Totals
- Total revenue
- $812,637
- Total expenses
- $801,167
- Contributions and grants received
- $740,948
- Grants paid
- $5,763
- Program service revenue
- $69,862
- Investment income
- $1,827
- Other revenue
- $0
- Total assets, end of year
- $544,636
- Total liabilities, end of year
- $77,889
- Net assets or fund balances, end of year
- $466,747
- Program services expenses (Part IX)
- $586,696
- Management and general expenses
- $101,785
- Fundraising expenses
- $112,686
- Program service expenses (Part III)
- $586,696
Program services were 73.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$740,948
-
2a · Program service revenue: ADVERTISING INCOME
total $69,862 · unrelated business $69,862
-
3 · Investment income
total $7,061 · excluded $7,061
-
7a · Gross sales of assets other than inventory
securities $482,675
-
7b · Less cost or other basis and sales expenses
securities $487,909
-
7c · Gain or loss
securities -$5,234
-
7d · Net gain or loss
total -$5,234 · related or exempt -$5,234
Functional expenses
Part IX, the statement of functional expenses.
-
2 · Grants to domestic individuals
total $5,763 · program services $5,763
-
7 · Other salaries and wages
total $317,472 · program services $169,439 · management and general $54,728 · fundraising $93,305
-
10 · Payroll taxes
total $33,960 · program services $18,270 · management and general $7,979 · fundraising $7,711
-
11g · Fees: other
total $30,649 · management and general $19,900 · fundraising $10,749
-
13 · Office expenses
total $24,367 · program services $9,483 · management and general $13,963 · fundraising $921
-
23 · Insurance
total $4,499 · program services $1,407 · management and general $3,092
-
24a · Other expenses: PROGRAM EVENTS AND CONVEN
total $240,011 · program services $237,888 · management and general $2,123
-
24b · Other expenses: PROGRAM CONSULTANTS
total $89,288 · program services $89,288
-
24c · Other expenses: PROG MATERIALS
total $55,158 · program services $55,158
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $231,535 · end of year $264,335
-
4 · Accounts receivable
end of year $54,147
-
11 · Investments: publicly traded securities
beginning of year $207,904 · end of year $226,154
-
17 · Accounts payable and accrued expenses
beginning of year $585 · end of year $77,889
-
27 · Net assets without donor restrictions
beginning of year $369,354 · end of year $400,747
-
28 · Net assets with donor restrictions
beginning of year $69,500 · end of year $66,000
Mission and programs · 2023
Mission
TO PROVIDE ASSISTANCE TO INDIVIDUALS AND FAMILIES AFFECTED BY RARE CHRONIC DISORDERS.
-
TO PROVIDE ASSISTANCE TO INDIVIDUALS AND FAMILIES AFFECTED BY RARE CHRONIC DISORDERS.
Expenses $586,696 · Grants $5,763 · Revenue $69,862
As filed on the 2023 return.
Listed in Part VII
-
Antonio BurgessANTONIO BURGESS
PRESIDENT/DI
- Total calculated
- $0
-
Barbara ForssBARBARA FORSS
CLERK/DIRECT
- Total calculated
- $0
-
Janet BrewerJANET BREWER
EXECUTIVE DI
- Total calculated
- $104,909
- From this org
- $101,853
- From related orgs
- $0
- Other
- $3,056
- Hours/week
- 40
-
Trisha Osborne CPATRISHA OSBORNE CPA
TREASURER/DI
- Total calculated
- $12,900
- From this org
- $12,900
- From related orgs
- $0
- Other
- $0
- Hours/week
- 5
-
Joanna BerkowitzJOANNA BERKOWITZ
DIRECTOR
- Total calculated
- $0
-
Stacy PechterSTACY PECHTER
DIRECTOR
- Total calculated
- $0
-
Gary McClainGARY MCCLAIN
DIRECTOR
- Total calculated
- $0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 20 August 2024
- IRS schema version
- 2023v5.0
- Source object
- 202423069349301687
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.