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HEMOPHILIA FEDERATION OF AMERICA INC

EIN 72-1282316 WASHINGTON, DC

Revenue 2023
$5,110,030
Expenses 2023
$5,927,594

Program services were 69.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
E70
Classification
1200
Street
999 N CAPITOL ST NE STE 301

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • LUCAS RUNION

    CHAIR

    Total calculated
    $0
    Hours/week
    1

  • JOSEPH MARKOWITZ

    VICE-CHAIR

    Total calculated
    $0
    Hours/week
    1

  • ANNE-LOUISE WIRTHLIN

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • GEORGE STONE

    TREASURER - UNTIL 11/2023

    Total calculated
    $0
    Hours/week
    1

  • THOMAS WALLACE

    TREASURER - AS OF 11/2023

    Total calculated
    $0
    Hours/week
    1

  • LYNNE CAPRETTO

    DIRECTOR AND MOAC LIAISON

    Total calculated
    $0
    Hours/week
    1

  • MARIA CHAVEZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DAVID HUSKIE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • RENITA JOHNSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DIANE LIMA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DANIEL MIKKOLA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DANIEL KELSEY

    PRESIDENT AND CEO - AS OF 04/2023

    Total calculated
    $158,102
    From this org
    $140,373
    From related orgs
    $0
    Other
    $17,729
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $140,373
    Bonus
    $0
    Other
    $0
    Deferred
    $8,375
    Nontaxable benefits
    $9,354
    Filer's total
    $158,102

  • BARBRA KAVANAUGH

    INTERIM CEO - UNTIL 04/2023

    Total calculated
    $69,924
    From this org
    $69,924
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • TRACY CLEGHORN

    PAST CHAIR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $5,110,030
    Expenses
    $5,927,594
    Contributions
    $3,475,569
    Grants paid
    $584,974
  • 2022
    Revenue
    $5,559,810
    Expenses
    $5,864,407
    Contributions
    $3,613,216
    Grants paid
    $851,801

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2023 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2022 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2021 · 990

    Revenue
    $5,475,706
    Expenses
    $4,515,451
    Assets (EOY)
    $9,019,153

  • 2021 · 990

    Revenue
    $5,485,594
    Expenses
    $4,525,339
    Assets (EOY)
    $9,019,153

  • 2020 · 990

    Revenue
    $6,415,247
    Expenses
    $5,248,685
    Assets (EOY)
    $8,150,051

  • 2019 · 990

    Revenue
    $6,287,372
    Expenses
    $5,967,271
    Assets (EOY)
    $8,132,180

  • 2018 · 990

    Revenue
    $5,583,851
    Expenses
    $5,446,618
    Assets (EOY)
    $6,329,926

  • 2017 · 990

    Revenue
    $5,710,321
    Expenses
    $4,678,733
    Assets (EOY)
    $5,422,183

  • 2016 · 990

    Revenue
    $5,229,652
    Expenses
    $3,736,967
    Assets (EOY)
    $4,388,925

  • 2015 · 990

    Revenue
    $3,152,008
    Expenses
    $2,630,859
    Assets (EOY)
    $2,579,245

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

  • NEW ENGLAND HEMOPHILIA ASSOCIATION

    $20,000

    2023 BLEADERS RETREAT, HISPANIC HERITAGE SYMPOSIUM & VIRTUAL EVENTS IN SPANISH, VON WILLEBRAND DISEASE RETREAT, WOMEN'S RETREAT

  • HEMOPHILIA FOUNDATION OF MARYLAND

    $18,000

    2022 BUDGETING, YES YOU CAN (PART 2 OF 3),EVERYTHING CREDIT (PART 3 O 3) DEBRA JACOBS - EVENT 9/28/2022,FINANCIAL WELLNESS 101 (DEBRA JACOBS) PART 1/3,GAME OF LIFE 11/12/2022,INTENTIONAL TEAM BUILDING 11/12/2022,JOINT HEALTH WEBINAR - VIRTUAL,RAP SESSION - EVENT 5/21/2022,RAP SESSION - EVENT 5/21/2022,TEEN FITNESS 12/17/2022,WINTER HOLIDAY RAP SESSION 12/10/2022

  • WESTERN PA BLEEDING DISORDERS FOUNDATION

    $16,000

    2022 A PATHWAY FOR BEST CARE: THE REPRODUCTIVE YEARS - EVENT 5/14/2022,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH,COOKING WITH CHEF MIKE - EVENT 1/8/2022,GOT STRESS SERIES - VIRTUAL EVENT OVER 3 WEEKS,RAP SESSION: CAREGIVERS - EVENT 5/14/2022,TASK MASTER & WHAT'S IN A CLOWNS DR. BAG

  • MIDWEST HEMOPHILIA ASSOCIATION V

    $16,000

    2022 12/13/22, FAMILES,4 SESSIONS: KINESIO TAPING, ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH, AND A PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,KINESIO TAPING,MENTAL HEALTH 101 - EVENT 5/14/2022,ON THE HORIZON/EMERGING THERAPIES,RAP SESSION: HEALTH & WELLNESS.

  • HEMOPHILIA FND OF SOUTHERN CALIFORNIA

    $16,000

    2022 BASICS OF SCHOOL ADVOCACY AND GOT STRESS? STRATEGIES FOR ANXIETY AND WORRY PRESENTED BY DR. JULIANA BLOOM,, PHD, BSIS RAP SESSION - ENGLISH - EVENT 3/19/2022, BSIS RAP SESSION - EVENT 3/19/2022,CARRIER GUILT & BALANCING FAMILY ISSUES,FINANCIAL WELLNESS 101, FACILITATED BY DEBRA JACOBS - EVENT 7/13/2022,MILD MATTERS, PRESENTED BY REBEKAH HECKATHORNE, RN

  • LOUISIANA HEMOPHILIA FOUNDATION

    $16,000

    2022 2 SESSIONS - MENTAL HEALTH 101 FOR TEENS & MY STORY OF RESILIENCE - EVENT 7/25/2022,2 SESSIONS: INTIMACY (COUPLES) AND RAP SESSION (INTIMACY),BLOOD SISTERHOOD PROGRAM OVERVIEW,IMPORTANCE OF COMMUNITY,IMPROV FOR TEENS CONNECTIONS & MENTAAL HEALTH, REAL TALK,

  • VIRGINIA HEMOPHILIA FOUNDATION (V)

    $16,000

    2022 A PATHWAY FOR BEST CARE,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH - EVENT 8/13/2022,AGES AND STAGE; EARLY CHILDHOOD,MIND-BODY-HEART CONNECTION,MY STORY OR RESILIENCE & EMERGING THERAPIES,RAP SESSION,TRAUMA AND PTSD IN THE BLEEDING DISORDERS COMMUNITY.

  • UNITED HEMOPHILIA FOUNDATION

    $15,500

    2023 MEN AND WOMEN'S CARE & CONNECTIONS PROGRAM, UHF 2023 FAMILY EDUCATION CONFERENCE, UHF SPRING EDUCATION MEETING

  • CENTRAL CALIFORNIA HEMOPHILIA FOUNDATION

    $15,000

    2023 2023 UNIDOS POR SANGRE COMMUNITY BUILDING, 2023 YOUTH LEADERSHIP DEVELOPMENT PROGRAM, FAMILY CAMP

  • PACIFIC NORTHWEST BLEEDING DISORDERS

    $15,000

    2023 2023 COUPLES RETREAT, BLOOD BROTHERHOOD, NW WOMEN'S CONFERENCE

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 23 October 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.