- Revenue 2023
- $333,152
- Expenses 2023
- $368,610
Program services were 89.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G21Z
- Classification
- 1000
- Street
- 717 K ST STE 501
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2023
Mission
THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS.
-
EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT.
Expenses $176,912 · Revenue $88,000
-
ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT.IN ADDITION TO SERVING THE HCC BOARD, THE VOLUNTEER BOARD OF DIRECTORS ALSO SERVE THE HEMOPHILIA COMMUNITY IN VARIOUS CAPACITIES. SOME OF THESE INCLUDE EDUCATION, ADVOCACY, PHARMACEUTICAL INSIGHT, RELATIONAL DEVELOPMENT, AND FUTURE BUILDING.
Expenses $90,454 · Revenue $67,640
-
HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE.
Expenses $28,592 · Revenue $73,500
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2023
As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Lynne KinstLYNNE KINST
Executive Dir.
- Total calculated
- $93,079
- From this org
- $93,079
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Stephanie DanskerSTEPHANIE DANSKER
Secretary
- Total calculated
- $0
- Hours/week
- 5
-
Cindy GuzmanCINDY GUZMAN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Ryan FadenRYAN FADEN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 5
-
Amal EstradaAMAL ESTRADA
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Richard UnoRICHARD UNO
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Mosi WilliamsMOSI WILLIAMS
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Elaine MacasirayELAINE MACASIRAY
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Tony CarvalhoTONY CARVALHO
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Brent MascorroBRENT MASCORRO
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Shellye HorowitzSHELLYE HOROWITZ
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Lauren HayLAUREN HAY
President
- Total calculated
- $0
- Hours/week
- 5
-
Rigo ManzoRIGO MANZO
Vice President
- Total calculated
- $0
- Hours/week
- 2
-
Oscar HortaOSCAR HORTA
Treasurer
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2023
- Revenue
- $333,152
- Expenses
- $368,610
- Contributions
- $320,099
- Grants paid
- $0
-
2022
- Revenue
- $256,354
- Expenses
- $348,669
- Contributions
- $8,879
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $254,433
- Expenses
- $243,516
- Assets (EOY)
- $449,880
-
2020 · 990-EZ
- Revenue
- $199,193
- Expenses
- $222,637
- Assets (EOY)
- $423,776
-
2019 · 990
- Revenue
- $270,213
- Expenses
- $229,631
- Assets (EOY)
- $397,961
-
2018 · 990
- Revenue
- $237,466
- Expenses
- $220,150
- Assets (EOY)
- $382,020
-
2017 · 990
- Revenue
- $258,291
- Expenses
- $204,699
- Assets (EOY)
- $382,485
-
2016 · 990
- Revenue
- $271,194
- Expenses
- $229,279
- Assets (EOY)
- $307,668
-
2013 · 990
- Revenue
- $196,520
- Expenses
- $141,971
- Assets (EOY)
- $304,373
-
2012 · 990
- Revenue
- not reported
- Expenses
- $159,642
- Assets (EOY)
- $284,218
-
2011 · 990-EZ
- Revenue
- $74,554
- Expenses
- $75,753
- Assets (EOY)
- $171,150
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
2024 GENERAL CONTRIBUTION
-
2023 General Contribution
-
2023 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
-
2022 STATE BASED ADVOCACY COALITION GRANT
-
2024 STATE BASED ADVOCACY COALITION GRANT
-
2023 STATE BASED ADVOCACY COALITION GRANT
-
2022 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
-
2023 PROMOTE HEMOPHILIA
-
2024 PROMOTE HEMOPHILIA
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2023, the newest we have parsed for this organization.