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← CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION

Form 990 for tax year 2022

Filed by CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION.

Totals

Total revenue
$16,163,010
Total expenses
$15,102,867
Contributions and grants received
$15,074,497
Grants paid
$5,006,071
Program service revenue
$0
Investment income
$1,514,449
Other revenue
-$425,936
Total assets, end of year
$10,126,654
Total liabilities, end of year
$2,197,573
Net assets or fund balances, end of year
$7,929,081
Program services expenses (Part IX)
$12,869,146
Management and general expenses
$788,488
Fundraising expenses
$1,445,233
Program service expenses (Part III)
$12,869,146

Program services were 85.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $1,952,800

  • 1d · Related organizations

    $5,209

  • 1e · Government grants (contributions)

    $9,623,151

  • 1f · All other contributions, gifts and grants

    $3,493,337

  • 1g · Noncash contributions included above

    $140,991

  • 3 · Investment income

    total $8,078 · excluded $8,078

  • 7a · Gross sales of assets other than inventory

    securities $4,404,764

  • 7b · Less cost or other basis and sales expenses

    securities $2,898,393

  • 7c · Gain or loss

    securities $1,506,371

  • 7d · Net gain or loss

    total $1,506,371 · excluded $1,506,371

  • 8a · Fundraising events: gross income

    $355,560

  • 8a · Fundraising events: contributions included on line 1c

    $1,952,800

  • 8b · Fundraising events: direct expenses

    $781,496

  • 8c · Net income from fundraising events

    total -$425,936 · excluded -$425,936

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $4,386,958 · program services $4,386,958

  • 3 · Grants to foreign organizations and individuals

    total $619,113 · program services $619,113

  • 5 · Compensation of officers, directors and key employees

    total $1,294,362 · program services $955,776 · management and general $115,187 · fundraising $223,399

  • 7 · Other salaries and wages

    total $2,896,321 · program services $2,094,994 · management and general $276,075 · fundraising $525,252

  • 8 · Pension plan contributions

    total $47,801 · program services $39,053 · management and general $2,469 · fundraising $6,279

  • 9 · Other employee benefits

    total $849,105 · program services $722,096 · management and general $44,753 · fundraising $82,256

  • 10 · Payroll taxes

    total $312,912 · program services $258,445 · management and general $18,946 · fundraising $35,521

  • 11b · Fees: legal

    total $32,640 · program services $12,924 · management and general $19,716

  • 11c · Fees: accounting

    total $169,578 · program services $33,689 · management and general $135,889

  • 11g · Fees: other

    total $1,702,469 · program services $1,457,212 · management and general $49,895 · fundraising $195,362

  • 12 · Advertising and promotion

    total $158,227 · program services $155,087 · fundraising $3,140

  • 13 · Office expenses

    total $179,088 · program services $159,877 · management and general $6,683 · fundraising $12,528

  • 16 · Occupancy

    total $359,556 · program services $304,030 · management and general $19,314 · fundraising $36,212

  • 17 · Travel

    total $188,826 · program services $180,313 · management and general $4,797 · fundraising $3,716

  • 19 · Conferences, conventions and meetings

    total $260,188 · program services $240,483 · management and general $19,455 · fundraising $250

  • 22 · Depreciation, depletion and amortization

    total $3,894 · program services $2,257 · management and general $570 · fundraising $1,067

  • 23 · Insurance

    total $97,253 · program services $72,940 · management and general $24,313

  • 24a · Other expenses: MISCELLANEOUS

    total $492,198 · program services $459,173 · management and general $15,759 · fundraising $17,266

  • 24b · Other expenses: INTERNET COMMUNICATIONS

    total $426,900 · program services $397,156 · management and general $4,957 · fundraising $24,787

  • 24c · Other expenses: DIRECT MAIL

    total $158,227 · program services $47,468 · management and general $0 · fundraising $110,759

  • 24d · Other expenses: PRINTING

    total $145,515 · program services $138,369 · management and general $3,573 · fundraising $3,573

  • 24e · All other expenses

    total $321,736 · program services $131,733 · management and general $26,137 · fundraising $163,866

  • 26 · Joint costs (an allocation of the lines above)

    total $454,943 · program services $136,483 · management and general $0 · fundraising $318,460

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,009,037 · end of year $2,202,932

