GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS

As filed

Subsection

03

NTEE code

G12

Classification

1000

Street

1604 PHILADELPHIA PIKE PMB 102

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

• FAMILY AND SCIENTIFIC CONFERENCETHE 2024 FAMILY AND SCIENTIFIC CONFERENCE WAS HELD IN WASHINGTON, D.C., WHERE THE GFPD HOSTED THE FDA FOR AN EXTERNALLY-LED PATIENT-FOCUSED DRUG DEVELOPMENT (EL-PFDD) MEETING. THE MEETING WAS ATTENDED BY 281 INDIVIDUALS, INCLUDING 35 DIAGNOSED PATIENTS, 82 PRIMARY CAREGIVERS, AND OTHER ADVOCATES AND PROFESSIONALS. THIS MEETING WAS THE FOCAL POINT OF THE CONFERENCE AND UNDERSCORED THE NEED FOR BETTER TREATMENTS THAT ADDRESS THE BROAD SYMPTOMS AND IMPACTS OF PEROXISOMAL DISORDERS. A FINAL VOICE OF THE PATIENT REPORT WILL BE PUBLISHED IN 2025 AS AN ANALYSIS OF THE EL-PFDD MEETING. THE CONFERENCE ALSO PROVIDED FAMILIES WITH MEDICAL AND RESEARCH UPDATES FROM OUR MEDICAL AND SCIENTIFIC ADVISORY BOARD (MSAB), AS WELL AS ONE-ON-ONE PROFESSIONAL POP-INS WITH MANY OF THE MSAB MEMBERS.

  Expenses $617,916 · Revenue $24,152

• RESEARCH AND MEDICINETHE GFPD CONTINUES TO MAINTAIN AND GROW A STRONG COMMITTEE OF PHYSICIANS AND SCIENTISTS AS PART OF OUR MSAB. THESE INDIVIDUALS CURRENTLY COMPRISE RESEARCHERS, CLINICIANS, AND EXPERTS FROM NORTH AMERICA AND EUROPE WHO TREAT AND ASSIST PEROXISOMAL PATIENTS THROUGH CLINICAL MEDICINE AND RESEARCH. PRIMARY RESEARCH PARTNERS INCLUDE MCGILL UNIVERSITY, BAYLOR COLLEGE OF MEDICINE, UNIVERSITY OF SOUTHERN CALIFORNIA, UNIVERSITY OF AMSTERDAM, THE KENNEDY KRIEGER INSTITUTE, AND MONTCLAIR STATE UNIVERSITY. ADDITIONALLY, THE GFPD HAS CLINICAL ADVISORS FROM A NUMBER OF CHILDREN'S HOSPITALS THROUGHOUT NORTH AMERICA. TO FURTHER GFPD AWARENESS AND NETWORKING, REPRESENTATIVES HELD MEETINGS WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS, GLOBAL GENES, THE AMERICAN COLLEGE OF MEDICAL GENETICS, THE NOTRE DAME RARE DISEASE SYMPOSIUM, THE WORLD ORPHAN DRUG CONGRESS, AND THE AMERICAN ASSOCIATION FOR THE STUDY OF LIVER DISEASE.

  Expenses $275,789 · Grants $92,768

• WEBINAR AND VIRTUAL EVENT SERIESTHE GFPD IS THE PREMIER RESOURCE FOR INFORMATION, CLINICAL DIRECTION, TREATMENT GUIDELINES, NETWORKING, MEDICAL LINKAGE, AND ONLINE LEARNING FOR PATIENTS, FAMILIES, CAREGIVERS, CLINICIANS, PHYSICIANS, AND SCIENTIFIC PROFESSIONALS WITH A RANGE OF FAMILIARITY AND EXPERTISE IN PEROXISOMAL DISORDERS AND THEIR CO-MORBIDITIES. ONE OF THE GFPD'S FLAGSHIP PROGRAMS IS ITS WEBINAR AND VIRTUAL EVENT SERIES. THIS PROGRAM PROVIDES YEAR-ROUND EVENTS FOR PATIENTS, FAMILIES, AND PROFESSIONALS. THE PROGRAM IS OFFERED AT NO COST TO PATIENTS, FAMILIES, AND CAREGIVERS, AND PROVIDES CRUCIAL SUPPORT, EDUCATION, ADVOCACY TOOLS, AND RESOURCES. THE VIRTUAL ENVIRONMENT ENABLES MORE FLEXIBILITY IN SCHEDULING, RECORDING, AND DISSEMINATING INFORMATION TO PATIENTS, FAMILIES, AND CAREGIVERS, WHICH INCREASES ACCESS TO OUR COMMUNITY. THE GFPD WEBINAR AND VIRTUAL EVENT SERIES PROVIDES OPPORTUNITIES FOR CONSISTENT AND DIRECT ENGAGEMENT WITH THE COMMUNITY WE SERVE, AND SHAPES OUR STRATEGY FOR IMPROVING WEBINARS, OTHER FAMILY PROGRAMS, AND RESEARCH COLLABORATIONS. IN OCTOBER, A FIRST-TIME EVENT PROVED THE PERFECT EXAMPLE OF THE IMPACT OF VIRTUAL WEBINARS AND EVENTS. A "RELAX AND RELATE" VIRTUAL GATHERING WAS HOSTED FOR OUR EXTREMELY SMALL ADULT PATIENT COMMUNITY, IN WHICH EIGHT INDIVIDUALS MET, MANY FOR THE FIRST TIME. THE PATIENTS SHARED THAT THEY HOPED TO GAIN A CONNECTION TO OTHERS, TO NOT FEEL ALONE," TO LEARN FROM ONE ANOTHER ABOUT THEIR EXPERIENCES, AND WHAT HAS AND HAS NOT HELPED WITH SYMPTOM MANAGEMENT. THERE WAS UNANIMOUS INTEREST IN PARTICIPATING IN FUTURE SIMILAR GATHERINGS, AS WELL AS HAVING THEMED TOPICS AND GUEST PRESENTERS ON VARIOUS SUBJECTS. OVERALL, IN 2024, THE GFPD HOSTED 28 EVENTS AND HAD AN AVERAGE NET PROMOTER SCORE OF 89.2.

