Totals
- Total revenue
- $217,991
- Total expenses
- $201,454
- Contributions and grants received
- $217,991
- Grants paid
- $200,000
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $22,111
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $22,111
- Program services expenses (Part IX)
- $200,000
- Management and general expenses
- $1,454
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $200,000
Program services were 99.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$217,991
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $200,000 · program services $200,000
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $0
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $0
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $875 · management and general $875
-
11d · Fees: lobbying
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $0
-
12 · Advertising and promotion
total $0
-
13 · Office expenses
total $50 · management and general $50
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $0
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $529 · management and general $529
-
24e · All other expenses
total $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $5,574 · end of year $22,111
-
27 · Net assets without donor restrictions
beginning of year $5,574 · end of year $22,111
Mission and programs · 2023
Mission
THE CRUSH RETT SYNDROME MISSION IS TO RAISE AWARENESS AND FUNDING TO ULTIMATELY FIND A CURE FOR RETT SYNDROME.
-
IN 2023, WE SUCCESSFULLY RAISED FUNDS THROUGH OUR FUNDRAISING EVENTS AND OUR SOCIAL MEDIA AWARENESS EFFORTS. WE CONTINUED TO KEEP CONTROL OF OUR OPERATING EXPENSES BY HAVING EFFECTIVE FUNDRAISERS THAT REQUIRE MINIMAL UPFRONT COSTS AND RISKS. AS A RESULT, WE WERE ABLE TO USE MORE FUNDS TO SUPPORT EXCITING RESEARCH ON WAYS TO CURE RETT SYNDROME. WE PROVIDED 200,000 TO SUPPORT GENE THERAPY AND RNA EDITING RESEARCH AGAIN THIS YEAR. WE ARE EXCITED AT THE NEWS THAT THE FIRST TWO HUMAN CLINICAL TRIALS FOR A POTENTIAL GENE THERAPY CURE HAVE BEEN APPROVED WITH SEVERAL FEMALE ADULTS AND ADOLESCENTS DOSED. THE PRELIMINARY RESULTS SHOW VERY GOOD TOLERANCE WITH NO REPORTED INDICATIONS OF SAFETY CONCERNS. ONE OF THE TRIALS HAS REPORTED SOME SIGNIFICANT IMPROVEMENTS IN FINE AND GROSS MOTOR FUNCTION IN THEIR ADULT TRIAL PARTICIPANTS.
Expenses $200,000 · Grants $200,000
As filed on the 2023 return.
Listed in Part VII
-
Allison GrayALLISON GRAY
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Katherine ThompsonKATHERINE THOMPSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Abbie MoseleyABBIE MOSELEY
DIRECTOR THRU 12/2023
- Total calculated
- $0
- Hours/week
- 1
-
Patricia GrayPATRICIA GRAY
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$200,000
Rett Syndrome research for a cure
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 3 April 2024
- IRS schema version
- 2023v5.0
- Source object
- 202430959349301338
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