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← LUPUS FOUNDATION OF AMERICA INC

Form 990 for tax year 2024

Filed by LUPUS FOUNDATION OF AMERICA INC.

Totals

Total revenue
$14,997,967
Total expenses
$16,743,518
Contributions and grants received
$13,167,396
Grants paid
$423,638
Program service revenue
$1,612,180
Investment income
$194,988
Other revenue
$23,403
Total assets, end of year
$11,374,155
Total liabilities, end of year
$6,641,567
Net assets or fund balances, end of year
$4,732,588
Program services expenses (Part IX)
$12,526,704
Management and general expenses
$1,448,996
Fundraising expenses
$2,767,818
Program service expenses (Part III)
$12,526,704

Program services were 74.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $67,423

  • 1c · Fundraising events

    $75,265

  • 1d · Related organizations

    $600,000

  • 1e · Government grants (contributions)

    $2,417,306

  • 1f · All other contributions, gifts and grants

    $10,007,402

  • 1g · Noncash contributions included above

    $34,189

  • 2a · Program service revenue: PROG. EVENTS/OTHER

    total $1,185,810 · related or exempt $1,185,810

  • 2b · Program service revenue: PUBLICATIONS

    total $334,244 · related or exempt $1,744 · unrelated business $332,500

  • 2c · Program service revenue: MEMBERSHIP DUES

    total $92,126 · related or exempt $92,126

  • 3 · Investment income

    total $185,804 · excluded $185,804

  • 5 · Royalties

    total $4,066 · excluded $4,066

  • 7a · Gross sales of assets other than inventory

    securities $29,598

  • 7b · Less cost or other basis and sales expenses

    securities $20,414

  • 7c · Gain or loss

    securities $9,184

  • 7d · Net gain or loss

    total $9,184 · excluded $9,184

  • 8a · Fundraising events: gross income

    $59,189

  • 8a · Fundraising events: contributions included on line 1c

    $75,265

  • 8b · Fundraising events: direct expenses

    $64,837

  • 8c · Net income from fundraising events

    total -$5,648 · excluded -$5,648

  • 11a · Other revenue: REFUNDS

    total $24,985 · excluded $24,985

  • 11e · Other revenue, total

    $24,985

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $404,638 · program services $404,638

  • 2 · Grants to domestic individuals

    total $15,000 · program services $15,000

  • 3 · Grants to foreign organizations and individuals

    total $4,000 · program services $4,000

  • 5 · Compensation of officers, directors and key employees

    total $2,196,521 · program services $1,790,380 · management and general $219,009 · fundraising $187,132

  • 7 · Other salaries and wages

    total $5,330,061 · program services $4,057,951 · management and general $314,827 · fundraising $957,283

  • 8 · Pension plan contributions

    total $252,315 · program services $182,549 · management and general $23,695 · fundraising $46,071

  • 9 · Other employee benefits

    total $178,947 · program services $92,012 · management and general $38,216 · fundraising $48,719

  • 10 · Payroll taxes

    total $1,011,008 · program services $724,392 · management and general $139,597 · fundraising $147,019

  • 11b · Fees: legal

    total $88,104 · program services $27,263 · management and general $7,619 · fundraising $53,222

  • 11c · Fees: accounting

    total $96,589 · program services $6,225 · management and general $90,364

  • 11e · Fees: professional fundraising services

    total $123,500 · fundraising $123,500

  • 11g · Fees: other

    total $2,271,760 · program services $1,851,992 · management and general $297,533 · fundraising $122,235

  • 12 · Advertising and promotion

    total $407,919 · program services $407,919

  • 13 · Office expenses

    total $387,797 · program services $280,582 · management and general $59,197 · fundraising $48,018

  • 14 · Information technology

    total $838,339 · program services $388,870 · management and general $60,691 · fundraising $388,778

  • 16 · Occupancy

    total $680,017 · program services $548,419 · management and general $45,090 · fundraising $86,508

