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Nonprofiteer
← GREAT LAKES HEMOPHILIA FOUNDATION INC

Form 990 for tax year 2023

Filed by GREAT LAKES HEMOPHILIA FOUNDATION INC.

Totals

Total revenue
$1,475,801
Total expenses
$1,545,444
Contributions and grants received
$1,425,541
Grants paid
$665,656
Program service revenue
$6,416
Investment income
$90,370
Other revenue
-$46,526
Total assets, end of year
$3,069,458
Total liabilities, end of year
$620,128
Net assets or fund balances, end of year
$2,449,330
Program services expenses (Part IX)
$1,170,885
Management and general expenses
$277,741
Fundraising expenses
$96,818
Program service expenses (Part III)
$1,170,885

Program services were 75.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $131,543

  • 1e · Government grants (contributions)

    $857,269

  • 1f · All other contributions, gifts and grants

    $436,729

  • 1g · Noncash contributions included above

    $8,364

  • 2a · Program service revenue: EDUCATIONAL EVENT REVENUE

    total $6,416 · related or exempt $6,416

  • 3 · Investment income

    total $67,757 · excluded $67,757

  • 7a · Gross sales of assets other than inventory

    securities $99,116

  • 7b · Less cost or other basis and sales expenses

    securities $76,503

  • 7c · Gain or loss

    securities $22,613

  • 7d · Net gain or loss

    total $22,613 · excluded $22,613

  • 8a · Fundraising events: gross income

    $27,235

  • 8a · Fundraising events: contributions included on line 1c

    $131,543

  • 8b · Fundraising events: direct expenses

    $82,861

  • 8c · Net income from fundraising events

    total -$55,626 · excluded -$55,626

  • 11a · Other revenue: ADVERTISING REVENUE

    total $9,100 · unrelated business $9,100

  • 11e · Other revenue, total

    $9,100

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $579,072 · program services $579,072

  • 2 · Grants to domestic individuals

    total $86,584 · program services $86,584

  • 5 · Compensation of officers, directors and key employees

    total $173,995 · program services $100,054 · management and general $44,877 · fundraising $29,064

  • 7 · Other salaries and wages

    total $302,786 · program services $174,114 · management and general $78,095 · fundraising $50,577

  • 8 · Pension plan contributions

    total $8,959 · program services $5,152 · management and general $2,311 · fundraising $1,496

  • 9 · Other employee benefits

    total $34,547 · program services $19,866 · management and general $8,910 · fundraising $5,771

  • 10 · Payroll taxes

    total $34,767 · program services $19,992 · management and general $8,968 · fundraising $5,807

  • 11b · Fees: legal

    total $2,780 · management and general $2,780

  • 11c · Fees: accounting

    total $50,900 · management and general $50,900

  • 11f · Fees: investment management

    total $18,338 · management and general $18,338

  • 11g · Fees: other

    total $12,485 · program services $10,008 · management and general $2,477

  • 13 · Office expenses

    total $44,747 · program services $37,595 · management and general $6,629 · fundraising $523

  • 16 · Occupancy

    total $25,455 · management and general $25,455

  • 17 · Travel

    total $6,712 · program services $5,340 · management and general $457 · fundraising $915

  • 19 · Conferences, conventions and meetings

    total $1,756 · program services $1,756

  • 22 · Depreciation, depletion and amortization

    total $5,790 · management and general $5,790

  • 23 · Insurance

    total $8,144 · management and general $8,144

  • 24a · Other expenses: PATIENT CARE

    total $131,966 · program services $127,161 · management and general $4,805

  • 24b · Other expenses: DUES AND SUBSCRIPTIONS

    total $10,304 · program services $762 · management and general $7,466 · fundraising $2,076

  • 24c · Other expenses: COMMUNICATIONS

    total $5,357 · program services $3,429 · management and general $1,339 · fundraising $589

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $71,953 · end of year $30,362

