Skip to content
Nonprofiteer
← PKD FOUNDATION

Form 990 for tax year 2022

Filed by PKD FOUNDATION.

Totals

Total revenue
$10,283,998
Total expenses
$9,075,142
Contributions and grants received
$9,493,464
Grants paid
$2,557,035
Program service revenue
$0
Investment income
$824,102
Other revenue
-$33,568
Total assets, end of year
$33,103,416
Total liabilities, end of year
$662,475
Net assets or fund balances, end of year
$32,440,941
Program services expenses (Part IX)
$6,763,456
Management and general expenses
$1,322,148
Fundraising expenses
$989,538
Program service expenses (Part III)
$6,763,456

Program services were 74.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $1,794,970

  • 1f · All other contributions, gifts and grants

    $7,698,494

  • 1g · Noncash contributions included above

    $473,451

  • 3 · Investment income

    total $770,004 · excluded $770,004

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0

  • 7a · Gross sales of assets other than inventory

    securities $8,987,217

  • 7b · Less cost or other basis and sales expenses

    securities $8,933,119

  • 7c · Gain or loss

    securities $54,098

  • 7d · Net gain or loss

    total $54,098 · excluded $54,098

  • 8a · Fundraising events: gross income

    $98,536

  • 8a · Fundraising events: contributions included on line 1c

    $1,794,970

  • 8b · Fundraising events: direct expenses

    $132,108

  • 8c · Net income from fundraising events

    total -$33,572 · excluded -$33,572

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0

  • 11a · Other revenue: Miscellaneous Revenue

    total $4 · excluded $4

  • 11e · Other revenue, total

    $4

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,286,486 · program services $2,286,486

  • 2 · Grants to domestic individuals

    total $10,549 · program services $10,549

  • 3 · Grants to foreign organizations and individuals

    total $260,000 · program services $260,000

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $879,019 · program services $242,766 · management and general $267,756 · fundraising $368,497

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $1,856,248 · program services $1,229,355 · management and general $481,160 · fundraising $145,733

  • 8 · Pension plan contributions

    total $245,008 · program services $131,863 · management and general $67,083 · fundraising $46,062

  • 9 · Other employee benefits

    total $476,975 · program services $256,708 · management and general $130,596 · fundraising $89,671

  • 10 · Payroll taxes

    total $194,355 · program services $104,602 · management and general $53,214 · fundraising $36,539

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $58,547 · program services $42,511 · management and general $8,700 · fundraising $7,336

  • 11c · Fees: accounting

    total $50,149 · management and general $50,149

  • 11d · Fees: lobbying

    total $197,348 · program services $197,348

  • 11e · Fees: professional fundraising services

    total $67,000 · fundraising $67,000

  • 11f · Fees: investment management

    total $88,432 · management and general $88,432

  • 11g · Fees: other

    total $316,990 · program services $244,368 · management and general $31,667 · fundraising $40,955

  • 12 · Advertising and promotion

    total $338,501 · program services $318,661 · management and general $19,840

  • 13 · Office expenses

    total $80,982 · program services $67,345 · management and general $2,559 · fundraising $11,078

  • 14 · Information technology

    total $471,979 · program services $354,463 · management and general $18,195 · fundraising $99,321

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $163,181 · program services $123,468 · management and general $20,990 · fundraising $18,723

  • 17 · Travel

    total $249,697 · program services $170,350 · management and general $49,797 · fundraising $29,550

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $531,269 · program services $531,269

  • 20 · Interest

    total $2,178 · management and general $2,178

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $161,730 · program services $148,468 · management and general $7,375 · fundraising $5,887

  • 23 · Insurance

    total $27,079 · program services $18,287 · management and general $6,019 · fundraising $2,773

  • 24a · Other expenses: DUES & SUBSCRIPTIONS

    total $22,934 · program services $6,412 · management and general $6,010 · fundraising $10,512

  • 24b · Other expenses: BANK & CREDIT CARD FEES

    total $9,847 · program services $2,753 · management and general $2,581 · fundraising $4,513

  • 24c · Other expenses: Miscellaneous

    total $28,659 · program services $15,424 · management and general $7,847 · fundraising $5,388

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $920,093 · end of year $450,811

  • 2 · Savings and temporary cash investments

    beginning of year $7,462,786 · end of year $6,353,737

  • 3 · Pledges and grants receivable

    beginning of year $5,179,319 · end of year $5,192,119

  • 4 · Accounts receivable

    beginning of year $146,328 · end of year $169,516

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $275,895 · end of year $317,235

  • 10a · Land, buildings and equipment: cost or other basis

    $1,108,515

  • 10b · Land, buildings and equipment: accumulated depreciation

    $735,038

  • 10c · Land, buildings and equipment, net

    beginning of year $310,207 · end of year $373,477

  • 11 · Investments: publicly traded securities

    beginning of year $16,803,248 · end of year $19,152,360

  • 12 · Investments: other securities

    beginning of year $0 · end of year $870,695

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $15,533 · end of year $223,466