  Expenses $34,098

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $722,979

  Expenses

  $1,194,522

  Contributions

  $671,239

  Grants paid

  $92,768

• 2023

  Revenue

  $660,533

  Expenses

  $840,138

  Contributions

  $643,524

  Grants paid

  $59,652

• 2022

  Revenue

  $815,854

  Expenses

  $1,150,024

  Contributions

  $799,711

  Grants paid

  $31,544

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $685,552

  Expenses

  $463,793

  Assets (EOY)

  $1,176,716

• 2020 · 990

  Revenue

  $474,220

  Expenses

  $242,399

  Assets (EOY)

  $948,061

• 2019 · 990

  Revenue

  $607,592

  Expenses

  $665,694

  Assets (EOY)

  $772,198

• 2018 · 990

  Revenue

  $533,082

  Expenses

  $534,813

  Assets (EOY)

  $864,504

• 2017 · 990

  Revenue

  $432,070

  Expenses

  $422,915

  Assets (EOY)

  $814,597

• 2016 · 990

  Revenue

  $317,064

  Expenses

  $100,093

  Assets (EOY)

  $753,282

• 2015 · 990

  Revenue

  $290,487

  Expenses

  $95,275

  Assets (EOY)

  $523,921

• 2014 · 990-EZ

  Revenue

  $128,192

  Expenses

  $64,956

  Assets (EOY)

  $328,709

• 2013 · 990

  Revenue

  $219,593

  Expenses

  $171,455

  Assets (EOY)

  $257,173

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $73,381

  Assets (EOY)

  $208,734

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• MONTCLAIR STATE UNIVERSITY

  $92,768

  2024 · PATIENT - FOCUSED DRUG DEVELOPMENT IN PEROXISOMAL DISORDERS

• KENNEDY KRIEGER UNIVERSITY

  $25,000

  2023 · GENERAL FUND

• MONTCLAIR STATE UNIVERSITY

  $21,710

  2023 · GENERAL FUND

• THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER

  $20,000

  2022 · GENE THERPAY FOR ZELLWEGER SPECTURM DISORDERS-PEX 16 PROJECT

• OKLAHOMA STATE UNIVERSITY

  $12,942

  2023 · GENERAL FUND

Where these grants went next →

Grants received

• PETER HOPKINS FOUNDATION INC

  $125,887

  2022 · DONATION

• FORGOOD INC

  $62,934

  2022 · UNRESTRICTED

• FORGOOD INC

  $51,239

  2023 · UNRESTRICTED

• PETER HOPKINS FOUNDATION INC

  $50,602

  2023 · SUPPORT RESEARCH, SCIENTIFIC COLLABORATION, AND EMPOWERING INDIVIDUALS THROUGH EDUCATION PROGRAMS RELATED TO PEROXISOMAL DISORDERS

• FORGOOD INC

  $37,168

  2024 · UNRESTRICTED

• AMERICAN ENDOWMENT FOUNDATION

  $25,000

  2024 · DISEASE/DISORDER

• CHARITIES AID FOUNDATION AMERICA

  $23,395

  2022 · CHARITABLE DONATION

• AMERICAN ENDOWMENT FOUNDATION

  $20,000

  2023 · DISEASE/DISORDER

• PAYPAL CHARITABLE GIVING FUND

  $12,345

  2024 · GENERAL SUPPORT

• AMERICAN ENDOWMENT FOUNDATION

  $10,000

  2022 · DISEASE/DISORDER

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Other IRS files