Totals
- Total revenue
- $7,357,938
- Total expenses
- $10,247,154
- Contributions and grants received
- $4,489,779
- Grants paid
- $495,000
- Program service revenue
- $0
- Investment income
- $549,583
- Other revenue
- $2,318,576
- Total assets, end of year
- $27,086,351
- Total liabilities, end of year
- $256,435
- Net assets or fund balances, end of year
- $26,829,916
- Program services expenses (Part IX)
- $8,370,237
- Management and general expenses
- $770,691
- Fundraising expenses
- $1,106,226
- Program service expenses (Part III)
- $8,370,237
Program services were 81.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$130,632
-
1f · All other contributions, gifts and grants
$4,359,147
-
3 · Investment income
total $363,250 · related or exempt $363,250
-
7a · Gross sales of assets other than inventory
securities $6,783,677
-
7b · Less cost or other basis and sales expenses
securities $6,597,344
-
7c · Gain or loss
securities $186,333
-
7d · Net gain or loss
total $186,333 · related or exempt $186,333
-
8a · Fundraising events: gross income
$4,731,548
-
8a · Fundraising events: contributions included on line 1c
$130,632
-
8b · Fundraising events: direct expenses
$2,794,166
-
8c · Net income from fundraising events
total $1,937,382 · excluded $1,937,382
-
11a · Other revenue: DATASET INCOME
total $245,789 · related or exempt $245,789
-
11b · Other revenue: TRINDS LLC INCOME
total $135,405 · related or exempt $135,405
-
11e · Other revenue, total
$381,194
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $495,000 · program services $495,000
-
5 · Compensation of officers, directors and key employees
total $2,563,123 · program services $2,380,782 · management and general $14,255 · fundraising $168,086
-
7 · Other salaries and wages
total $1,540,526 · program services $854,951 · management and general $313,509 · fundraising $372,066
-
9 · Other employee benefits
total $268,067 · program services $212,139 · management and general $2,681 · fundraising $53,247
-
10 · Payroll taxes
total $311,195 · program services $237,522 · management and general $19,252 · fundraising $54,421
-
11b · Fees: legal
total $377,814 · program services $310,570 · management and general $6,195 · fundraising $61,049
-
11c · Fees: accounting
total $68,759 · program services $41,255 · management and general $13,752 · fundraising $13,752
-
11g · Fees: other
total $20,734 · program services $1,098 · management and general $4,222 · fundraising $15,414
-
12 · Advertising and promotion
total $84,972 · program services $79,241 · management and general $125 · fundraising $5,606
-
13 · Office expenses
total $542 · management and general $542
-
14 · Information technology
total $155,775 · program services $123,898 · management and general $20,874 · fundraising $11,003
-
16 · Occupancy
total $175,894 · program services $161,157 · management and general $3,293 · fundraising $11,444
-
17 · Travel
total $540,276 · program services $286,734 · management and general $78,129 · fundraising $175,413
-
19 · Conferences, conventions and meetings
total $125,936 · program services $60,256 · management and general $23,809 · fundraising $41,871
-
22 · Depreciation, depletion and amortization
total $6,488 · management and general $6,488
-
23 · Insurance
total $9,148 · program services $5,551 · management and general $2,039 · fundraising $1,558
-
24a · Other expenses: OUTSIDE SERVICES
total $2,407,152 · program services $2,336,910 · management and general $67,889 · fundraising $2,353
-
24b · Other expenses: PUBLIC RELATIONS
total $464,766 · program services $464,766
-
24c · Other expenses: OFFICE SUPPLIES
total $268,543 · program services $84,499 · management and general $160,412 · fundraising $23,632
-
24d · Other expenses: RESEARCH EXPENSE
total $130,007 · program services $130,007
-
24e · All other expenses
total $232,437 · program services $103,901 · management and general $33,225 · fundraising $95,311
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $8,410,921 · end of year $2,539,794
-
10a · Land, buildings and equipment: cost or other basis
$37,337
-
10b · Land, buildings and equipment: accumulated depreciation
$27,605
-
10c · Land, buildings and equipment, net
beginning of year $16,220 · end of year $9,732
-
13 · Investments: program-related
beginning of year $19,514,869 · end of year $24,150,054
-
15 · Other assets
beginning of year $268,379 · end of year $386,771
-
17 · Accounts payable and accrued expenses
beginning of year $36,108 · end of year $137,002
-
19 · Deferred revenue
beginning of year $66,808 · end of year $42,469
-
25 · Other liabilities
beginning of year $7,588 · end of year $76,964
-
27 · Net assets without donor restrictions
beginning of year $28,099,885 · end of year $26,829,916
Mission and programs · 2023
Mission
CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS AND COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
Activities or mission (Part I)
COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.
