Form 990 for tax year 2023

Totals

Total revenue

$10,841,004

Total expenses

$11,534,351

Contributions and grants received

$525,959

Grants paid

$1,281,542

Program service revenue

$9,748,979

Investment income

$565,525

Other revenue

$541

Total assets, end of year

$17,407,019

Total liabilities, end of year

$4,708,685

Net assets or fund balances, end of year

$12,698,334

Program services expenses (Part IX)

$10,030,709

Management and general expenses

$1,313,501

Fundraising expenses

$190,141

Program service expenses (Part III)

$10,030,709

Program services were 87.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.

  Expenses $6,772,261 · Revenue $5,731,677

• ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.

  Expenses $528,432 · Revenue $351,500

• GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.

  Expenses $1,371,719 · Grants $1,281,542 · Revenue $1,198,421

• OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.

  Expenses $1,358,297

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• BOSTON CHILDREN'S HOSPITAL

  $374,475

  AF CAREER DEVELOPMENT GRANT

• SEATTLE CHILDREN'S HOSPITAL FOUNDATION

  $374,159

  DATA ANALYSIS AND AF CAREER DEVELOPMENT GRANT

• WAKE FOREST UNIVERSITY HEALTH SCIENCES

  $150,000

  AF IMPLEMENTATION SCIENCE GRANT

• HACKENSACK UMC RESEARCH

  $100,000

  AF LARGE GRANT

• CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER

  $55,100

  PUBLICATION, LADA, AND AF FELLOWS GRANT

• RUTGERS THE STATE UNIVERSITY OF NEW JERSEY

  $50,000

  SMALL GRANT

• COHEN CHILDREN'S MEDICAL CENTER OF NEW YORK-FEINSTEIN

  $25,000

  AF SMALL GRANT

• THE CHILDREN'S HOSPITAL OF PHILADELPHIA

  $25,000

  AF FELLOWS GRANT

• MONTEFIORE MEDICAL CENTER

  $24,999

  AF FELLOWS GRANT

• INDIANA UNIVERSITY

  $14,580

  LADA GRANT

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type

form_990

Tax year

2023

Filed

15 November 2024

IRS schema version

2023v5.1

Source object

202413209349306786

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.