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Nonprofiteer
← THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC

Form 990 for tax year 2023

Filed by THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC.

Totals

Total revenue
$3,091,217
Total expenses
$1,909,354
Contributions and grants received
$3,012,372
Grants paid
$93,672
Program service revenue
$43,679
Investment income
$35,166
Other revenue
$0
Total assets, end of year
$1,853,170
Total liabilities, end of year
$50,510
Net assets or fund balances, end of year
$1,802,660
Program services expenses (Part IX)
$873,639
Management and general expenses
$404,265
Fundraising expenses
$631,450
Program service expenses (Part III)
$873,639

Program services were 45.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $3,012,372

  • 2a · Program service revenue: PROGRAM REVENUE

    total $43,679 · related or exempt $43,679

  • 3 · Investment income

    total $35,166 · excluded $35,166

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $83,000 · program services $83,000

  • 2 · Grants to domestic individuals

    total $10,672 · program services $10,672

  • 5 · Compensation of officers, directors and key employees

    total $130,000 · program services $87,100 · management and general $31,200 · fundraising $11,700

  • 7 · Other salaries and wages

    total $142,388 · program services $95,394 · management and general $33,773 · fundraising $13,221

  • 8 · Pension plan contributions

    total $10,033 · program services $6,722 · management and general $2,408 · fundraising $903

  • 9 · Other employee benefits

    total $331 · program services $331

  • 10 · Payroll taxes

    total $23,975 · program services $16,063 · management and general $5,754 · fundraising $2,158

  • 11b · Fees: legal

    total $3,394 · management and general $3,394

  • 11c · Fees: accounting

    total $12,750 · management and general $12,750

  • 11g · Fees: other

    total $660,641 · program services $425,414 · management and general $93,777 · fundraising $141,450

  • 12 · Advertising and promotion

    total $16,304 · program services $1,250 · fundraising $15,054

  • 14 · Information technology

    total $119,295 · program services $20 · management and general $118,479 · fundraising $796

  • 16 · Occupancy

    total $96,515 · program services $41,731 · management and general $51,119 · fundraising $3,665

  • 19 · Conferences, conventions and meetings

    total $288,493 · program services $41,044 · management and general $38,160 · fundraising $209,289

  • 24a · Other expenses: EVENT PRODUCTION

    total $231,472 · program services $4,279 · management and general $4,295 · fundraising $222,898

  • 24b · Other expenses: PATIENT EDUCATION

    total $69,155 · program services $58,634 · management and general $556 · fundraising $9,965

  • 24c · Other expenses: DUES & SUBSCRIPTIONS

    total $10,636 · program services $1,985 · management and general $8,300 · fundraising $351

  • 24d · Other expenses: MISCELLANEOUS

    total $300 · management and general $300

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $456,894 · end of year $535,193

  • 2 · Savings and temporary cash investments

    beginning of year $253,810 · end of year $1,317,977

  • 17 · Accounts payable and accrued expenses

    end of year $40,040

  • 25 · Other liabilities

    beginning of year $3,959 · end of year $10,470

  • 27 · Net assets without donor restrictions

    beginning of year $0 · end of year $1,802,660

  • 28 · Net assets with donor restrictions

    beginning of year $706,745 · end of year $0

Mission and programs · 2023

Mission

THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT.

  • SPARK IS A TWO-DAY IN-PERSON PATIENT CONFERENCE HELD IN WASHINGTON,DC, ATTENDED BY 250 PATIENTS AND THEIR FAMILY MEMBERS. THE EVENT EDUCATES PATIENTS AND CREATES A NETWORK.

    Expenses $439,180 · Grants $2,465 · Revenue $43,679

  • EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY, INCLUDING PATIENT AID.

    Expenses $351,459 · Grants $8,207

  • RESEARCH GRANTS ARE PROVIDED TO THE UNIVERSITY OF ALABAMA BIRMINGHAM.

    Expenses $83,000 · Grants $83,000

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Leonard Erlanger

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Brian Parlato

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Mary Kate Schneider

    SECRETARY

    Total calculated
    $0
    Hours/week
    5
  • Susan Smith

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • Jody Morse

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Margaret K Warner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Julie Scroggins

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Michael Warner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Edward Schneider

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Harold Cotler

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Bonnie Schneider

    EXECUTIVE DIRECTOR

    Total calculated
    $134,767
    From this org
    $130,000
    From related orgs
    $0
    Other
    $4,767
    Hours/week
    35

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

  • UNIVERSITY OF ALABAMA BIRMINGHAM

    $83,000

    RESEARCH

Provenance

Return type
form_990
Tax year
2023
Filed
13 November 2024
IRS schema version
2023v5.1
Source object
202433209349302723

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