  • 2 · Savings and temporary cash investments

    beginning of year $1,613,374 · end of year $1,800,965

  • 3 · Pledges and grants receivable

    beginning of year $2,549,646 · end of year $1,473,594

  • 9 · Prepaid expenses and deferred charges

    beginning of year $68,396 · end of year $105,250

  • 10a · Land, buildings and equipment: cost or other basis

    $1,225,141

  • 10b · Land, buildings and equipment: accumulated depreciation

    $1,219,382

  • 10c · Land, buildings and equipment, net

    beginning of year $9,653 · end of year $5,759

  • 11 · Investments: publicly traded securities

    beginning of year $10,112 · end of year $3,392,554

  • 13 · Investments: program-related

    beginning of year $1,992,010 · end of year $281,728

  • 15 · Other assets

    beginning of year $13,663 · end of year $863,872

  • 17 · Accounts payable and accrued expenses

    beginning of year $260,951 · end of year $302,854

  • 18 · Grants payable

    beginning of year $1,030,324 · end of year $502,632

  • 19 · Deferred revenue

    beginning of year $137,193 · end of year $41,955

  • 23 · Secured mortgages and notes payable

    beginning of year $150,000 · end of year $500,000

  • 25 · Other liabilities

    beginning of year $0 · end of year $850,132

  • 27 · Net assets without donor restrictions

    beginning of year $6,687,423 · end of year $7,929,081

Mission and programs · 2022

Mission

THE CHRISTOPHER AND DANA REEVE FOUNDATION IS DEDICATED TO CURING SPINAL CORD INJURY BY ADVANCING INNOVATIVE RESEARCH AND IMPROVING QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES IMPACTED BY PARALYSIS.

  • THE FOUNDATION'S QUALITY OF LIFE GRANTS PROGRAM BEGAN IN 1999 AND EXPANDED IN 2001 WITH THE ESTABLISHMENT OF THE PARALYSIS RESOURCE CENTER FUNDED BY A FEDERAL GRANT FROM THE CENTERS FOR DISEASE CONTROL AND NOW THE ADMINISTRATION FOR COMMUNITY LIVING. SINCE THEN, APPROPRIATIONS HAVE CONTINUED ANNUALLY, THE MOST RECENT, EFFECTIVE JULY 1, 2023 FOR $10,000,000.THE RESOURCE CENTER PROVIDES INTERACTIVE INFORMATION SERVICES TO THE PARALYSIS COMMUNITY AND THEIR CAREGIVERS. THEY ALSO AWARD QUALITY OF LIFE GRANTS TWICE A YEAR TO ORGANIZATIONS WHOSE PROJECTS AND INITIATIVES FOSTER INCLUSION, INVOLVEMENT AND COMMUNITY ENGAGEMENT, WHILE PROMOTING HEALTH AND WELLNESS FOR THOSE AFFECTED BY PARALYSIS.

    Expenses $10,025,573 · Grants $3,636,507

  • THE CHRISTOPHER AND DANA REEVE FOUNDATION ALLOCATES ITS RESEARCH DOLLARS AMONG TWO INITATIVES COVERING THE FULL BENCH-TO-BEDSIDE CONTINUUM.1. THE MISSION OF THE CHRISTOPHER REEVE FOUNDATION'S NORTH AMERICAN CLINICAL TRIALS NETWORK (NACTN) IS TO ADVANCE THE QUALITY OF CARE AND LIFE FOR PEOPLE WITH SPINAL CORD INJURY (SCI) THROUGH CLINICAL TRIALS OF NEW THERAPIES THAT PROVIDE STRONG EVIDENCE OF SAFETY AND EFFECTIVENESS. NACTN ALSO HAS THE OBJECTIVE OF CREATING AND EVALUATING BEST CARE PRACTICES FOR ACUTE SCI. ITS RESEARCH HAS BEEN SUPPORTED HISTORICALLY BY MULTI-MILLION DEPARTMENT OF DEFENSE AWARDS.2. EPISTIM - THE REEVE FOUNDATION PROVIDES FUNDING TO VARIOUS RESEARCHERS WHO AIM TO STUDY THE EFFECTS OF EPIDURAL SPINAL CORD STIMULATION ON PEOPLE WITH CHRONIC SPINAL CORD INJURY INCLUDING VOLUNTARY MOVEMENT, CARDIOVASCULAR, PULMONARY AND BOWEL AND BLADDER CONTROL THEREBY IMPROVING THEIR OVERALL QUALITY OF LIFE.THE BIG IDEA IS A STUDY AIMED AT TESTING THE EFFECTIVENESS OF EPIDURAL STIMULATION TO PROMOTE SIGNIFICANT LEVELS OF MOTOR AND AUTONOMIC CONTROL AS WELL AS THE AFORE-MENTIONED SECONDARY FUNCTIONS. THE FOUNDATION IS CURRENTLY WORKING WITH ITS PARTNERS TO FACILITATE THE STUDY CONCLUSION IN A WAY THAT IS CONSISTENT WITH OUT COMMITMENT TO THE PATIENTS IN THE STUDY.

