Skip to content
Nonprofiteer
← NEPHCURE KIDNEY INTERNATIONAL

Form 990 for tax year 2023

Filed by NEPHCURE KIDNEY INTERNATIONAL.

Totals

Total revenue
$4,295,090
Total expenses
$4,840,922
Contributions and grants received
$4,200,803
Grants paid
$200,000
Program service revenue
$0
Investment income
$0
Other revenue
$94,287
Total assets, end of year
$3,864,219
Total liabilities, end of year
$698,442
Net assets or fund balances, end of year
$3,165,777
Program services expenses (Part IX)
$3,801,046
Management and general expenses
$523,509
Fundraising expenses
$516,367
Program service expenses (Part III)
$3,801,046

Program services were 78.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $1,619,863

  • 1f · All other contributions, gifts and grants

    $2,580,940

  • 1g · Noncash contributions included above

    $10,551

  • 8a · Fundraising events: gross income

    $761,584

  • 8a · Fundraising events: contributions included on line 1c

    $1,619,863

  • 8b · Fundraising events: direct expenses

    $761,584

  • 8c · Net income from fundraising events

    total $0

  • 11a · Other revenue: MISCELLANEOUS REVENUE

    total $94,287 · excluded $94,287

  • 11e · Other revenue, total

    $94,287

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $200,000 · program services $200,000

  • 5 · Compensation of officers, directors and key employees

    total $275,000 · program services $231,000 · management and general $2,750 · fundraising $41,250

  • 7 · Other salaries and wages

    total $1,897,246 · program services $1,593,687 · management and general $18,972 · fundraising $284,587

  • 11c · Fees: accounting

    total $109,843 · program services $60,414 · management and general $41,740 · fundraising $7,689

  • 11g · Fees: other

    total $713,569 · program services $392,463 · management and general $271,157 · fundraising $49,949

  • 13 · Office expenses

    total $274,619 · program services $115,549 · management and general $113,542 · fundraising $45,528

  • 14 · Information technology

    total $330,328 · program services $280,779 · management and general $16,516 · fundraising $33,033

  • 16 · Occupancy

    total $146,536 · program services $120,160 · management and general $4,396 · fundraising $21,980

  • 19 · Conferences, conventions and meetings

    total $270,366 · program services $270,366

  • 24a · Other expenses: HEALTH EQUITY

    total $279,677 · program services $279,677

  • 24b · Other expenses: RESEARCH PAYMENTS

    total $128,922 · program services $128,922

  • 24c · Other expenses: GATEWAY PROGRAM START U

    total $94,943 · program services $80,702 · management and general $4,747 · fundraising $9,494

  • 24d · Other expenses: PATIENT EDUCATION

    total $20,496 · program services $20,496

  • 24e · All other expenses

    total $99,377 · program services $26,831 · management and general $49,689 · fundraising $22,857

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $3,711,799 · end of year $3,372,669

  • 3 · Pledges and grants receivable

    beginning of year $186,992 · end of year $67,431

  • 9 · Prepaid expenses and deferred charges

    beginning of year $89,734 · end of year $90,552

  • 10a · Land, buildings and equipment: cost or other basis

    $60,676

  • 10b · Land, buildings and equipment: accumulated depreciation

    $60,676

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $389,161 · end of year $333,567

  • 15 · Other assets

    beginning of year $20,000

  • 17 · Accounts payable and accrued expenses

    beginning of year $457,157 · end of year $480,274

  • 25 · Other liabilities

    beginning of year $346,567 · end of year $218,168

  • 27 · Net assets without donor restrictions

    beginning of year $3,508,108 · end of year $3,164,147

  • 28 · Net assets with donor restrictions

    beginning of year $85,854 · end of year $1,630

Mission and programs · 2023

Mission

NEPHCURE KIDNEY INTERNATIONAL IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORTING RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE OF FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME. THE ORGANIZATION IS COMMITTED TO IMPROVING TREATMENT AND FINDING A CURE FOR THIS DISEASE.

  • RESEARCH - NEPHCURE KIDNEY INTERNATIONAL IS COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL, AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE OF THIS RESEARCH IS TO DETERMINE CAUSES OF KIDNEY DISEASE, FSGS & NEPHROTIC SYNDROME THAT COULD LEAD TO EFFECTIVE TREATMENTSCLINICAL TRIAL SUPPORT - NEPHCURE KIDNEY INTERNATIONAL SUPPORTSAND FACILITATES CLINICAL RESEARCH BY ACTIVELY SUPPORTING PATIENT RECRUITMENT TO ADDRESS THE GROWING DEMAND OF CLINICAL TRIALS.

    Expenses $1,744,628 · Grants $200,000

  • HEALTH AND EDUCATION - NEPHCURE KIDNEY INTERNATIONAL FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENTS/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. NEPHCURE KIDNEY INTERNATIONAL ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILIES.

    Expenses $2,056,418

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • IRVING SMOKLER

    BOARD CHAIRMAN

    Total calculated
    $0
    Hours/week
    5

  • RON COHEN

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • ANDREW SILVERMAN

    TREASURER

    Total calculated
    $0
    Hours/week
    3

  • MICHAEL LEVINE

    PRESIDENT

    Total calculated
    $0
    Hours/week
    10

  • CAROL SMOKLER

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • ELAINE KAMIL

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • DAVID KERSHAW

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • WILLIAM SMOYER

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • CHRIS WHITNEY

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • CHARLES DAVIS III

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • CHRISTOPHER WINDISCH

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JENNIFER GEISSER

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JIM DUQUETTE

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JOSHUA ROY

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • KEVIN MOTT

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • KIRK CAMPBELL

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • LAUREL DAMASHEK

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • MANU VARMA

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • MARK WINWARD

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • MARTIN ZIMMERMAN

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • REBECCA OAG

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SARRETTA MCDONOUGH

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • STEPHEN HOLLOMON

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • TROY JONES

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SCOTT GOLDSTEIN

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • DANIEL SIMON

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • TYLER WELLMAN

    MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JOSH TARNOFF

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $275,000
    From this org
    $275,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $275,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $275,000

  • REBECCA COOK

    DIRECTOR DEVELOPMENT

    Total calculated
    $115,150
    From this org
    $115,150
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • LAUREN EVA

    VP PROFESSIONAL ENGAGEMENT

    Total calculated
    $166,519
    From this org
    $166,519
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

    Schedule J breakdown matched by us

    Base
    $166,519
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $166,519

  • KELLY HELM

    EXECUTIVE DIRECTOR, PATIENT ENGAGEMENT

    Total calculated
    $126,868
    From this org
    $126,868
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • JESSIC MILTEN

    EXECUTIVE DIRECTOR, NATIONAL DEVELOPMENT

    Total calculated
    $150,000
    From this org
    $150,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
7 November 2024
IRS schema version
2023v5.1
Source object
202423129349303377

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.