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← MOVEMENT DISORDERS FOUNDATION

Form 990 for tax year 2024

Filed by MOVEMENT DISORDERS FOUNDATION.

Totals

Total revenue
$164,166
Total expenses
$208,656
Contributions and grants received
$126,837
Grants paid
$100,000
Program service revenue
$0
Investment income
$35,932
Other revenue
$1,397
Total assets, end of year
$620,271
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$620,271
Program services expenses (Part IX)
$190,786
Management and general expenses
$14,870
Fundraising expenses
$3,000
Program service expenses (Part III)
$190,786

Program services were 91.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $0

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $126,837

  • 1g · Noncash contributions included above

    $0

  • 3 · Investment income

    total $35,932 · related or exempt $35,932 · unrelated business $0 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $0 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $0

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11d · All other revenue

    total $1,397 · related or exempt $1,397 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $1,397

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $50,000 · program services $50,000

  • 2 · Grants to domestic individuals

    total $0 · program services $0

  • 3 · Grants to foreign organizations and individuals

    total $50,000 · program services $50,000

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 10 · Payroll taxes

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11a · Fees: management

    total $60,000 · program services $48,650 · management and general $8,350 · fundraising $3,000

  • 11b · Fees: legal

    total $1,053 · program services $0 · management and general $1,053 · fundraising $0

  • 11c · Fees: accounting

    total $426 · program services $0 · management and general $426 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $40,850 · program services $40,850 · management and general $0 · fundraising $0

  • 12 · Advertising and promotion

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 13 · Office expenses

    total $268 · program services $0 · management and general $268 · fundraising $0

  • 14 · Information technology

    total $2,903 · program services $0 · management and general $2,903 · fundraising $0

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $670 · program services $670 · management and general $0 · fundraising $0

  • 17 · Travel

    total $616 · program services $616 · management and general $0 · fundraising $0

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $1,232 · management and general $1,232

  • 24a · Other expenses: CO Secretary of State registration fees

    total $45 · program services $0 · management and general $45 · fundraising $0

  • 24b · Other expenses: Meals

    total $593 · program services $0 · management and general $593 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $54,802 · end of year $83,755

  • 2 · Savings and temporary cash investments

    beginning of year $0 · end of year $0

  • 3 · Pledges and grants receivable

    beginning of year $0

  • 4 · Accounts receivable

    beginning of year $8,825 · end of year $55,251

  • 5 · Loans and receivables from officers and key people

    beginning of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0

  • 8 · Inventories for sale or use

    beginning of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $600,430 · end of year $481,265

  • 12 · Investments: other securities

    beginning of year $0

  • 13 · Investments: program-related

    beginning of year $0

  • 14 · Intangible assets

    beginning of year $0

  • 15 · Other assets

    beginning of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $0 · end of year $0

  • 18 · Grants payable

    beginning of year $0 · end of year $0

  • 19 · Deferred revenue

    beginning of year $0 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $664,057 · end of year $620,271

Mission and programs · 2024

Mission

Movement Disorders Foundation helps people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer professional and patient-focused education and provide unique care services.

Activities or mission (Part I)

We help people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer patient-focused education or provide unique care services.

  • Research projects funded by the Movement Disorders Foundation GRANT FUNDING program must have a clear possibility of working at scale and for which grant funding has been otherwise difficult to obtain. In 2023, the organization restructured its grant funding program to support early-career research scientists in their advancement of high risk/high reward translational and/or clinical research that advances the understanding, treatment or prevention of multiple movement disorders. The Young Investigator Pilot Grant program launched in February 2024 with an invitational request for proposals to research institutions in the United States, Canada and United Kingdom. MDF awarded three grants at $50,000 each - of which $100,000 was distributed in FY24 to the recipients.

    Expenses $124,000 · Grants $100,000 · Revenue $24,000

  • Movement Disorders Foundation is the fiscal sponsor of the HUNTINGTON'S DISEASE SOCIETY OF AMERICA (HDSA) CENTER OF EXCELLENCE at the Rocky Mountain Movement Disorders Center in Englewood, Colorado. The clinic provides an elite team approach to HD care, featuring neurologists, psychiatrists, social workers, therapists, counselors and other professionals working collaboratively to help families plan the best HD care program throughout the course of the disease. The Center of Excellence distinction is conferred on clinics who share HDSA's commitment to high-quality, comprehensive care and access to clinical research.

    Expenses $44,286 · Revenue $43,000

  • Movement Disorders Foundation's ENEWSLETTER provides important news, information and resources each Thursday for individuals living with movement disorders and their care partners. Now in its second year, the MDF eNewsletter reaches over 2800 people each week with more than 1500 active readers.

    Expenses $22,500 · Revenue $22,500

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Eugene H Sobczak

    Executive Director

    Total calculated
    $60,000
    From this org
    $60,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    12.5

  • Betty Ross

    Chairperson

    Total calculated
    $0
    Hours/week
    2

  • Morris Susman MD

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Peter McKown

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Rajeev Kumar MD

    Board member

    Total calculated
    $0
    Hours/week
    2

  • Sara Minott

    Board member

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
28 April 2025
IRS schema version
2024v5.0
Source object
202511299349302991

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