    Expenses $2,019,099 · Grants $1,369,564

  • PUBLIC EDUCATION AND ADVOCACY IS A CORNERSTONE OF THE FOUNDATION. IT MAINTAINS A CONSTANT PRESENCE IN WASHINGTON, DC. SPEAKING OUT AND EDUCATING THE PUBLIC AND LEGISLATORS ON BEHALF OF THE PARALYSIS COMMUNITY. COMMUNITY OUTREACH THROUGH ITS WEBSITE ENABLES THE FOUNDATION TO EDUCATE THE PUBLIC ON RESEARCH INITIATIVES CURRENTLY UNDERWAY.

    Expenses $824,474

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Jay Shepard

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • John M Hughes

    CHAIR EMERITUS

    Total calculated
    $0
    Hours/week
    5

  • John E McConnell

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Alexandra Reeve Givens Esq

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Matthew Reeve

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Henry G Stifel III

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Tania Lynn Taylor

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • Helen V Cantwell Esq

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • James Calbi

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Ian Curtis

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Michael Fordyce

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Tracy Forst

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Simone George

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Kelly Anne Heneghan Esq

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Lisa Henry Holmes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Anita McGorty

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Julie Neustadt

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Mark Pollock

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • William Reeve

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Vandy Van Wagener

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Patricia J Volland

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Tom Londres

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2.5

  • Alan Brown

    DIRECTOR

    Total calculated
    $186,519
    From this org
    $154,129
    From related orgs
    $0
    Other
    $32,390
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $154,129
    Bonus
    $0
    Other
    $0
    Deferred
    $7,180
    Nontaxable benefits
    $25,210
    Filer's total
    $186,519

  • Jeannine Marotta

    DIRECTOR

    Total calculated
    $133,350
    From this org
    $121,630
    From related orgs
    $0
    Other
    $11,720
    Hours/week
    40

  • Kimberly Beer

    SENIOR DIRECTOR

    Total calculated
    $152,657
    From this org
    $134,614
    From related orgs
    $0
    Other
    $18,043
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $134,614
    Bonus
    $0
    Other
    $0
    Deferred
    $6,279
    Nontaxable benefits
    $11,764
    Filer's total
    $152,657

  • Bill Cawley

    DIRECTOR

    Total calculated
    $154,303
    From this org
    $111,457
    From related orgs
    $0
    Other
    $42,846
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $111,457
    Bonus
    $0
    Other
    $0
    Deferred
    $5,391
    Nontaxable benefits
    $37,455
    Filer's total
    $154,303

  • Mark Bogosian

    DIRECTOR

    Total calculated
    $164,147
    From this org
    $126,788
    From related orgs
    $0
    Other
    $37,359
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $126,788
    Bonus
    $0
    Other
    $0
    Deferred
    $6,009
    Nontaxable benefits
    $31,350
    Filer's total
    $164,147

  • Sheila Fitzgibbon

    SENIOR DIRECTOR

    Total calculated
    $154,207
    From this org
    $135,983
    From related orgs
    $0
    Other
    $18,224
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $135,983
    Bonus
    $0
    Other
    $0
    Deferred
    $6,227
    Nontaxable benefits
    $11,997
    Filer's total
    $154,207

  • Richard Sherman

    CFO

    Total calculated
    $90,469
    From this org
    $90,469
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Olivia Mullane

    SENIOR DIRECTOR

    Total calculated
    $172,557
    From this org
    $161,396
    From related orgs
    $0
    Other
    $11,161
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $161,396
    Bonus
    $0
    Other
    $0
    Deferred
    $7,367
    Nontaxable benefits
    $3,794
    Filer's total
    $172,557

  • Michele Loiacono

    VP OPERATIONS

    Total calculated
    $200,478
    From this org
    $157,320
    From related orgs
    $0
    Other
    $43,158
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,320
    Bonus
    $0
    Other
    $0
    Deferred
    $7,630
    Nontaxable benefits
    $35,528
    Filer's total
    $200,478

  • Margaret Goldberg

    PRESIDENT AND CEO

    Total calculated
    $358,810
    From this org
    $316,968
    From related orgs
    $0
    Other
    $41,842
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $316,968
    Bonus
    $0
    Other
    $0
    Deferred
    $13,725
    Nontaxable benefits
    $28,117
    Filer's total
    $358,810

  • Marco Baptista

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $177,695
    From this org
    $162,205
    From related orgs
    $0
    Other
    $15,490
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $162,205
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $15,490
    Filer's total
    $177,695

  • Regina Blye

    CHIEF PROGRAM AND POLICY OFFICER

    Total calculated
    $141,698
    From this org
    $134,706
    From related orgs
    $0
    Other
    $6,992
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Related partnerships

Part III: related organizations taxable as a partnership, with the filer's share.

  • NRT HOLDINGS LLC

    RELATED · INVEST IN THE NEURORECOVERY TECHNOLOGIES, INC. TO FIND A CURE FOR PARALYSIS · CA · 0.89% owned · share of assets $31,728

Provenance

Return type
form_990
Tax year
2022
Filed
28 September 2023
IRS schema version
2022v5.0
Source object
202312769349301701

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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