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Nonprofiteer
← EPILEPSY STUDY CONSORTIUM INC

Form 990 for tax year 2023

Filed by EPILEPSY STUDY CONSORTIUM INC.

Totals

Total revenue
$3,371,798
Total expenses
$1,701,465
Contributions and grants received
$855,830
Grants paid
$66,000
Program service revenue
$2,473,596
Investment income
$42,372
Other revenue
$0
Total assets, end of year
$3,454,178
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$3,454,178
Program services expenses (Part IX)
$1,691,432
Management and general expenses
$10,033
Fundraising expenses
$0
Program service expenses (Part III)
$1,691,432

Program services were 99.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $855,830

  • 1g · Noncash contributions included above

    $10,131

  • 2a · Program service revenue: CONSULTING

    total $2,011,243 · related or exempt $2,011,243

  • 2b · Program service revenue: TRIAL DESIGNS

    total $462,353 · related or exempt $462,353

  • 3 · Investment income

    total $37,668 · excluded $37,668

  • 7a · Gross sales of assets other than inventory

    securities $24,847

  • 7b · Less cost or other basis and sales expenses

    securities $20,143

  • 7c · Gain or loss

    securities $4,704

  • 7d · Net gain or loss

    total $4,704 · excluded $4,704

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $66,000 · program services $66,000

  • 5 · Compensation of officers, directors and key employees

    total $364,789 · program services $364,789

  • 7 · Other salaries and wages

    total $347,581 · program services $347,581

  • 8 · Pension plan contributions

    total $17,464 · program services $17,464

  • 9 · Other employee benefits

    total $2,308 · program services $2,308

  • 10 · Payroll taxes

    total $51,184 · program services $51,184

  • 11c · Fees: accounting

    total $10,033 · management and general $10,033

  • 11g · Fees: other

    total $134,563 · program services $134,563

  • 13 · Office expenses

    total $24,567 · program services $24,567

  • 14 · Information technology

    total $16,368 · program services $16,368

  • 16 · Occupancy

    total $3,344 · program services $3,344

  • 17 · Travel

    total $21,867 · program services $21,867

  • 19 · Conferences, conventions and meetings

    total $210,849 · program services $210,849

  • 23 · Insurance

    total $34,437 · program services $34,437

  • 24a · Other expenses: MEDICAL STUDY AND RESEA

    total $262,137 · program services $262,137

  • 24b · Other expenses: PROGRAM EXPENSE

    total $128,910 · program services $128,910

  • 24c · Other expenses: MEMBERSHIP DUES AND SUB

    total $4,575 · program services $4,575

  • 24d · Other expenses: TELEPHONE

    total $489 · program services $489

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,758,421 · end of year $2,416,677

  • 2 · Savings and temporary cash investments

    beginning of year $25,417

  • 12 · Investments: other securities

    end of year $1,037,501

  • 15 · Other assets

    beginning of year $7 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $1,783,845 · end of year $3,454,178

Mission and programs · 2023

Mission

ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH.

  • CONSULTING - MADE AVAILABLE VAST EPILEPSY EXPERTISE WHICH WAS UTILIZED FOR ADVISORY BOARDS AND INDEPENDENT CONSULTING ACTIVITY. PROVIDED STUDY DESIGN CONSULTATION ON A NUMBER OF PROTOCOLS. DEVELOPED AND IMPLEMENTED EDUCATIONAL TOOLS FOR USE IN CLINICAL TRIALS TO ENSURE ENROLLMENT OF APPROPRIATE SUBJECTS. CENTRAL REVIEW OF DOCUMENTATION TO CONFIRM ELIGIBILITY FOR PATIENTS IN CLINICAL TRIALS. DEVELOPED SEVERAL PROOF OF PRINCIPLE PROTOCOLS WHICH ARE AVAILABLE TO CLIENTS. IMPLEMENTED THE PREVIOUSLY DESIGNED PROOF OF PRINCIPLE STUDY TO ASSESS PHOTOSENSITIVE EPILEPSY INCLUDING SITE TRAINING.

    Expenses $855,236 · Grants $66,000 · Revenue $2,011,243

  • HUMAN EPILEPSY PROJECT - CONTINUING TO ANALYZE DATA FROM HEP 1 & HEPS 2 STUDIES. OVERSEE AND COORDINATE THE FINANCIAL ASPECTS OF THE HEP3 STUDY. TESC MANAGES HEP3 STUDYS LIFE CYCLE FOR NYU, OVERSEES AND COORDINATES FINANCIAL ASPECTS OF THE STUDY AND THE PARTICIPATING SITES.

    Expenses $624,999

  • TRIAL DESIGNS - PREPARE AND ORGANIZE MULTINATIONAL SYMPOSIUM ON EPILEPSY TRIAL DESIGN AND IMPLEMENTATION.

    Expenses $211,197 · Revenue $462,353

As filed on the 2023 return.

Listed in Part VII

  • Michael Sperling MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Bree Diventura

    CO-EXECUTIVE DIRECTOR

    Total calculated
    $200,319
    From this org
    $194,484
    From related orgs
    $0
    Other
    $5,835
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $194,484
    Bonus
    $0
    Other
    $0
    Deferred
    $5,835
    Nontaxable benefits
    $0
    Filer's total
    $200,319

  • Gregory Krauss MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • John Pollard MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Pavel Klein MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Sudha Kessler MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Marc Dichter MD PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Hina Dave MD

    DIRECTOR

    Total calculated
    $1,725
    From this org
    $1,725
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

  • Meryl Lozano

    CO-EXECUTIVE DIRECTOR

    Total calculated
    $141,167
    From this org
    $141,167
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Claude Steriade MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Gelfand MD

    DIRECTOR

    Total calculated
    $27,413
    From this org
    $27,413
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

  • James Lintott Esq

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Jacqueline French MD

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5

  • Dennis Dlugos MD

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Daniel Friedman MD

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Tracy L De Vito

    EMPLOYEE

    Total calculated
    $104,612
    From this org
    $104,612
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
16 July 2024
IRS schema version
2023v5.1
Source object
202402419349300335

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