  • 2 · Savings and temporary cash investments

    beginning of year $138,736 · end of year $120,554

  • 3 · Pledges and grants receivable

    beginning of year $238,119 · end of year $205,509

  • 4 · Accounts receivable

    beginning of year $72,292 · end of year $122,989

  • 9 · Prepaid expenses and deferred charges

    beginning of year $4,040 · end of year $11,846

  • 10a · Land, buildings and equipment: cost or other basis

    $106,013

  • 10b · Land, buildings and equipment: accumulated depreciation

    $11,892

  • 10c · Land, buildings and equipment, net

    beginning of year $1,133 · end of year $94,121

  • 11 · Investments: publicly traded securities

    beginning of year $1,927,272 · end of year $2,321,677

  • 15 · Other assets

    beginning of year $13,088 · end of year $162,400

  • 17 · Accounts payable and accrued expenses

    beginning of year $235,215 · end of year $232,461

  • 19 · Deferred revenue

    beginning of year $3,500 · end of year $19,250

  • 23 · Secured mortgages and notes payable

    end of year $160,000

  • 25 · Other liabilities

    beginning of year $13,152 · end of year $208,417

  • 27 · Net assets without donor restrictions

    beginning of year $2,066,674 · end of year $2,363,825

  • 28 · Net assets with donor restrictions

    beginning of year $148,092 · end of year $85,505

Mission and programs · 2023

Mission

TO EDUCATE, SUPPORT AND ADVOCATE FOR THE BLEEDING DISORDERS COMMUNITY OF WISCONSIN.

  • PATIENT CARE: GREAT LAKES HEMOPHILIA FOUNDATION ADVANCES THE COMPREHENSIVE CARE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ITS PARTICIPATION IN AN INTEGRATED REGIONAL NETWORK OF HEMOPHILIA TREATMENT CENTERS THROUGH A GRANT FROM HRSA. THE DESIGN OF THE HEMOPHILIA TREATMENT CARE NETWORK PROVIDES PATIENTS WITH ACCESS TO MULTIPLE DISCIPLINES, EACH OF WHICH HAS SPECIFIC EXPERTISE IN BLEEDING DISORDERS CARE. THE HEMOPHILIA MODEL HAS BEEN ONE OF THE MOST SUCCESSFULLY MANAGED PUBLIC HEALTH PROGRAMS IN THE UNITED STATES. THE SUBSTANTIAL SOCIOECONOMIC BENEFITS OF COMPREHENSIVE SERVICES FOR THE HEMOPHILIA POPULATION ARE WELL DOCUMENTED AND INCLUDE DECREASED HOSPITAL IN-PATIENT-DAYS, INCREASED NUMBERS OF PATIENTS WITH THIRD-PARTY COVERAGE, LOWER COST OF CARE, AND DECREASED HEALTH CARE RESOURCE UTILIZATION. MORE IMPORTANTLY, STUDIES INDICATE THAT PERSONS RECEIVING CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK HAVE A REDUCTION IN RISK OF DEATH DESPITE HAVING MORE SEVERE CLINICAL SYMPTOMS COMPARED TO THOSE RECEIVING NON-TREATMENT-CENTER CARE.

