Totals
- Total revenue
- $225,817
- Total expenses
- $157,051
- Contributions and grants received
- $225,817
- Grants paid
- $89,475
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $797,225
- Total liabilities, end of year
- $14,148
- Net assets or fund balances, end of year
- $783,077
- Program services expenses (Part IX)
- $89,475
- Management and general expenses
- $67,576
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $89,475
Program services were 57.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$225,817
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $89,475 · program services $89,475
-
11c · Fees: accounting
total $5,540 · management and general $5,540
-
13 · Office expenses
total $830 · management and general $830
-
17 · Travel
total $3,904 · management and general $3,904
-
19 · Conferences, conventions and meetings
total $1,904 · management and general $1,904
-
24a · Other expenses: PROFESSIONAL FEES
total $48,410 · management and general $48,410
-
24b · Other expenses: GRAPHIC DESIGN - WEB SI
total $5,118 · management and general $5,118
-
24c · Other expenses: COMPUTER & INTERNET EXP
total $1,248 · management and general $1,248
-
24d · Other expenses: BANK SERVICE CHARGES
total $897 · management and general $897
-
24e · All other expenses
total -$275 · management and general -$275
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $609,554 · end of year $712,225
-
4 · Accounts receivable
beginning of year $135,000 · end of year $85,000
-
17 · Accounts payable and accrued expenses
beginning of year $14,148 · end of year $14,148
-
27 · Net assets without donor restrictions
beginning of year $730,406 · end of year $783,077
Mission and programs · 2022
Mission
TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE.
-
GRANTS & SCIENTIFIC MEETINGS. CONTINUED OUR EFFORTS SUPPORTING "SOAR" WITH DIRECT GRANTS TO RESEARCH FACILITIES, SCIENTISTS AND CLINICIANS TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE.
Expenses $89,475 · Grants $89,475
As filed on the 2022 return.
Listed in Part VII
-
Jonathan JacobyJONATHAN JACOBY
EXECUTIVE DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
Jack BendheimJACK BENDHEIM
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Susan Jacoby SternSUSAN JACOBY STERN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Debra PellDEBRA PELL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
UNIVERSITY OF IL AT CHICAGO
$27,500
TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE.
-
MICHIGAN MEDICINE OFFICE OF DEVELPMENT
$25,000
TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE.
-
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
$25,000
TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE.
-
UI CENTER FOR ADVANCEMENT
$25,000
TO FIND A CURE FOR THE SIXTY-FOUR STRAINS OF LYSOSOMAL DISEASE.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 24 August 2023
- IRS schema version
- 2022v5.0
- Source object
- 202342519349301609
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.