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MUSCULAR DYSTROPHY ASSOCIATION

EIN 13-1665552 CHICAGO, IL

Revenue 2025
$64,160,032
Expenses 2025
$61,748,106

Program services were 70.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G50
Classification
1000
Street
161 N CLARK ST STE 3550

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • ANJAN ARALIHALLI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • BARRY BYRNE MD PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • BENJAMIN CUMBO III

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHARLES D SCHOOR ESQ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHRISTOPHER ROSA

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    5

  • DAN FRIES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ELIZABETH MCNALLY MD PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • GOVERNOR BRAD HENRY

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    5

  • HON ROBERT E PIPIA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JOHN COSTANTINO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JOHN E HOWELL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LILIAN WU PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LOUIS KUNKEL PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MARK SMITH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MATT PLUMMER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MIKE ROWLETT

    OUTGOING DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • NANCY KINDELAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • STEVE FURNARY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TOM SIMON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DONALD WOOD

    OUTGOING PRESIDENT & CEO

    Total calculated
    $679,842
    From this org
    $662,437
    From related orgs
    $0
    Other
    $17,405
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $247,116
    Bonus
    $81,000
    Other
    $334,321
    Deferred
    $0
    Nontaxable benefits
    $17,405
    Filer's total
    $679,842

  • HENRY LANMAN

    COO & CHIEF LEGAL OFFICER

    Total calculated
    $436,744
    From this org
    $380,303
    From related orgs
    $0
    Other
    $56,441
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $380,303
    Bonus
    $0
    Other
    $0
    Deferred
    $21,040
    Nontaxable benefits
    $35,401
    Filer's total
    $436,744

  • MICHAEL KENNEDY

    OUTGOING TREASURER & CFO

    Total calculated
    $169,950
    From this org
    $158,297
    From related orgs
    $0
    Other
    $11,653
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $59,653
    Bonus
    $0
    Other
    $98,644
    Deferred
    $5,546
    Nontaxable benefits
    $6,107
    Filer's total
    $169,950

  • SHARON HESTERLEE

    PRESIDENT & CEO

    Total calculated
    $492,426
    From this org
    $421,661
    From related orgs
    $0
    Other
    $70,765
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $390,615
    Bonus
    $31,046
    Other
    $0
    Deferred
    $31,000
    Nontaxable benefits
    $39,765
    Filer's total
    $492,426

  • JON VAN COTT

    INTERIM CFO & CONTROLLER

    Total calculated
    $261,209
    From this org
    $213,151
    From related orgs
    $0
    Other
    $48,058
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $199,591
    Bonus
    $0
    Other
    $13,560
    Deferred
    $0
    Nontaxable benefits
    $48,058
    Filer's total
    $261,209

  • ANGELA LEK

    CHIEF RESEARCH OFFICER

    Total calculated
    $235,850
    From this org
    $221,940
    From related orgs
    $0
    Other
    $13,910
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $221,940
    Bonus
    $0
    Other
    $0
    Deferred
    $13,316
    Nontaxable benefits
    $594
    Filer's total
    $235,850

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $64,160,032
    Expenses
    $61,748,106
    Contributions
    $54,355,588
    Grants paid
    $14,147,711
  • 2024
    Revenue
    $60,356,244
    Expenses
    $65,965,386
    Contributions
    $54,195,181
    Grants paid
    $16,658,993
  • 2023
    Revenue
    $59,437,892
    Expenses
    $62,127,770
    Contributions
    $56,761,618
    Grants paid
    $14,912,477
  • 2022
    Revenue
    $63,227,837
    Expenses
    $58,970,307
    Contributions
    $59,144,929
    Grants paid
    $13,032,682

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2025 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2024 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2023 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

  • 2022 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

  • GATEWAY COMMUNICATIONS INC

    $0 raised

    2024 Commercial Fundraiser

    $0 to charity

  • GATEWAY COMMUNICATIONS INC

    $69,768 raised

    2023 Commercial Fundraiser

    $35,093 to charity

  • GATEWAY COMMUNICATIONS INC

    $30,546 raised

    2023 Commercial Fundraiser

    $8,131 to charity

  • INFOCISION INC.

    $0 raised

    2023 Commercial Fundraiser

    $0 to charity

  • INFOCISION INC.

    $76,358 raised

    2022 Commercial Fundraiser

    $52,171 to charity

  • GATEWAY COMMUNICATIONS INC

    $60,046 raised

    2022 Commercial Fundraiser

    $25,371 to charity

  • INFOCISION INC.

    $53,901 raised

    2021 Commercial Fundraiser

    $23,564 to charity

  • INFOCISION INC.

    $30,777 raised

    2020 Commercial Fundraiser

    $28,088 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.