    Expenses $621,099 · Grants $298,000

  • COMMUNITY SERVICES AND PROFESSIONAL EDUCATION AND TRAINING:GREAT LAKES HEMOPHILIA FOUNDATION PROVIDES A VARIETY OF OPPORTUNITIES FOR INDIVIDUALS WITH BLEEDING DISORDERS. THE WISCONSIN BLEEDING DISORDERS CONFERENCE AND YOUTH PROGRAMS LIKE CAMP KLOTTY PINE PROVIDE INDIVIDUALS WITH BLEEDING DISORDERS AN OPPORTUNITY TO NETWORK WITH OTHERS LIVING WITH A BLEEDING DISORDER. CAMP SCHOLARSHIPS ARE PROVIDED TO YOUTH. AT CAMP, THEY ARE AMONG OTHER KIDS WITH BLEEDING DISORDERS AND OFTEN LEARN TO INFUSE THEREFORE GAINING INDEPENDENCE.INDIVIDUALS WITH CHALLENGING FINANCIAL SITUATIONS MAY APPLY FOR EMERGENCY FINANCIAL ASSISTANCE THROUGH GREAT LAKES HEMOPHILIA FOUNDATION. MANY INDIVIDUALS WITH BLEEDING DISORDERS ARE AT OR JUST ABOVE THE FEDERAL POVERTY LEVELS. GREAT LAKES HEMOPHILIA FOUNDATION PROVIDES ASSISTANCE TO ENSURE INDIVIDUALS WITH BLEEDING DISORDERS CAN RETAIN HEALTH INSURANCE COVERAGE BY ASSISTING WITH INSURANCE PREMIUMS. IN ADDITION, FUNDS ARE AVAILABLE TO ASSIST WITH MEDICAL BILLS AND BASIC LIVING NEEDS.GREAT LAKES HEMOPHILIA FOUNDATION IS COMMITTED TO ASSESSING REGIONAL TRAINING NEEDS AND PROVIDING TRAINING OPPORTUNITIES IN ITS ROLE AS THE REGIONAL CORE CENTER. AS THE REGIONAL CORE CENTER, STAFF PROVIDES TECHNICAL ASSISTANCE TO HEMOPHILIA TREATMENT CENTER STAFF THROUGH TRAINING USING A VARIETY OF TECHNIQUES. NEW PERSONNEL TRAINING IS CARRIED OUT: 1) BY STAFF EXCHANGE; 2) THROUGH ON-THE-JOB TRAINING BY OTHER TEAM MEMBERS DURING TEAM MEETINGS AND CLINIC USING A DEFINED SET OF DEMONSTRATED SKILLS AND KNOWLEDGE; 3) AT PROFESSIONAL MEETINGS; 4) AT TRAINING PROGRAMS LIKE THE PARTNERS PROGRAM; 5) THROUGH CONTACT WITH OTHER PROFESSIONALS ON A STATE, REGIONAL, AND NATIONAL LEVEL; AND 6) THROUGH TRAINING FROM REGIONAL CORE STAFF THAT INCLUDES INFORMATIONAL RESOURCE EMAILS, CALLS AND VIDEO CALLS.AS THE REGIONAL CORE CENTER, GREAT LAKES HEMOPHILIA FOUNDATION IS ALSO COMMITTED TO HELPING EXPERIENCED STAFF UPDATE THEIR KNOWLEDGE AND SKILLS BY PROVIDING ONGOING OPPORTUNITIES FOR PROFESSIONAL TRAINING AND GROWTH. THESE OPPORTUNITIES INCLUDE, BUT ARE NOT LIMITED TO PROVIDING DISCIPLE-SPECIFIC SYMPOSIA AND ANNUAL REGIONAL MEETINGS.

    Expenses $245,403 · Grants $170,592 · Revenue $6,416

  • RESEARCH/SURVEILLANCE: GREAT LAKES HEMOPHILIA FOUNDATION SUPPORTS THE SYSTEMATIC COORDINATED ASSESSMENT AND RECORDING OF HEALTH OUTCOMES OF INDIVIDUALS WITH BLEEDING DISORDERS IN A NATIONAL DATABASE. GREAT LAKES HEMOPHILIA FOUNDATION IS A SUB GRANTEE OF THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) FOR THE CDC COMMUNITY COUNTS PROJECT. THIS DATABASE MONITORS THE HEALTH OF THE BLEEDING DISORDERS POPULATION WITH THE GOAL OF OPTIMIZED QUALITY OF LIFE FOR THOSE AFFECTED BY BLEEDING DISORDERS.

