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← BLEEDING DISORDERS ASSOCIATION OF SOUTH CAROLINA

Form 990 for tax year 2022

Filed by BLEEDING DISORDERS ASSOCIATION OF SOUTH CAROLINA.

Totals

Total revenue
$370,179
Total expenses
$376,933
Contributions and grants received
$286,662
Grants paid
$28,440
Program service revenue
$12,350
Investment income
$765
Other revenue
$70,402
Total assets, end of year
$435,698
Total liabilities, end of year
$2,546
Net assets or fund balances, end of year
$433,152
Program services expenses (Part IX)
$328,251
Management and general expenses
$48,682
Fundraising expenses
$0
Program service expenses (Part III)
$328,251

Program services were 87.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $286,662

  • 2a · Program service revenue: Advertising E-mail/Direct

    total $6,250 · excluded $6,250

  • 2b · Program service revenue: Advertising Newsletter

    total $6,100 · excluded $6,100

  • 2c · Program service revenue: Advertising Website

  • 3 · Investment income

    total $765 · related or exempt $765

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6d · Net rental income or loss

    total $0

  • 7d · Net gain or loss

    total $0

  • 8a · Fundraising events: gross income

    $127,790

  • 8b · Fundraising events: direct expenses

    $57,388

  • 8c · Net income from fundraising events

    total $70,402

  • 9c · Net income from gaming

    total $0

  • 10c · Net income from sales of inventory

    total $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $0

  • 2 · Grants to domestic individuals

    total $28,440 · program services $28,440

  • 3 · Grants to foreign organizations and individuals

    total $0

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $63,000 · program services $57,290 · management and general $5,710

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $12,750 · program services $12,750

  • 8 · Pension plan contributions

    total $0

  • 9 · Other employee benefits

    total $0

  • 10 · Payroll taxes

    total $5,890 · management and general $5,890

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $0

  • 11c · Fees: accounting

    total $0

  • 11d · Fees: lobbying

    total $0

  • 11e · Fees: professional fundraising services

    total $0

  • 11f · Fees: investment management

    total $0

  • 11g · Fees: other

    total $0

  • 12 · Advertising and promotion

    total $0

  • 13 · Office expenses

    total $22,082 · management and general $22,082

  • 14 · Information technology

    total $0

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $12,803 · management and general $12,803

  • 17 · Travel

    total $0

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $227,812 · program services $227,812

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $0

  • 23 · Insurance

    total $2,197 · management and general $2,197

  • 24a · Other expenses: Postage and Shipping

    total $1,959 · program services $1,959

  • 24e · All other expenses

    total $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $17,545 · end of year $88,409

  • 2 · Savings and temporary cash investments

    beginning of year $425,772 · end of year $346,476

  • 3 · Pledges and grants receivable

    end of year $0

  • 4 · Accounts receivable

    end of year $0

  • 5 · Loans and receivables from officers and key people

    end of year $0

  • 6 · Loans and receivables from disqualified persons

    end of year $0

  • 7 · Other notes and loans receivable

    end of year $0

  • 8 · Inventories for sale or use

    end of year $0

  • 9 · Prepaid expenses and deferred charges

    end of year $0

  • 10a · Land, buildings and equipment: cost or other basis

    $2,320

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,320

  • 10c · Land, buildings and equipment, net

    end of year $0

  • 11 · Investments: publicly traded securities

    end of year $0

  • 12 · Investments: other securities

    end of year $0

  • 13 · Investments: program-related

    end of year $0

  • 14 · Intangible assets

    end of year $0

  • 15 · Other assets

    end of year $813

  • 25 · Other liabilities

    beginning of year $3,411 · end of year $2,546

  • 27 · Net assets without donor restrictions

    beginning of year $439,906 · end of year $433,152

Mission and programs · 2022

Mission

To raise awareness for and advocate on behalf of persons with bleeding disorders and their families provide education and supportive services and promote ongoing research to improve the quality of life for those affected.

  • Family Educational Camp: This three-day weekend event was available to individuals and families free of charge with direct and immediate family members who either have a bleeding disorder, are carriers of a bleeding disorder or have an immediate family member affected. It was located in the low country to provide educational and supportive services to our community who reside in the low country and to provide upstate and mid-state participants a coastal experience. Education, supportive services, and family connections with community members was an optimum outcome of this weekend event. This year, we support a health equity summit within the event to address health inequities within the South Carolina Bleeding Disorders Community. Attendees included 42 families, approximately 180 participants, speakers and guests. We provided an educational and networking component specifically designed for families with children ages 0-6, 7-12, and our teens 13-18. We also provided simultaneously an adult educational track for our childless adults. Exhibiting of treatment therapies and services was available throughout the event. We provided 8 sessions throughout the weekend with national educators on varies bleeding disorders issues addressing their needs to include; insurance education, school and healthcare self-advocacy, treatment, research, local and national healthcare public policies updates and other related educational and health equity needs. This event is free of charge to all participants.

    Expenses $79,525

  • BDASC Annual State Meeting and Educational Conference Day: This year we provide our members our annual state-wide meeting. We reported on the years financials and accomplishments. Board of Directors were recognized, and awards were given to our community members for yearly accomplishments. In addition, the HELLO Conference, Helping Embrace Life Learning Opportunities provided presentations and educational programs to support all areas of living well with bleeding disorders so those affected can reach their highest potentials without boundaries. This was a two-day event open to all members of the bleeding disorders community in South Carolina, healthcare providers, and associations. The attendance was over 225, locally and nationally. Our Friday evening dinner opening event included BDASCs mission moments, awards, and a key note presentation. Educational presentations and breakouts were available on Saturday. Childcare is provided. A special program was provided also for the teens. The event concluded after dinner on Saturday. On Saturday, exhibiting was provided for participants to interface one-to-one with participating home care and manufacturing companies and their representatives to explore new treatment therapies and services.

    Expenses $68,865

  • BDASC Advocacy/Legislative Days in Columbia This event was attended by approximately 60 individuals; which included our members affected by bleeding disorders, healthcare providers who assist our community members with services and treatment, local and national organization with interest in assuring access to quality care and treatment, the states Department of Health and Environmental Control, Children with Special Health Care Needs, and our Industry partners. The Chapter provides informational support to community members in regards to advocacy awareness and training, education on health care access initiatives the chapter is working on, and addresses any concerns, while educating our elected officials on bleeding disorders. We provided awareness support and materials to government and state agencies to help promote a greater understanding of the challenges faced by people with bleeding disorders.

    Expenses $37,244

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Suzanne Martin

    Director

    Total calculated
    $63,000
    From this org
    $63,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • Wendy Legrand

    Director

    Total calculated
    $0
    Hours/week
    2
  • Christine Evans

    Director

    Total calculated
    $0
    Hours/week
    2
  • James Whitmire

    Director

    Total calculated
    $0
    Hours/week
    2
  • Edna Rabb

    Director

    Total calculated
    $0
    Hours/week
    2
  • Taylor Upton

    Director

    Total calculated
    $0
    Hours/week
    2
  • Susie Maloy

    Director

    Total calculated
    $0
    Hours/week
    2
  • Shelley Crisp

    President

    Total calculated
    $0
    Hours/week
    3
  • Aaron Smith

    Vice President

    Total calculated
    $0
    Hours/week
    3
  • Joey Karkowiak

    Treasurer

    Total calculated
    $0
    Hours/week
    2
  • Samantha Javorka

    Secretary

    Total calculated
    $0
    Hours/week
    3

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
13 April 2023
IRS schema version
2022v5.0
Source object
202331039349301003

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