  • 17 · Travel

    total $393,531 · program services $250,435 · management and general $99,570 · fundraising $43,526

  • 19 · Conferences, conventions and meetings

    total $1,120,371 · program services $931,556 · management and general $26,883 · fundraising $161,932

  • 21 · Payments to affiliates

    total $220 · fundraising $220

  • 22 · Depreciation, depletion and amortization

    total $140,682 · program services $111,125 · management and general $10,157 · fundraising $19,400

  • 23 · Insurance

    total $70,219 · program services $55,466 · management and general $5,070 · fundraising $9,683

  • 24a · Other expenses: POSTAGE & MAILHOUSE

    total $431,824 · program services $122,687 · management and general $11,088 · fundraising $298,049

  • 24b · Other expenses: PRINTING & PUBLICATIONS

    total $300,156 · program services $273,243 · management and general $390 · fundraising $26,523

  • 26 · Joint costs (an allocation of the lines above)

    total $1,921,887 · program services $1,242,002 · management and general $0 · fundraising $679,885

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,162,870 · end of year $1,823,587

  • 2 · Savings and temporary cash investments

    beginning of year $5,741,843 · end of year $4,536,733

  • 3 · Pledges and grants receivable

    beginning of year $1,647,037 · end of year $1,531,019

  • 4 · Accounts receivable

    beginning of year $166,266 · end of year $121,622

  • 9 · Prepaid expenses and deferred charges

    beginning of year $360,663 · end of year $367,263

  • 10a · Land, buildings and equipment: cost or other basis

    $2,054,945

  • 10b · Land, buildings and equipment: accumulated depreciation

    $1,687,857

  • 10c · Land, buildings and equipment, net

    beginning of year $496,770 · end of year $367,088

  • 12 · Investments: other securities

    beginning of year $377,869 · end of year $382,658

  • 15 · Other assets

    beginning of year $2,700,319 · end of year $2,244,185

  • 17 · Accounts payable and accrued expenses

    beginning of year $1,662,755 · end of year $1,962,992

  • 18 · Grants payable

    beginning of year $1,720,656 · end of year $1,460,005

  • 19 · Deferred revenue

    beginning of year $358,628 · end of year $351,049

  • 25 · Other liabilities

    beginning of year $3,480,466 · end of year $2,867,521

  • 27 · Net assets without donor restrictions

    beginning of year $3,229,878 · end of year $1,357,064

  • 28 · Net assets with donor restrictions

    beginning of year $3,201,254 · end of year $3,375,524

Mission and programs · 2024

Mission

LUPUS FOUNDATION OF AMERICA, INC. (THE FOUNDATION) IS DEDICATED TO IMPROVING THE QUALITY OF LIFE FOR ALL PEOPLE AFFECTED BY LUPUS THROUGH PROGRAMS OF RESEARCH, EDUCATION, SUPPORT, AND ADVOCACY.

Activities or mission (Part I)

IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH LUPUS THROUGH RESEARCH, EDUCATION, SUPPORT AND ADVOCACY.