    Expenses $174,655 · Grants $120,144

  • PUBLIC AND PATIENT EDUCATION:GREAT LAKES HEMOPHILIA FOUNDATION SUPPORTS A COMPREHENSIVE NETWORK OF HEALTH PROFESSIONALS AND PATIENTS AND THEIR FAMILIES IN PROVIDING PUBLIC EDUCATION ABOUT BLEEDING DISORDERS. HEALTH CARE PROFESSIONALS - THROUGH THE FEDERAL GRANT SUPPORTED REGIONAL NETWORK - EDUCATE TEACHERS, COACHES, EMERGENCY ROOM PERSONNEL, DENTISTS AND OTHER INDIVIDUALS WHO PROVIDE SUPPORT TO INDIVIDUALS WITH BLEEDING DISORDERS TO ENSURE SAFE AND HEALTHY OUTCOMES FOR THEIR PATIENTS. IN ADDITION, GREAT LAKES HEMOPHILIA FOUNDATION VOLUNTEERS ATTEND HEALTH FAIRS AND OTHER EVENTS TO HEIGHTEN THE PUBLIC'S UNDERSTANDING OF BLEEDING DISORDERS AND THE SYMPTOMS TO ENCOURAGE WOMEN AND GIRLS, IN PARTICULAR, TO SEEK MEDICAL SUPPORT FOR OTHERWISE POTENTIALLY UNDIAGNOSED CONDITIONS. GREAT LAKES HEMOPHILIA FOUNDATION ALSO MANAGES A STRONG VOLUNTEER ADVOCACY PROGRAM WHICH EDUCATES LEGISLATORS AND OTHER PUBLIC OFFICIALS ON THE INTERESTS AND CHALLENGES OF INDIVIDUALS LIVING WITH BLEEDING DISORDERS RELATED TO PUBLIC POLICY ISSUES. GLHF COORDINATES AND MANAGES A LARGE EDUCATIONAL CONFERENCE ANNUALLY FOR PATIENTS AND THEIR FAMILIES.

    Expenses $129,728 · Grants $76,919

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Joshua Welsh

    PRESIDENT

    Total calculated
    $0
    Hours/week
    0.3

  • Dave Amoroso

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    0.3

  • Bruce Carter

    SECRETARY

    Total calculated
    $0
    Hours/week
    0.3

  • Dustin Van Peursem

    TREASURER

    Total calculated
    $0
    Hours/week
    0.3

  • Michelle Borreson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.3

  • Tracie Fechter

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.3

  • David Peterson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.3

  • Bob Montgomery

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.3

  • Beverly Peterson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.3

  • Danielle Leitner Baxter

    EXECUTIVE DIRECTOR

    Total calculated
    $159,761
    From this org
    $150,755
    From related orgs
    $0
    Other
    $9,006
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $145,755
    Bonus
    $5,000
    Other
    $0
    Deferred
    $5,669
    Nontaxable benefits
    $3,337
    Filer's total
    $159,761

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
SCHEDULE J, PART II, COLUMN (B)(II) REPORTS DISCRETIONARY INCENTIVE AMOUNTS THAT WERE APPROVED BY THE BOARD BASED UPON PERFORMANCE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

  • VERSITI WISCONSIN INC

    $71,720

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • THE BLEEDING AND CLOTTING DISORDERS INSTITUTE

    $60,481

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • MAYO CLINIC

    $56,415

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • RUSH UNIVERSITY MEDICAL CENTER

    $54,477

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • ANN & ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO

    $53,454

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • CHILDREN'S MINNESOTA

    $46,488

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • FAIRVIEW HEALTH SERVICES

    $41,466

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • NORTHWESTERN UNIVERSITY

    $41,179

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • SANFORD MEDICAL CENTER FARGO

    $39,824

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

  • HEMOPHILIA OUTREACH OF WISCONSIN INC

    $39,353

    TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2023
Filed
8 August 2025
IRS schema version
2023v6.0
Source object
202522239349301117

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.