Form 990 for tax year 2022
Filed by SYNGAP RESEARCH FUND INCORPORATED.
Totals
- Total revenue
- $2,189,895
- Total expenses
- $1,192,705
- Contributions and grants received
- $1,977,386
- Grants paid
- $389,478
- Program service revenue
- $40,778
- Investment income
- $4,889
- Other revenue
- $166,842
- Total assets, end of year
- $2,109,357
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $2,109,357
- Program services expenses (Part IX)
- $990,313
- Management and general expenses
- $55,791
- Fundraising expenses
- $146,601
- Program service expenses (Part III)
- $990,313
Program services were 83.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$335,501
-
1f · All other contributions, gifts and grants
$1,641,885
-
2a · Program service revenue: Events
total $33,865 · related or exempt $33,865
-
2b · Program service revenue: Research Grant Refunds
total $6,913 · related or exempt $6,913
-
3 · Investment income
total $4,889 · excluded $4,889
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8a · Fundraising events: gross income
$166,842
-
8a · Fundraising events: contributions included on line 1c
$335,501
-
8c · Net income from fundraising events
total $166,842 · excluded $166,842
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $315,109 · program services $315,109
-
2 · Grants to domestic individuals
total $1,000 · program services $1,000
-
3 · Grants to foreign organizations and individuals
total $73,369 · program services $73,369
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $0
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $0
-
11a · Fees: management
total $55,520 · program services $6,500 · management and general $47,020 · fundraising $2,000
-
11b · Fees: legal
total $11,506 · program services $11,506
-
11c · Fees: accounting
total $1,671 · management and general $1,671
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $423,221 · program services $418,221 · fundraising $5,000
-
12 · Advertising and promotion
total $24,800 · program services $24,188 · fundraising $612
-
13 · Office expenses
total $152 · management and general $152
-
14 · Information technology
total $10,382 · program services $10,382
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $37,958 · program services $35,990 · management and general $747 · fundraising $1,221
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $2,831 · program services $2,831
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $0
-
24a · Other expenses: Other Expense
total $235,186 · program services $91,217 · management and general $6,201 · fundraising $137,768
-
24e · All other expenses
total $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $858,276 · end of year $1,766,231
-
2 · Savings and temporary cash investments
end of year $0
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
beginning of year $1,150 · end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
beginning of year $327,845 · end of year $343,126
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
27 · Net assets without donor restrictions
beginning of year $1,187,271 · end of year $2,068,811
-
28 · Net assets with donor restrictions
end of year $40,546
Mission and programs · 2022
Mission
Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems.
-
Funding of new and continued research initiatives with leading institutions.
Expenses $839,195 · Grants $382,153 · Revenue $6,913
-
Community engagement, awareness, and education.
Expenses $143,793
-
Family assistance provided to two families. One domestic and one foreign.
Expenses $7,325 · Grants $7,325
As filed on the 2022 return.
Listed in Part VII
-
J Mike Graglia
Managing Direct
- Total calculated
- $0
- Hours/week
- 45
-
Victoria Arteaga
Latin Am Direct
- Total calculated
- $0
- Hours/week
- 20
-
Rebecca Kohlhepp
Treasurer
- Total calculated
- $0
- Hours/week
- 6
-
Peter Halliburton
Development Dir
- Total calculated
- $0
- Hours/week
- 15
-
Aaron Harding
Dir at Large
- Total calculated
- $0
- Hours/week
- 6
-
Olga Bothe
Secretary
- Total calculated
- $0
- Hours/week
- 5
-
Hans Schlecht
Science Direct
- Total calculated
- $0
- Hours/week
- 6
-
Marta Caceres Dahiya
Co-Chair
- Total calculated
- $0
- Hours/week
- 10
-
Pavel Gerovich
Co-Chair
- Total calculated
- $0
- Hours/week
- 10
-
Virginie McNamar
Dir at Large
- Total calculated
- $0
- Hours/week
- 5
-
Jennifer Avery Robert
Marketing Dir
- Total calculated
- $0
- Hours/week
- 5
-
Sydney Stelmaszek
Patient Eng Dir
- Total calculated
- $0
- Hours/week
- 10
-
Nancy Leib Kessler
Dir at Large
- Total calculated
- $0
- Hours/week
- 10
-
Stella Tavilla
Dir at Large
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$100,000
Scientific Research
-
$99,909
Scientific Research
-
University of CA Davis
$68,000
Scientific Research
-
Johns Hopkins University
$40,000
Scientific Research
-
John Carroll University
$7,200
Scientific Research
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 14 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202323189349313127
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