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Nonprofiteer
← SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC

Form 990 for tax year 2022

Filed by SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC.

Totals

Total revenue
$336,751
Total expenses
$102,768
Contributions and grants received
$336,751
Grants paid
$8,000
Program service revenue
$0
Investment income
$0
Other revenue
$0
Total assets, end of year
$635,328
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$635,328
Program services expenses (Part IX)
$73,042
Management and general expenses
$18,870
Fundraising expenses
$10,856
Program service expenses (Part III)
$73,042

Program services were 71.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $336,751

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $8,000 · program services $8,000

  • 5 · Compensation of officers, directors and key employees

    total $80,000 · program services $60,000 · management and general $10,000 · fundraising $10,000

  • 10 · Payroll taxes

    total $6,525 · program services $4,894 · management and general $816 · fundraising $815

  • 11b · Fees: legal

    total $1,800 · management and general $1,800

  • 11c · Fees: accounting

    total $1,315 · management and general $1,315

  • 13 · Office expenses

    total $4,017 · program services $148 · management and general $3,828 · fundraising $41

  • 14 · Information technology

    total $368 · management and general $368

  • 23 · Insurance

    total $743 · management and general $743

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $391,345 · end of year $625,328

  • 2 · Savings and temporary cash investments

    beginning of year $10,000

  • 4 · Accounts receivable

    end of year $10,000

  • 27 · Net assets without donor restrictions

    beginning of year $401,345 · end of year $635,328

Mission and programs · 2022

Mission

Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable.

  • The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder.

    Expenses $73,042

As filed on the 2022 return.

Listed in Part VII

  • Eszter Hars

    President

    Total calculated
    $80,000
    From this org
    $80,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    35

  • Lisa Superina

    Member

    Total calculated
    $0
    Hours/week
    1

  • Lotien Huang

    Member

    Total calculated
    $0
    Hours/week
    1

  • Anne Duprey

    Secretary

    Total calculated
    $0
    Hours/week
    1

  • Kati Ebrahim

    Treasurer

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
31 May 2023
IRS schema version
2022v5.0
Source object
202331529349301313

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