  • PUBLIC INFORMATION AND EDUCATION:THE FOUNDATION STRENGTHENED ITS ROLE AS THE LEADING SOURCE OF LUPUS INFORMATION. THE LUPUS.ORG WEBSITE REACHED MORE THAN 9.8 MILLION ANNUAL VIEWS, SUPPORTED BY HOMEPAGE OPTIMIZATION IMPROVEMENTS AND THE INTEGRATION OF THE DIGITAL KNOW LUPUS QUIZ TO ENHANCE ENGAGEMENT DURING LUPUS AWARENESS MONTH (LAM) AND YEAR-ROUND. SOCIAL MEDIA FOLLOWING GREW TO MORE THAN 450,000 COMBINED FOLLOWERS ACROSS PLATFORMS, SUPPORTED BY TARGETED CAMPAIGNS, INCLUDING "SPOTLIGHT SERIES" INITIATIVES HIGHLIGHTING DISPARITIES AND THE UNIQUE IMPACT OF LUPUS ACROSS POPULATIONS.LUPUS AWARENESS MONTH CONTINUED UNDER THE THEME MAKE LUPUS VISIBLE, FEATURING EDUCATIONAL RESOURCES, PERSONAL STORIES, VIDEOS, ADVOCACY EVENTS, AND PROMOTIONAL EFFORTS TIED TO MAJOR FUNDRAISING INITIATIVES AND THE NATIONAL LUPUS ADVOCACY SUMMIT. AN OMNIBUS AWARENESS SURVEY SHOWED 53% OF U.S. ADULTS STILL REPORTED LIMITED OR NO KNOWLEDGE OF THE DISEASE, UNDERSCORING THE NEED FOR CONTINUED EDUCATION.GLOBALLY, THE FOUNDATION LED WORLD LUPUS DAY ON MAY 10 THROUGH ITS WORLD LUPUS FEDERATION (WLF), EXECUTING AN INTERNATIONAL MAKE LUPUS VISIBLE CAMPAIGN. IN 2025, THE FEDERATION MARKED ITS 10TH ANNIVERSARY WITH A COMPREHENSIVE COMMUNICATIONS CAMPAIGN, NEW LOGO, AND REDESIGNED WEBSITE TO CELEBRATE A DECADE OF IMPACT. THE WORLD LUPUS FEDERATION, NOW COMPRISING APPROXIMATELY 250 ORGANIZATIONS ACROSS 75 COUNTRIES, COMPLETED KEY INITIATIVES IDENTIFIED IN ITS NEEDS ASSESSMENT, INCLUDING DEVELOPMENT OF A SPANISH-LANGUAGE "UNDERSTANDING LUPUS" FACT SHEET FOR INTERNATIONAL PARTNERS AND A GLOBAL WEBINAR ON CREATING PEER-LED SUPPORT GROUPS.