-
CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY.
Expenses $8,370,237 · Grants $495,000 · Revenue $930,777
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Paul MillerPAUL MILLER
SECRETARY
- Total calculated
- $0
- Hours/week
- 10
-
Debra MillerDEBRA MILLER
PRESIDENT & CEO
- Total calculated
- $151,304
- From this org
- $151,304
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $151,304
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $151,304
-
Jeffrey GoffmanJEFFREY GOFFMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Peter StrelowPETER STRELOW
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
David MacinnisDAVID MACINNIS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Dana WhiteDANA WHITE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Ryan WilliamsRYAN WILLIAMS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Martin LehrMARTIN LEHR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Tj FarnsworthTJ FARNSWORTH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Diane KempleDIANE KEMPLE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Christopher FinazzoCHRISTOPHER FINAZZO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Tim SullivanTIM SULLIVAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Bob SmithBOB SMITH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Kathlene BalisyKATHLENE BALISY
FINANCE DIRECTOR
- Total calculated
- $175,000
- From this org
- $175,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $175,000
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $175,000
-
Lianna OrlandoLIANNA ORLANDO
VICE PRESIDENT OF RESEARCH
- Total calculated
- $225,000
- From this org
- $225,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $225,000
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $225,000
-
Michael KellyMICHAEL KELLY
CHIEF SCIENTIFIC OFFICER
- Total calculated
- $225,000
- From this org
- $225,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $225,000
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $225,000
-
Heather MedlinHEATHER MEDLIN
DIRECTOR OF CLINICAL DEVELOPMENT
- Total calculated
- $220,141
- From this org
- $220,141
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $220,141
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $220,141
-
Andrea PikeANDREA PIKE
DIRECTOR OF MARKETING
- Total calculated
- $175,000
- From this org
- $175,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $175,000
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $175,000
-
Monica UtleyMONICA UTLEY
DIRECTOR OF PROGRAMS
- Total calculated
- $170,353
- From this org
- $170,353
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $170,353
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $170,353
-
Emilie PerkinsEMILIE PERKINS
DIRECTOR OF COMMUNICATIONS
- Total calculated
- $166,267
- From this org
- $166,267
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $166,267
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $166,267
-
Kent MoraKENT MORA
FORMER CHIEF OF STAFF
- Total calculated
- $151,051
- From this org
- $151,051
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $151,051
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $151,051
-
Ryan MeardonRYAN MEARDON
FORMER VP OF DONOR RELATIONS
- Total calculated
- $183,333
- From this org
- $183,333
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $183,333
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $183,333
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Independent compensation consultant
- 3 · Compensation survey or study
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
NEUROLOGY AND NEURO CARE CENTER
$300,000
EDUCATION/ OUTREACH/ RESEARCHEDUCATION/ OUTREACH/ RESEARCH
-
THE BRIGHAM AND WOMEN'S HOSPITAL INC
$155,000
EDUCATION/ OUTREACH/ RESEARCH
-
ANALYSIS GROUP
$40,000
EDUCATION/ OUTREACH/ RESEARCH
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
501(C)(3) · DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE · CA
Taxable family on this return
Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.
Disregarded entities
Part I: entities that legally are the filer and file no return of their own.
-
CUREDUCHENNE VENTURE LLC
INVESTING IN RESEARCH · CA · income $624,635 · assets $20,206,075
Directly controlled by CURE DUCHENNE
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 27 September 2024
- IRS schema version
- 2023v5.1
- Source object
- 202402859349302250
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.