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EPILEPSY-PRALID INC

EIN 16-1422825 ROCHESTER, NY

Browse the largest nonprofits in New York

Revenue 2023
$40,012,497
Expenses 2023
$39,140,430

Program services were 92.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
P82Z
Classification
1000
Street
1650 SOUTH AVENUE

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2023

Mission

TO BE A SUCCESSFUL PARTNER FOR ALL INDIVIDUALS WITH DEVELOPMENTAL OR ACQUIRED BRAIN CONDITIONS AS THEY STRIVE TO REMOVE BARRIERS TO THEIR PERSONAL FULFILLMENTS.

Activities or mission (Part I)

SEE SCHEDULE O

  • SELF DIRECTION - GIVES A PERSON THE CHANCE TO CHOOSE THEIR OWN SERVICES, ENABLING THEM TO LIVE THE LIFE OF THEIR CHOOSING. WITH A SELF-DIRECTED BUDGET, THE PERSON CAN CHOOSE THE RIGHT SUPPORTS FOR THEM INCLUDING MANAGING THE BUDGET DOLLARS, AND CHOOSING THEIR OWN STAFF. APPROXIMATELY 850 INDIVIDUALS SERVED IN 2023.

    Expenses $20,989,370 · Revenue $23,090,257

  • RESIDENTIAL SERVICES - ENABLE INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES OR OTHER NEUROLOGICAL DISORDERS TO EXPERIENCE THE INDEPENDENCE AND SELF-ESTEEM THAT COMES WITH HAVING A HOME OF THEIR OWN. APPROXIMATELY 70 INDIVIDUALS SERVED IN 2023.

    Expenses $10,122,142 · Revenue $11,624,276

  • DAY PROGRAMS - HELPS INDIVIDUALS ACHIEVE PERSONAL GROWTH AND ESTABLISH RELATIONSHIPS WITHIN THEIR COMMUNITY THROUGH VARIOUS SOCIAL AND SKILL BUILDING ACTIVITIES. APPROXIMATELY 50 INDIVIDUALS SERVED IN 2023.

    Expenses $2,547,736 · Revenue $2,800,440

  • ENVIRONMENTAL MODIFICATIONS, HEALTH HOMES, OTHER DOH SERVICES, AND OTHER SERVICES

    Expenses $2,490,204 · Grants $164,627 · Revenue $1,555,515

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Robert Danesh

    CHAIR

    Total calculated
    $0
    Hours/week
    1
  • Molly Wanzenried

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1
  • Sabrina McLeod

    TREASURER

    Total calculated
    $0
    Hours/week
    1
  • Mary E Shepard

    SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • Deana Bonno

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Michael Burns

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Chetna Chandrakala

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Colin Desrosiers

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Inna Hughes

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Renee Madathil

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Robert Toscano

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Allan A Ulrich

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • Jeff Sinsebox

    PRESIDENT

    Total calculated
    $290,367
    From this org
    $274,767
    From related orgs
    $0
    Other
    $15,600
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $274,767
    Bonus
    $0
    Other
    $0
    Deferred
    $15,000
    Nontaxable benefits
    $600
    Filer's total
    $290,367
  • Joseph Abbott

    COO

    Total calculated
    $181,075
    From this org
    $162,163
    From related orgs
    $0
    Other
    $18,912
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $162,163
    Bonus
    $0
    Other
    $0
    Deferred
    $10,000
    Nontaxable benefits
    $8,912
    Filer's total
    $181,075
  • Kimberli Johnston

    CFO

    Total calculated
    $171,905
    From this org
    $151,801
    From related orgs
    $0
    Other
    $20,104
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $151,801
    Bonus
    $0
    Other
    $0
    Deferred
    $10,000
    Nontaxable benefits
    $10,104
    Filer's total
    $171,905
  • Esther Neal

    VP HUMAN RESOURCES

    Total calculated
    $155,407
    From this org
    $135,623
    From related orgs
    $0
    Other
    $19,784
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $135,623
    Bonus
    $0
    Other
    $0
    Deferred
    $10,000
    Nontaxable benefits
    $9,784
    Filer's total
    $155,407
  • Lorena Delancey

    VP ADVANCEMENT

    Total calculated
    $133,202
    From this org
    $122,789
    From related orgs
    $0
    Other
    $10,413
    Hours/week
    40
  • Lisa McMullin

    DIRECTOR OF COMMUNITY SERVICES

    Total calculated
    $114,132
    From this org
    $100,092
    From related orgs
    $0
    Other
    $14,040
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $40,012,497
    Expenses
    $39,140,430
    Contributions
    $679,184
    Grants paid
    $164,627
  • 2022
    Revenue
    $42,056,168
    Expenses
    $37,190,578
    Contributions
    $4,588,282
    Grants paid
    $45,976

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $29,686,581
    Expenses
    $29,120,033
    Assets (EOY)
    $16,338,774
  • 2020 · 990

    Revenue
    $28,283,601
    Expenses
    $27,305,589
    Assets (EOY)
    $12,517,649
  • 2019 · 990

    Revenue
    $25,193,153
    Expenses
    $24,862,288
    Assets (EOY)
    $11,251,167
  • 2018 · 990

    Revenue
    $21,019,122
    Expenses
    $20,327,454
    Assets (EOY)
    $8,681,061
  • 2017 · 990

    Revenue
    $18,516,822
    Expenses
    $18,346,793
    Assets (EOY)
    $8,012,992
  • 2016 · 990

    Revenue
    $17,917,062
    Expenses
    $17,807,393
    Assets (EOY)
    $7,360,645
  • 2015 · 990

    Revenue
    $14,781,628
    Expenses
    $14,716,771
    Assets (EOY)
    $8,107,190
  • 2014 · 990

    Revenue
    $13,623,491
    Expenses
    $13,394,589
    Assets (EOY)
    $7,727,259

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.