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Nonprofiteer
← LYMPHATIC MALFORMATION ALLIANCE INC

Form 990-EZ for tax year 2022

Filed by LYMPHATIC MALFORMATION ALLIANCE INC.

Totals

Total revenue
$121,403
Total expenses
$280,940
Contributions and grants received
$118,418
Grants paid
$47,072
Program service revenue
$0
Membership dues (line 3)
$0
Investment income (line 4)
$2,845
Gain or loss on sale of assets (line 5c)
$0
Gaming and fundraising events, net (line 6d)
$0
Gross profit on inventory sales (line 7c)
$0
Other revenue (line 8)
$140
Total assets, end of year
$421,865
Total liabilities, end of year
$2,948
Net assets or fund balances, end of year
$418,917
Program service expenses (Part III)
$119,988

Program services were 42.7% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.

Mission and programs · 2022

Primary exempt purpose

WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM.

  • OUR OUTREACH PROGRAM INCREASES THE AWARENESS OF CLA'S THROUGH OUR WEBSITE AND SOCIAL MEDIA INCLUDING EVENTS SUCH AS AWARENESS DAY AND RARE DISEASE DAY. THIS ALSO SUPPORTED THE DISTRIBUTION OF LEARNING VIDEOS FROM OUR CONFERENCE FOR THOSE INDIVIDUALS THAT COULD NOT ATTEND INCLUDING A SPECIAL INTRODUCTION TALKS ABOUT CLA'S.

    Expenses $50,673 · Grants $3,972

  • OUR RESEARCH PROGRAM INCLUDES $35,000 TO FUND RESEARCH GRANTS FROM THE UNIVERSITY OF PENNSYLANIA/ THE MILLION DOLLARY BIKE RIDE TO STUDY SUPPORT COMPLEX LYMPHATIC ANOMLIES ($35,000). TWO AWARD RECEIPTIENTS WERE SELECTED. WE ALSO SUPPORT TWO YOUNG INVESTIGATOR AWARDS TO RESEARCH PROJECTS SPECIFIC TO CLA ($25,000).

    Expenses $49,371 · Grants $43,000

  • OUR PATIENT SUPPORT SERVICES INCLUDED THE MANAGEMENT OF OUR PATIENT REGISTRY TO SUPPORT RESEARCH NEEDS AND TRACK VITAL INFORMATION ABOUT CLAS. THE PROGRAMS ALSO SUPPORTS THE MANAGEMENT OF SEVERAL SUPPORT GROUPS.

    Expenses $19,944 · Grants $100

As filed on the 2022 return.

Listed in Part IV

  • Scott Weisner

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • Scott Goldfarb

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Mitch Maersch

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Tiffany Ferry

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Louise Murgia

    DIRECTOR OF OPERATIONS

    Total calculated
    $47,216
    Compensation
    $47,216
    Benefit plans
    $0
    Expense account
    $0
    Hours/week
    40

  • Michael Kelly

    EXECUTIVE DIRECTOR

    Total calculated
    $57,038
    Compensation
    $57,038
    Benefit plans
    $0
    Expense account
    $0
    Hours/week
    20

Compensation is as filed in Part IV of the Form 990-EZ: compensation, contributions to benefit plans, expense account, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990_ez
Tax year
2022
Filed
27 October 2023
IRS schema version
2022v5.0
Source object
202343059349200514

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