    Expenses $4,974,865 · Grants $5,000 · Revenue $102,775

  • PATIENT EDUCATION AND SUPPORT:THE FOUNDATION'S NATIONAL RESOURCE CENTER ON LUPUS (NRCL) REMAINED CENTRAL TO PATIENT EDUCATION, REACHING NEARLY 2 MILLION USERS AND GENERATING 3.3 MILLION SESSIONS IN 2025 WITH A 65% ENGAGEMENT RATE. THE FOUNDATION UPDATED OR CREATED NEW 24 MEDICALLY-REVIEWED ENGLISH RESOURCES AND 20 SPANISH RESOURCES, WITH 88% OF MATERIALS NOW AVAILABLE BILINGUALLY. NEW BLOG CONTENT ADDRESSED MENTAL HEALTH, LUPUS NEPHRITIS, AND LIFESTYLE STRATEGIES.THE FOUNDATION HOSTED 29 LUPUS & YOU EMPOWERMENT CONFERENCES, ATTRACTING MORE THAN 1,500 IN-PERSON ATTENDEES, 41% OF WHOM WERE NEW TO THE ORGANIZATION. CONFERENCES PROVIDED EDUCATION, SUPPORT, AND OPPORTUNITIES FOR RESEARCH ENGAGEMENT. ADDITIONALLY, THE LUPUS & YOU: ANSWERS, ADVOCACY, ACTION WEBINAR SERIES REACHED NEARLY 7,900 INDIVIDUALS THROUGH LIVE AND RECORDED SESSIONS. SELF-MANAGEMENT EDUCATION CONTINUED TO GROW THROUGH THE SELF (STRATEGIES TO EMBRACE LIVING WITH LUPUS FEARLESSLY) PROGRAM, NOW DELIVERED VIA MOBILE APP. IN 2025, MORE THAN 5,200 INDIVIDUALS REGISTERED FOR THE APP, WITH 1,200 MONTHLY ACTIVE USERS. COMPLEMENTARY TOOLS INCLUDED A PEER SELF-MANAGEMENT PILOT PROGRAM, PRINTED GUIDES, AND A HEALTH CARE PROFESSIONAL REFERRAL TOOLKIT.THE TAKE CHARGE/TOME CONTROL EMAIL SERIES GAINED 842 NEW SUBSCRIBERS IN FY2025, REACHING MORE THAN 17,000 SUBSCRIBERS OVERALL, WITH ABOUT 20% SELECTING SPANISH-LANGUAGE CONTENT. THE EXPERT SERIES PODCAST ADDED NEW EPISODES ADDRESSING FIBROMYALGIA, MENOPAUSE, AND LUPUS IN MEN.COMMUNITY-LEVEL OUTREACH INCLUDED PARTNERSHIPS WITH 20 LIBRARIES, LOCAL EVENTS REACHING NEARLY 2,000 ATTENDEES, AND THE BE FIERCE. TAKE CONTROL. AWARENESS CAMPAIGN, WHICH GENERATED 16.9 MILLION AD VIEWS AND MORE THAN 56,000 WEBSITE VISITS. HEALTH EDUCATION SPECIALISTS RESPONDED TO 2,887 INQUIRIES FROM INDIVIDUALS ACROSS 46 STATES, THREE U.S. TERRITORIES, AND MORE THAN 65 COUNTRIES. TRANSLATION SERVICES EXPANDED CULTURALLY APPROPRIATE MATERIALS AND PROGRAM ACCESS.THE FOUNDATION UPDATED 42 STATE AND LOCAL 211 SYSTEMS WITH LUPUS RESOURCES AND LAUNCHED A CONTINUING NURSING EDUCATION COURSE ACCESSED BY MORE THAN 100 NURSES SHORTLY AFTER RELEASE. THE COMMUNITY HEALTH WORKER RESOURCE HUB EXPANDED WITH UPDATED MODULES AND A SPANISH-LANGUAGE PROMOTORES DE SALUD HUB. OUTREACH EFFORTS REACHED HUNDREDS OF FRONTLINE HEALTH WORKERS, AND SPECIALIZED WORKSHOPS SUPPORTED CULTURALLY RELEVANT EDUCATION IN NATIVE AMERICAN COMMUNITIES.ADDITIONAL PROFESSIONAL ENGAGEMENT INCLUDED DEVELOPMENT OF PROVIDER REFERRAL TOOLKITS, UPDATED CLINICIAN-FOCUSED CONTENT, EDUCATIONAL VIDEOS, CONFERENCE PRESENTATIONS, AND COLLABORATIVE PARTNERSHIPS TO STRENGTHEN REFERRAL PATHWAYS AND IMPROVE LUPUS CARE DELIVERY.