  • 17 · Accounts payable and accrued expenses

    beginning of year $464,465 · end of year $387,634

  • 18 · Grants payable

    beginning of year $0 · end of year $0

  • 19 · Deferred revenue

    beginning of year $1,407 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $154,752 · end of year $274,841

  • 27 · Net assets without donor restrictions

    beginning of year $14,083,549 · end of year $16,800,207

  • 28 · Net assets with donor restrictions

    beginning of year $16,409,236 · end of year $15,640,734

Mission and programs · 2022

Mission

WE GIVE HOPE. WE FUND RESEARCH, ADVOCATE FOR PATIENTS, AND BUILD A COMMUNITY FOR ALL IMPACTED BY PKD.

Activities or mission (Part I)

PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD.

  • RESEARCH - SEE SCHEDULE O

    Expenses $3,536,263 · Grants $2,557,035

  • AWARENESS AND ADVOCACY - SEE SCHEDULE O

    Expenses $1,275,785

  • EDUCATION AND SUPPORT - SEE SCHEDULE O

    Expenses $1,951,408

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Andrew Betts

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $361,179
    From this org
    $301,309
    From related orgs
    $0
    Other
    $59,870
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $187,310
    Bonus
    $25,500
    Other
    $88,499
    Deferred
    $36,157
    Nontaxable benefits
    $23,713
    Filer's total
    $361,179

  • Christopher Rusconi

    CHIEF RESEARCH OFFICER

    Total calculated
    $268,830
    From this org
    $214,270
    From related orgs
    $0
    Other
    $54,560
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $194,187
    Bonus
    $19,380
    Other
    $703
    Deferred
    $25,712
    Nontaxable benefits
    $28,848
    Filer's total
    $268,830

  • Carmen Gleason

    CHIEF OPERATIONS OFFICER

    Total calculated
    $218,388
    From this org
    $169,232
    From related orgs
    $0
    Other
    $49,156
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $153,106
    Bonus
    $16,000
    Other
    $126
    Deferred
    $20,308
    Nontaxable benefits
    $28,848
    Filer's total
    $218,388

  • Jonathan Rich

    CHIEF DEVELOPMENT OFFICER

    Total calculated
    $170,938
    From this org
    $140,044
    From related orgs
    $0
    Other
    $30,894
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $139,625
    Bonus
    $0
    Other
    $419
    Deferred
    $16,805
    Nontaxable benefits
    $14,089
    Filer's total
    $170,938

  • Krystn Kuckelman

    VP OF COMMUNITY DEVELOPMENT

    Total calculated
    $140,851
    From this org
    $112,003
    From related orgs
    $0
    Other
    $28,848
    Hours/week
    40

  • Shanna Eiklenborg

    SENIOR DIR.-EDUCATION & EVENTS

    Total calculated
    $116,962
    From this org
    $106,967
    From related orgs
    $0
    Other
    $9,995
    Hours/week
    40

  • Susan Lee Deremer

    DIRECTOR OF LEADERSHIP GIFTS

    Total calculated
    $114,342
    From this org
    $104,397
    From related orgs
    $0
    Other
    $9,945
    Hours/week
    40

  • Michael Mrug

    DIRECTOR

    Total calculated
    $77,975
    From this org
    $77,975
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

    Schedule J breakdown matched by us

    Base
    $77,975
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $77,975

  • Rob Roth

    DIRECTOR/CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Navin Manglani

    DIRECTOR/VICE CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Chris Wess

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Amy Omenn

    DIRECTOR/SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Katherine Dell

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Stu Caplan

    DIRECTOR/TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Paula Hutchinson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Julie Marshall

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Bruce Winn

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Amanda Yen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Meyeon Park

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Susan Bushnell

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $0
    Hours/week
    40

  • Craig Robertson

    CHIEF GROWTH OFFICER

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 4a · Severance or change-of-control payment

Answered no

  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

SCHEDULE J, PART I, LINE 4A
THE FOLLOWING SEVERANCE PAYMENTS WERE MADE DURING THE YEAR: ANDREW BETTS $ 88,333
SCHEDULE J PART II & FORM 990, PART VII, SECTION A, LINE 5
THE COMPENSATION REPORTED FOR MICHAL MRUG IS PAID BY THE UNIVERSITY OF ALABAMA, AN UNRELATED ORGANIZATION. THE AMOUNT REPORTED IS THE AMOUNT PAID TO THE UNIVERSITY DURING CALENDAR YEAR 2022 TO COVER A PERCENTAGE OF HIS COMPENSATION.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
15 May 2024
IRS schema version
2022v5.0
Source object
202421359349303302

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.