Skip to content
Nonprofiteer
← All organizations

BLEEDING DISORDERS COUNCIL OF CALIFORNIA

EIN 68-0182998 SACRAMENTO, CA

Revenue 2023
$333,152
Expenses 2023
$368,610

Program services were 89.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G21Z
Classification
1000
Street
717 K ST STE 501

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2023

Mission

THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS.

  • EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT.

    Expenses $176,912 · Revenue $88,000

  • ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT.IN ADDITION TO SERVING THE HCC BOARD, THE VOLUNTEER BOARD OF DIRECTORS ALSO SERVE THE HEMOPHILIA COMMUNITY IN VARIOUS CAPACITIES. SOME OF THESE INCLUDE EDUCATION, ADVOCACY, PHARMACEUTICAL INSIGHT, RELATIONAL DEVELOPMENT, AND FUTURE BUILDING.

    Expenses $90,454 · Revenue $67,640

  • HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE.

    Expenses $28,592 · Revenue $73,500

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Lynne Kinst

    Executive Dir.

    Total calculated
    $93,079
    From this org
    $93,079
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • Stephanie Dansker

    Secretary

    Total calculated
    $0
    Hours/week
    5
  • Cindy Guzman

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Ryan Faden

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5
  • Amal Estrada

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Richard Uno

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Mosi Williams

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Elaine Macasiray

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Tony Carvalho

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Brent Mascorro

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Shellye Horowitz

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2
  • Lauren Hay

    President

    Total calculated
    $0
    Hours/week
    5
  • Rigo Manzo

    Vice President

    Total calculated
    $0
    Hours/week
    2
  • Oscar Horta

    Treasurer

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $333,152
    Expenses
    $368,610
    Contributions
    $320,099
    Grants paid
    $0
  • 2022
    Revenue
    $256,354
    Expenses
    $348,669
    Contributions
    $8,879
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $254,433
    Expenses
    $243,516
    Assets (EOY)
    $449,880
  • 2020 · 990-EZ

    Revenue
    $199,193
    Expenses
    $222,637
    Assets (EOY)
    $423,776
  • 2019 · 990

    Revenue
    $270,213
    Expenses
    $229,631
    Assets (EOY)
    $397,961
  • 2018 · 990

    Revenue
    $237,466
    Expenses
    $220,150
    Assets (EOY)
    $382,020
  • 2017 · 990

    Revenue
    $258,291
    Expenses
    $204,699
    Assets (EOY)
    $382,485
  • 2016 · 990

    Revenue
    $271,194
    Expenses
    $229,279
    Assets (EOY)
    $307,668
  • 2013 · 990

    Revenue
    $196,520
    Expenses
    $141,971
    Assets (EOY)
    $304,373
  • 2012 · 990

    Revenue
    not reported
    Expenses
    $159,642
    Assets (EOY)
    $284,218
  • 2011 · 990-EZ

    Revenue
    $74,554
    Expenses
    $75,753
    Assets (EOY)
    $171,150

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.