Totals
- Total revenue
- $845,716
- Total expenses
- $871,099
- Contributions and grants received
- $623,437
- Grants paid
- $671,155
- Program service revenue
- $0
- Investment income
- $13,030
- Other revenue
- $209,249
- Total assets, end of year
- $781,549
- Total liabilities, end of year
- $3,731
- Net assets or fund balances, end of year
- $777,818
- Program services expenses (Part IX)
- $678,470
- Management and general expenses
- $38,449
- Fundraising expenses
- $154,180
- Program service expenses (Part III)
- $678,470
Program services were 77.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$623,437
-
3 · Investment income
total $13,030 · excluded $13,030
-
8a · Fundraising events: gross income
$304,440
-
8b · Fundraising events: direct expenses
$95,265
-
8c · Net income from fundraising events
total $209,175 · excluded $209,175
-
11a · Other revenue: Other
total $74 · related or exempt $74
-
11e · Other revenue, total
$74
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $671,155 · program services $671,155
-
7 · Other salaries and wages
total $69,285 · fundraising $69,285
-
8 · Pension plan contributions
total $2,079 · fundraising $2,079
-
9 · Other employee benefits
total $231 · fundraising $231
-
10 · Payroll taxes
total $5,347 · fundraising $5,347
-
11c · Fees: accounting
total $8,874 · management and general $8,874
-
11g · Fees: other
total $76,811 · program services $836 · management and general $11,696 · fundraising $64,279
-
12 · Advertising and promotion
total $7,262 · program services $6,461 · fundraising $801
-
13 · Office expenses
total $22,474 · program services $18 · management and general $13,949 · fundraising $8,507
-
19 · Conferences, conventions and meetings
total $2,484 · fundraising $2,484
-
23 · Insurance
total $4,482 · management and general $3,815 · fundraising $667
-
24a · Other expenses: Dues and Subscriptions
total $615 · management and general $115 · fundraising $500
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $47,815 · end of year $15,521
-
2 · Savings and temporary cash investments
beginning of year $753,285 · end of year $660,358
-
4 · Accounts receivable
beginning of year $9,800 · end of year $105,670
-
17 · Accounts payable and accrued expenses
beginning of year $7,699 · end of year $3,731
-
27 · Net assets without donor restrictions
beginning of year $799,201 · end of year $668,148
-
28 · Net assets with donor restrictions
beginning of year $4,000 · end of year $109,670
Mission and programs · 2024
Mission
To fund medical research to find an effective treatment to save or restore the vision of those affected with Usher Syndrome Type 1F.
-
2024 Grants to Research Labs:Harvard Medical School, David Corey Lab: $291,155The Salk Institute, Samuel Pfaff Lab: $150,000University of Oregon Institute of Neuroscience, Monte Westerfield Lab: $30,0002024 Grant for year 3 of RUSH1F, 4-year natural history study in partnership with Foundation Fighting Blindness: $200,000Total grants awarded in 2024: $671,155 Key Research advances realized in 2024: Harvard mini-gene in preclinical testing produced stunning results in nonhuman primate retinas. Harvard team published the following papers in peer-reviewed jounals: o PCDH15 dual-AAV gene therapy for deafness and blindness in Usher syndrome type 1F models o Elasticity and Thermal Stability are Key Determinants of Hearing Rescue by Mini-Protocadherin-15 Proteins Funded partnership between the Corey Lab at Harvard Medical School and the Pfaff Lab atThe Salk Institute to complete development of dual vector gene therapy using proprietary RNA End Joining (REJ) approach and begin testing of this gene therapy on mouse model at Harvard
Expenses $678,470 · Grants $671,155
As filed on the 2024 return.
Listed in Part VII
-
Joshua Cohen
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Rachel Root
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Julian Seewald
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Sari L Springer
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Heather Rosenstein
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Eric Halper
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Margi Levitt
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Dorie Shapiro
Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Melissa Chaikof
Chair and Trustee
- Total calculated
- $0
- Hours/week
- 40
-
Elliot Chaikof
Vice Chair and Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Frank Gentile
Treasurer and Trustee
- Total calculated
- $0
- Hours/week
- 2
-
Jared Root
Secretary and Trustee
- Total calculated
- $0
- Hours/week
- 4
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$291,155
-
$200,000
-
$150,000
-
University of Oregon Foundation
$30,000
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 11 March 2025
- IRS schema version
- 2024v5.0
- Source object
- 202540719349300329
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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