Form 990 for tax year 2024

Totals

Total revenue

$352,401

Total expenses

$502,308

Contributions and grants received

$360,740

Grants paid

$35,119

Program service revenue

$0

Investment income

$0

Other revenue

-$8,339

Total assets, end of year

$212,778

Total liabilities, end of year

$30,539

Net assets or fund balances, end of year

$182,239

Program services expenses (Part IX)

$335,003

Management and general expenses

$107,849

Fundraising expenses

$59,456

Program service expenses (Part III)

$335,003

Program services were 66.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• In 2024, PFIC Network provided program services in the areas of peer support, education, outreach, advocacy and research to further our mission of improving the lives of patients and families affected by PFIC worldwide. We also continued to offer Zoom support groups, 1:1 coaching sessions, financial assistance and care packages to PFIC patients and families in need. In April, we hosted our largest PFIC Family and Scientific Conference yet, with over 130 people attending in person and 60+ attending virtually. The conference brings PFIC researchers, clinicians and industry stakeholders together with PFIC patients and families to discuss unmet needs of the patient community and to provide updates about ongoing PFIC research. This year, we hosted the conference in partnership with Cincinnati Childrens Hospital and Medical Center, allowing us to offer continuing education credits for the first time and to broaden our reach to a wider network of clinicians and researchers. One of our biggest research initiatives for the year was the completion of year one of Project IMPACT (Identifying research targets by Merging Patient And Clinician Treatment information.) The goal of the project is to prepare the PFIC community for patient-centered outcomes research. This two year project runs from July 2023-July 2025 and is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (EASO-30455). Our patient registry is now fully translated into Italian, Spanish and Polish and we were able to share initial data collected at a poster presentation at the North American Society For Pediatric Gastroenterology, Hepatology & Nutrition Annual Meeting. We also awarded our second Small Research Grant, a $30,000 funding opportunity for PFIC research.

  Expenses $335,003 · Grants $35,119

As filed on the 2024 return.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2024

Filed

10 July 2025

IRS schema version

2024v5.1

Source object

202511919349301801

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.