    Expenses $4,474,306

  • PROFESSIONAL RELATIONS AND EDUCATION:THE FOUNDATION'S ADVOCACY EFFORTS DELIVERED HISTORIC FUNDING GAINS. DURING THE NATIONAL LUPUS ADVOCACY SUMMIT, MORE THAN 350 ADVOCATES CONDUCTED NEARLY 200 MEETINGS ON CAPITOL HILL. THESE EFFORTS CONTRIBUTED TO SECURING $27 MILLION IN LUPUS-SPECIFIC FEDERAL FUNDING FOR FY2026 THE HIGHEST EVER APPROVED IN A SINGLE YEAR. FUNDING ALLOCATIONS INCLUDED:- $14 MILLION FOR THE CDC'S NATIONAL LUPUS PATIENT REGISTRY- $10 MILLION FOR THE DEPARTMENT OF DEFENSE LUPUS RESEARCH PROGRAM- $3 MILLION FOR THE OFFICE OF MINORITY HEALTH'S LUPUS TRAINING AND OUTREACH INITIATIVES- $49.7 BILLION OVERALL FOR THE NATIONAL INSTITUTES OF HEALTH, THE WORLD'S LARGEST PUBLIC FUNDER OF LUPUS RESEARCHTHE FOUNDATION ALSO ADVANCED PATIENT-CENTERED DRUG DEVELOPMENT BY CONTRIBUTING TO FDA PATIENT FOCUSED DRUG DEVELOPMENT GUIDANCE, AND IT ENGAGED IN FEDERAL AND STATE ADVOCACY TO ELIMINATE RESTRICTIVE INSURANCE PRACTICES SUCH AS STEP THERAPY AND CO-PAY ACCUMULATORS. THE FOUNDATION ALSO MOBILIZED A NETWORK OF MORE THAN 40,000 GRASSROOTS ADVOCATES NATIONWIDE.THROUGH LEADERSHIP OF THE MAPRX COALITION, REPRESENTING MORE THAN 60 NATIONAL PATIENT ORGANIZATIONS, THE FOUNDATION WORKED TO PROTECT MEDICARE PART D BENEFITS FOR 44 MILLION AMERICANS. EFFORTS INCLUDED CONGRESSIONAL BRIEFINGS AND ENGAGEMENT WITH THE CENTERS FOR MEDICARE AND MEDICAID SERVICES REGARDING IMPLEMENTATION OF THE MEDICARE PRESCRIPTION PAYMENT PLAN.

    Expenses $2,265,504 · Grants $408,638 · Revenue $21,285

  • NETWORK SUPPORT AND SERVICES:THE FOUNDATION'S NATIONAL NETWORK OF CHAPTERS, AMBASSADORS, AND SUPPORT GROUPS CONTINUED TO EXPAND. MORE THAN 200 TRAINED NATIONAL AMBASSADORS PROVIDED PEER EDUCATION AND OUTREACH. THE ORGANIZATION SUPPORTED MORE THAN 45 NATIONAL SUPPORT GROUPS WITH EXPANDED OFFERINGS FOR MEN, YOUTH UNDER 25, HISPANIC/LATINO COMMUNITIES, ASIAN COMMUNITIES, CAREGIVERS, AND BLACK/AFRICAN AMERICAN WOMEN. BOTH IN-PERSON AND VIRTUAL FORMATS INCREASED ACCESSIBILITY. SIX NEW NATIONAL AND EIGHT NEW REGIONAL SUPPORT GROUPS LAUNCHED, AND 142 FACILITATORS COMPLETED TRAINING, WITH 94% REPORTING READINESS TO LEAD. MORE THAN 90% OF PARTICIPANTS REPORTED INCREASED SUPPORT, IMPROVED KNOWLEDGE, AND REDUCED ISOLATION. THE LUPUSCONNECT ONLINE COMMUNITY GREW TO 27,416 MEMBERS.COMMUNITY FUNDRAISING AND ENGAGEMENT REMAINED STRONG. THE FOUNDATION HELD 29 WALK TO END LUPUS NOW EVENTS NATIONWIDE AND A VIRTUAL CELEBRATION FOR BROADER PARTICIPATION. THE VIRTUAL 6 CHALLENGE PROVIDED FLEXIBLE ENGAGEMENT OPPORTUNITIES. GAME ON! TO END LUPUS, A THREE-DAY LIVESTREAM FUNDRAISING EVENT, ENGAGED MORE THAN 188 CONTENT CREATORS AND SURPASSED THE $1 MILLION MILESTONE IN CUMULATIVE FUNDRAISING.

