid
- $100,975
- Program service revenue
- $0
- Investment income
- $39,034
- Other revenue
- $30,388
- Total assets, end of year
- $948,612
- Total liabilities, end of year
- $2,517
- Net assets or fund balances, end of year
- $946,095
- Program services expenses (Part IX)
- $392,385
- Management and general expenses
- $56,077
- Fundraising expenses
- $51,188
- Program service expenses (Part III)
- $392,385
Program services were 78.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$491,595
-
3 · Investment income
total $39,034 · excluded $39,034
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11a · Other revenue: ERC REFUNDS
total $30,388 · excluded $30,388
-
11e · Other revenue, total
$30,388
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $38,000 · program services $38,000
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $62,975 · program services $62,975
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $91,568 · program services $54,025 · management and general $916 · fundraising $36,627
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $7,330 · program services $4,325 · fundraising $3,005
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $900 · management and general $900
-
11c · Fees: accounting
total $6,370 · management and general $6,370
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $258,608 · program services $225,429 · management and general $32,505 · fundraising $674
-
12 · Advertising and promotion
total $1,245 · fundraising $1,245
-
13 · Office expenses
total $0
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $3,996 · management and general $3,996
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $950 · program services $950
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $4,033 · management and general $4,033
-
24a · Other expenses: IT Subscriptions
total $7,054 · program services $704 · management and general $2,117 · fundraising $4,233
-
24b · Other expenses: Events
total $5,144 · fundraising $5,144
-
24c · Other expenses: Quantum Creators
total $4,688 · program services $4,688
-
24d · Other expenses: Operations
total $3,143 · management and general $3,143
-
24e · All other expenses
total $3,646 · program services $1,289 · management and general $2,097 · fundraising $260
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $110,588 · end of year $28,609
-
2 · Savings and temporary cash investments
beginning of year $775,771 · end of year $920,003
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
25 · Other liabilities
beginning of year $1,713 · end of year $2,517
-
31 · Retained earnings, endowment or other funds
beginning of year $884,646 · end of year $946,095
Mission and programs · 2023
Mission
THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.
Activities or mission (Part I)
To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation may engage in any activities that are reasonably related to or in furtherance of its stated charitable purposes.
-
CLINICAL RESEARCH: Since 2006 NDF has been proactively seeking and funding clinical research projects to help understand GNE Myopathy (HIBM) and to hopefully help find treatments and cures. NDF is a world leader in funding scientists, universities and laboratories, the results of which have proven instrumental in how new studies are built.
Expenses $306,061 · Grants $38,000
-
Patient & Carrier Advocacy: NDF strives to create a two-way connection between patients and scientists in order to maximize patient understanding about the latest research and treatment options being developed; and for physicians, scientists, and pharmaceutical companies to gain a better perspective, not only about patients needs and experiences, but also about how this impacts families as well.
Expenses $66,705
-
Outreach & Education: A significant part of NDF's mission is preventing and suppressing the symptoms of GNEM in patients through screening and public education. NDF values the importance of educating physicians about this rare disease. We focus on educating the public about carrier screening aids, particularly for those in populations with higher carrier rates.
Expenses $19,619
As filed on the 2023 return.
Listed in Part VII
-
Navid Rachman
Director
- Total calculated
- $0
- Hours/week
- 1
-
Suma Rao-Gupta
Director
- Total calculated
- $0
- Hours/week
- 1
-
Tara Voogel
Secretary
- Total calculated
- $0
- Hours/week
- 1
-
Nasser David Haverim
Treasurer
- Total calculated
- $0
- Hours/week
- 1
-
Isabella Tyszler
Director
- Total calculated
- $0
- Hours/week
- 1
-
David Dahl
Director
- Total calculated
- $0
- Hours/week
- 1
-
Amy Curran
Director
- Total calculated
- $0
- Hours/week
- 1
-
Tahseen Mozaffar
Director
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$10,000
Research
-
$10,000
Research Genetic Disorders
-
$10,000
Research
-
$8,000
Research Genetic Disorders
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 13 November 2024
- IRS schema version
- 2023v5.1
- Source object
- 202413199349314061
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