- Revenue 2023
- $4,386,984
- Expenses 2023
- $3,239,128
Program services were 74.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H20
- Classification
- 1800
- Street
- 840 MEMORIAL DR STE 101
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2023
Mission
TO FUNCTION AS A LOCAL AND NATIONAL CLINIC AND DIAGNOSTIC REFERENCE RESOURCE FOR BIRTH DEFECT AND GENETIC DISORDERS; TO PROVIDE TECHNOLOGY AND SERVICES TO REFERRING PHYSICIANS AND PATIENTS FOR THE BENEFIT OF ALL PERSONS SUFFERING FROM ILLNESS, DEFECTS OR DISORDERS; TO TEACH MEDICAL STUDENTS, RESIDENTS, FELLOWS AND OTHER PERSONNEL ENGAGED IN HEALTH SERVICES AND HEALTH EDUCATION; TO ADVANCE SCIENTIFIC KNOWLEDGE THROUGH RESEARCH; TO TAKE ACTIVE PART IN THE PLANNING FOR AND THE PROMOTION OF THE SPECIFIC GENETIC AND GENERAL MENTAL AND PHYSICAL HEALTH AND HUMAN NEEDS AND INTERESTS OF THE LOCAL AND NATIONAL PATIENT POPUATION AND THEIR PHYSICIANS; TO PROVIDE SERVICES RELATED TO GENETICS; TO GATHER DATA AND ANALYZE IT FOR THE PURPOSE OF SHARING IT GENERALLY WITH THE LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES; TO IMPROVE AND DEVELOP TESTING PROTOCOLS AND KNOWLEDGE AND TO SHARE SUCH RESULTS FREELY AND OPENLY; TO ESTABLISH, OWN, OPERATE, CONDUCT OR MAINTAIN FACILITIES FOR TEACHING.
Activities or mission (Part I)
TO FUNCTION AS A LOCAL AND NATIONAL CLINIC AND DIAGNOSTIC REFERENCE RESOURCE FOR BIRTH DEFECTS AND GENETIC DISORDERS.
-
PROVIDE CLINICAL DIAGNOSTIC TESTING AND OTHER RELATED MEDICAL RESEARCH AND SERVICES IN THE AREAS OF BIRTH AND OTHER GENETICS DISORDERS TO PATIENTS, HOSPITALS, AND OTHER ORGANIZATIONS WITHIN THE MEDICAL COMMUNITY.
Expenses $2,402,062 · Revenue $4,084,701
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2023
As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Aubrey MilunskyAUBREY MILUNSKY
PRESIDENT
- Total calculated
- $100,000
- From this org
- $100,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Jeffrey MilunskyJEFFREY MILUNSKY
TREASURER
- Total calculated
- $417,131
- From this org
- $417,131
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $417,131
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $417,131
-
Robert TamarinROBERT TAMARIN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2023
- Revenue
- $4,386,984
- Expenses
- $3,239,128
- Contributions
- $0
- Grants paid
- $0
-
2022
- Revenue
- $3,712,325
- Expenses
- $3,203,996
- Contributions
- $0
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $2,704,245
- Expenses
- $2,593,776
- Assets (EOY)
- $10,314,362
-
2020 · 990
- Revenue
- $2,410,975
- Expenses
- $2,569,222
- Assets (EOY)
- $9,835,244
-
2020 · 990
- Revenue
- $2,555,207
- Expenses
- $2,514,978
- Assets (EOY)
- $9,944,124
-
2019 · 990
- Revenue
- $1,408,865
- Expenses
- $2,755,974
- Assets (EOY)
- $8,833,863
-
2018 · 990
- Revenue
- $1,520,885
- Expenses
- $2,852,627
- Assets (EOY)
- $9,663,521
-
2017 · 990
- Revenue
- $1,627,969
- Expenses
- $3,245,229
- Assets (EOY)
- $11,673,620
-
2016 · 990
- Revenue
- $2,667,265
- Expenses
- $2,572,284
- Assets (EOY)
- $12,375,241
-
2015 · 990
- Revenue
- $2,682,704
- Expenses
- $2,726,571
- Assets (EOY)
- $11,917,588
-
2014 · 990
- Revenue
- $2,578,781
- Expenses
- $3,090,732
- Assets (EOY)
- $12,210,071
-
2013 · 990
- Revenue
- $4,667,532
- Expenses
- $3,564,732
- Assets (EOY)
- $16,168,424
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$27,120
2022 TO FUND RESEARCH TO FIND A CURE FOR EB
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.