    Expenses $408,272 · Grants $10,000 · Revenue $92,126

  • RESEARCH:RECENT THERAPEUTIC ADVANCES HAVE SIGNIFICANTLY IMPROVED OUTCOMES FOR PEOPLE WITH LUPUS, WITH APPROXIMATELY 97 PERCENT OF PATIENTS NOW LIVING AT LEAST FIVE YEARS AFTER DIAGNOSIS. DESPITE THIS PROGRESS, CONTINUED RESEARCH IS ESSENTIAL TO ENHANCE QUALITY OF LIFE AND DEEPEN UNDERSTANDING OF THE DISEASE. THE LUPUS FOUNDATION OF AMERICA ANCHORS ITS RESEARCH EFFORTS IN THREE INTERCONNECTED PRIORITIES: ADVANCING CLINICAL CARE, EXPANDING EQUITABLE ACCESS TO CARE, AND ACCELERATING DRUG DEVELOPMENT. A CORNERSTONE INITIATIVE IS THE ADDRESSING LUPUS PILLARS FOR HEALTH ADVANCEMENT (ALPHA) PROJECT, A GLOBAL, MULTI-PHASE EFFORT TO IDENTIFY URGENT UNMET NEEDS IN LUPUS CARE. IN 2025, ALPHA EXPANDED ITS FOCUS TO PATIENT-PROVIDER COMMUNICATION AND BARRIERS TO HIGH-QUALITY CARE. THE TEAM CONDUCTED A REVIEW OF MORE THAN 2,300 ARTICLES, DEVELOPED A DECISION-MAKING FRAMEWORK, AND HELD FOCUS GROUPS WITH INDIVIDUALS LIVING WITH LUPUS TO BETTER UNDERSTAND TREATMENT CHALLENGES. THESE EFFORTS LED TO THE CREATION OF A PROTOTYPE SHARED DECISION-MAKING TOOLAVAILABLE IN PAPER AND MOBILE FORMATSTO HELP PATIENTS BETTER UNDERSTAND TREATMENT OPTIONS AND COLLABORATE EFFECTIVELY WITH PROVIDERS.A ROADMAP IDENTIFYING U.S. "RHEUMATOLOGY DESERTS" WAS DEVELOPED TO IMPROVE ACCESS TO TIMELY DIAGNOSIS AND CARE. ADDITIONALLY, A CONSENSUS-BASED MANUSCRIPT OUTLINING SOLUTIONS TO RACIAL AND ETHNIC DISPARITIES WAS PUBLISHED IN ARTHRITIS CARE AND RESEARCH AND FEATURED IN HEALIO MAGAZINE.THE FOUNDATION ALSO FUNDS FELLOWSHIPS AND EARLY-CAREER DEVELOPMENT GRANTS TO ENSURE TRAINING SUPPORT FOR LUPUS RESEARCHERS. IT PARTNERS WITH LUPUS CANADA TO ADMINISTER THE CATALYST GRANT AND ACTIVELY PURSUES FEDERAL, STATE, AND INDUSTRY FUNDING TO STRENGTHEN LUPUS RESEARCH PIPELINES. RESEARCH INVESTMENTS INCLUDE SUPPORT FOR A MULTI-YEAR STUDY OF MESENCHYMAL STROMAL CELLS AS A POTENTIAL LUPUS TREATMENT, LED BY THE MEDICAL UNIVERSITY OF SOUTH CAROLINA IN PARTNERSHIP WITH THE NATIONAL INSTITUTE FOR ALLERGY AND INFECTIOUS DISEASES. ALL PARTICIPANTS HAVE COMPLETED THE STUDY, AND RESULTS ARE EXPECTED IN 2026. ADDITIONALLY, THE LFA-FUNDED CARE LUPUS STUDY, PART OF THE PREDICT AND PREVENT LUPUS PROGRAM, HAS MADE SIGNIFICANT PROGRESS IN IDENTIFYING FIRST-DEGREE RELATIVES AT RISK OF DEVELOPING LUPUS.THE FOUNDATION ALSO SUPPORTS THE SYSTEMIC LUPUS ERYTHEMATOSUS COLLABORATING CLINICS (SLICC) IN UPDATING THE FDA-ACCEPTED SLICC DAMAGE INDEX, PARTICIPATES IN LUPUS ABC TO IMPROVE CLINICAL TRIAL OUTCOME MEASURES, AND PARTNERS IN THE TREATMENT RESPONSE MEASURE FOR SLE (TRM-SLE) PROJECT TO ELEVATE THE PATIENT VOICE.THE RAY REGISTRY CONTINUES TO EXPAND AS A VITAL PATIENT DATA PLATFORM. SINCE OCTOBER 2024, 473 NEW PARTICIPANTS ENROLLED, BRINGING TOTAL ENROLLMENT TO 7,163. RECRUITMENT EFFORTS HAVE INCREASED REPRESENTATION AMONG BLACK/AFRICAN AMERICAN PARTICIPANTS AND OTHER RACIAL AND ETHNIC GROUPS. MOST NEW ENROLLEES HAVE SYSTEMIC LUPUS ERYTHEMATOSUS (SLE), WITH A MEDIAN AGE OF 45. IN 2025, THE RAY PLATFORM WAS UPGRADED TO ENHANCE COMMUNICATION, EXPAND GLOBAL REACH, AND IMPROVE PATIENT-REPORTED DATA COLLECTION TO ACCELERATE RESEARCH AND CLINICAL TRIAL PARTICIPATION.

    Expenses $403,757 · Revenue $1,063,494

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • JOSEPH A ARNOLD ESQ

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • ANDREW BROPHY

    IMMEDIATE PAST CHAIR

    Total calculated
    $0
    Hours/week
    5

  • BARBARA POLK

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5

  • CHRISTINE SMITH TREAS UNTIL

    05/25, THEN DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • KEVIN CHEUNG DIRECTOR

    TREASURER AS OF 05/25

    Total calculated
    $0
    Hours/week
    1

  • PHONG NGUYEN SECRETARY UNTIL

    05/25, THEN DIRECTOR

    Total calculated
    $0
    Hours/week
    5

  • THERESA JUDAY DIRECTOR

    SECRETARY AS OF 05/25

    Total calculated
    $0
    Hours/week
    1

  • BRIAN ANTONSEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JUDY BARLIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LYNN BLANDFORD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • SHANNON BOXX

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LINDSAY CAFRITZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • KAREN COSTENBADER MD MPH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CONRAD GEHRMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1 + 1 related

  • SREEDHAR MANDAYAM MD MPH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • SUSAN MANZI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TIM NOLAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHERI PERRON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ELIZABETH ROTH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LOUISE VETTER PRESIDENT

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $188,505
    From this org
    $183,300
    From related orgs
    $0
    Other
    $5,205
    Hours/week
    37.5 + 1.5 related

    Schedule J breakdown matched by us

    Base
    $163,162
    Bonus
    $20,000
    Other
    $138
    Deferred
    $0
    Nontaxable benefits
    $5,205
    Filer's total
    $188,505

  • MARY T CRIMMINGS INTERIM

    CEO; VP, MARKETING & COMMUNICATIONS

    Total calculated
    $340,899
    From this org
    $300,484
    From related orgs
    $0
    Other
    $40,415
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $300,484
    Bonus
    $0
    Other
    $0
    Deferred
    $27,044
    Nontaxable benefits
    $13,371
    Filer's total
    $340,899

  • JEANINE SMITH

    VP, NETWORK DEVELOPMENT

    Total calculated
    $260,133
    From this org
    $224,500
    From related orgs
    $0
    Other
    $35,633
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $224,500
    Bonus
    $0
    Other
    $0
    Deferred
    $15,960
    Nontaxable benefits
    $19,673
    Filer's total
    $260,133

  • CYNTHIA WHEELER

    CHIEF FINANCIAL OFFICER AS OF 12/24

    Total calculated
    $7,566
    From this org
    $7,538
    From related orgs
    $0
    Other
    $28
    Hours/week
    37.5 + 1.5 related

  • PATRICK WILDMAN

    VP, ADVOCACY & GOVERNMENT

    Total calculated
    $239,515
    From this org
    $212,146
    From related orgs
    $0
    Other
    $27,369
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $212,146
    Bonus
    $0
    Other
    $0
    Deferred
    $15,195
    Nontaxable benefits
    $12,174
    Filer's total
    $239,515

  • JOY BUIE

    VP, RESEARCH

    Total calculated
    $225,620
    From this org
    $201,167
    From related orgs
    $0
    Other
    $24,453
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $201,167
    Bonus
    $0
    Other
    $0
    Deferred
    $10,314
    Nontaxable benefits
    $14,139
    Filer's total
    $225,620

  • MICHAEL DONNELLY

    VICE PRESIDENT, COMMUNICATIONS

    Total calculated
    $209,904
    From this org
    $181,534
    From related orgs
    $0
    Other
    $28,370
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $181,534
    Bonus
    $0
    Other
    $0
    Deferred
    $13,913
    Nontaxable benefits
    $14,457
    Filer's total
    $209,904

  • TERI YODER

    VP, DEVELOPMENT & FUNDRAISING

    Total calculated
    $188,793
    From this org
    $188,484
    From related orgs
    $0
    Other
    $309
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $188,484
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $309
    Filer's total
    $188,793

  • SUSAN J GLOOR

    REGIONAL DIRECTOR, NE

    Total calculated
    $212,703
    From this org
    $177,774
    From related orgs
    $0
    Other
    $34,929
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $177,774
    Bonus
    $0
    Other
    $0
    Deferred
    $13,133
    Nontaxable benefits
    $21,796
    Filer's total
    $212,703

  • MATT DEGOOYER

    SENIOR REGIONAL DIRECTOR

    Total calculated
    $209,301
    From this org
    $175,434
    From related orgs
    $0
    Other
    $33,867
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $175,434
    Bonus
    $0
    Other
    $0
    Deferred
    $13,063
    Nontaxable benefits
    $20,804
    Filer's total
    $209,301

  • DESIREE WIENAND

    DIRECTOR, CORPORATE ENGAGEMENT

    Total calculated
    $185,196
    From this org
    $159,423
    From related orgs
    $0
    Other
    $25,773
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $159,423
    Bonus
    $0
    Other
    $0
    Deferred
    $11,160
    Nontaxable benefits
    $14,613
    Filer's total
    $185,196

  • AMY YALDEN

    SENIOR REGIONAL DIRECTOR

    Total calculated
    $211,473
    From this org
    $190,422
    From related orgs
    $0
    Other
    $21,051
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $190,422
    Bonus
    $0
    Other
    $0
    Deferred
    $9,527
    Nontaxable benefits
    $11,524
    Filer's total
    $211,473

  • VALERYIA MIKHARAVA

    CONTROLLER

    Total calculated
    $188,665
    From this org
    $178,523
    From related orgs
    $0
    Other
    $10,142
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $178,523
    Bonus
    $0
    Other
    $0
    Deferred
    $8,392
    Nontaxable benefits
    $1,750
    Filer's total
    $188,665

  • JULIE TUNE

    FORMER CHIEF FINANCIAL OFFICER

    Total calculated
    $203,971
    From this org
    $179,715
    From related orgs
    $0
    Other
    $24,256
    Hours/week
    0

    Schedule J breakdown matched by us

    Base
    $179,465
    Bonus
    $250
    Other
    $0
    Deferred
    $12,106
    Nontaxable benefits
    $12,150
    Filer's total
    $203,971

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
LOUISE VETTER, PRESIDENT & CEO, RECEIVED A HIRING BONUS OF $20,000, IN THE CALENDAR YEAR 2024.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
1 May 2026
IRS schema version
2024v5.5
Source object
202601279349303080

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.