- Revenue 2024
- $7,616,367
- Expenses 2024
- $7,492,545
Program services were 80.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1000
- Street
- 20 COMMUNITY LN
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
SERVE CHILDREN AND ADULTS WHO SUFFER FROM GENETIC AND OTHER COMPLEX MEDICAL DISORDERS BY PROVIDING COMPREHENSIVE MEDICAL, LABORATORY, AND CONSULTATIVE SERVICES, AND BY INCREASING AND DISSEMINATING KNOWLEDGE OF SCIENCE AND MEDICINE.
-
CLINICAL, LABORATORY, AND RESEARCH SERVICES WERE PROVIDED FOR PATIENTS WITH MORE THAN 300 GENETIC CONDITIONS. CLINICAL OUTREACH SERVICES WERE ALSO PROVIDED TO ADDITIONAL RURAL AREAS ON A REGULAR BASIS.
Expenses $6,018,373 · Revenue $2,108,135
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Laura Poskitt DoLAURA POSKITT DO
MEDICAL DIRE
- Total calculated
- $315,170
- From this org
- $262,682
- From related orgs
- $0
- Other
- $52,488
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $257,682
- Bonus
- $5,000
- Other
- not reported
- Deferred
- $27,000
- Nontaxable benefits
- $25,488
- Filer's total
- $315,170
-
Vincent J Carson MDVINCENT J CARSON MD
PEDIATRIC NE
- Total calculated
- $314,110
- From this org
- $262,107
- From related orgs
- $0
- Other
- $52,003
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $257,107
- Bonus
- $5,000
- Other
- not reported
- Deferred
- $26,515
- Nontaxable benefits
- $25,488
- Filer's total
- $314,110
-
Kevin Strauss MDKEVIN STRAUSS MD
FORMER OFFIC
- Total calculated
- $273,183
- From this org
- $234,635
- From related orgs
- $0
- Other
- $38,548
- Hours/week
- 0
Schedule J breakdown matched by us
- Base
- $234,635
- Bonus
- not reported
- Other
- not reported
- Deferred
- $23,463
- Nontaxable benefits
- $15,085
- Filer's total
- $273,183
-
Grace Loudon Meier MDGRACE LOUDON MEIER MD
FAMILY MEDIC
- Total calculated
- $266,679
- From this org
- $218,620
- From related orgs
- $0
- Other
- $48,059
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $213,620
- Bonus
- $5,000
- Other
- not reported
- Deferred
- $22,571
- Nontaxable benefits
- $25,488
- Filer's total
- $266,679
-
Erik Puffenberger PhDERIK PUFFENBERGER PHD
LABORATORY D
- Total calculated
- $262,913
- From this org
- $215,841
- From related orgs
- $0
- Other
- $47,072
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $215,841
- Bonus
- not reported
- Other
- not reported
- Deferred
- $21,584
- Nontaxable benefits
- $25,488
- Filer's total
- $262,913
-
Adam Heaps Ms MBAADAM HEAPS MS MBA
EXECUTIVE DI
- Total calculated
- $225,497
- From this org
- $181,778
- From related orgs
- $0
- Other
- $43,719
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $177,788
- Bonus
- $3,990
- Other
- not reported
- Deferred
- $18,399
- Nontaxable benefits
- $25,320
- Filer's total
- $225,497
-
Karlla W Brigatti Ms CgcKARLLA W BRIGATTI MS CGC
RESEARCH DIR
- Total calculated
- $188,619
- From this org
- $170,000
- From related orgs
- $0
- Other
- $18,619
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $170,000
- Bonus
- not reported
- Other
- not reported
- Deferred
- $17,000
- Nontaxable benefits
- $1,619
- Filer's total
- $188,619
-
Helge D HartungHELGE D HARTUNG
PHYSICIAN SC
- Total calculated
- $157,051
- From this org
- $137,981
- From related orgs
- $0
- Other
- $19,070
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $137,981
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported
- Nontaxable benefits
- $19,070
- Filer's total
- $157,051
-
Donna L Robinson Msn CrnpDONNA L ROBINSON MSN CRNP
NURSE PRACTI
- Total calculated
- $156,766
- From this org
- $131,626
- From related orgs
- $0
- Other
- $25,140
- Hours/week
- 45
Schedule J breakdown matched by us
- Base
- $130,126
- Bonus
- $1,500
- Other
- not reported
- Deferred
- $13,306
- Nontaxable benefits
- $11,834
- Filer's total
- $156,766
-
Alexis M McVeyALEXIS M MCVEY
NURSING DIRE
- Total calculated
- $148,631
- From this org
- $112,505
- From related orgs
- $0
- Other
- $36,126
- Hours/week
- 45
-
Herman BontragerHERMAN BONTRAGER
CHAIR
- Total calculated
- $0
- Hours/week
- 3
-
Elam EshELAM ESH
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Leon HooverLEON HOOVER
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Cindy Bo MBACINDY BO MBA
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Jonathan Salvin MDJONATHAN SALVIN MD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Stephen Tifft MDSTEPHEN TIFFT MD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Mark MartinMARK MARTIN
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Jacob PetersheimJACOB PETERSHEIM
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Glen ZimmermanGLEN ZIMMERMAN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Glenn ZimmermanGLENN ZIMMERMAN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $7,616,367
- Expenses
- $7,492,545
- Contributions
- $4,468,688
- Grants paid
- $0
-
2023
- Revenue
- $10,624,888
- Expenses
- $7,282,972
- Contributions
- $8,190,751
- Grants paid
- $0
-
2022
- Revenue
- $9,727,240
- Expenses
- $6,046,379
- Contributions
- $6,747,909
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $7,339,577
- Expenses
- $5,019,611
- Assets (EOY)
- $14,596,490
-
2020 · 990
- Revenue
- $8,177,464
- Expenses
- $4,358,189
- Assets (EOY)
- $13,470,361
-
2019 · 990
- Revenue
- $4,444,777
- Expenses
- $4,031,686
- Assets (EOY)
- $8,849,186
-
2018 · 990
- Revenue
- $5,087,356
- Expenses
- $3,499,809
- Assets (EOY)
- $8,311,378
-
2017 · 990
- Revenue
- $3,686,622
- Expenses
- $3,110,565
- Assets (EOY)
- $6,698,611
-
2016 · 990
- Revenue
- $2,880,925
- Expenses
- $2,645,860
- Assets (EOY)
- $5,992,070
-
2015 · 990
- Revenue
- $3,173,746
- Expenses
- $2,942,315
- Assets (EOY)
- $5,399,652
-
2014 · 990
- Revenue
- $3,241,417
- Expenses
- $2,812,168
- Assets (EOY)
- $4,994,848
-
2013 · 990
- Revenue
- $2,464,860
- Expenses
- $2,392,053
- Assets (EOY)
- $4,753,697
-
2012 · 990
- Revenue
- not reported
- Expenses
- $1,961,370
- Assets (EOY)
- $4,470,263
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$1,511,149
2022 Operations
-
$893,111
2023 Operations
-
$518,146
2025 Operations
-
$500,000
2022 SUPPORT PROGRAM SVC
-
2024 GENERAL OPERATING SUPPORT AND NEW MEDICAL CENTER BUILDING PROJECT
-
2023 GENERAL OPERATING SUPPORT
-
2022 DESIGNATED FOR GENERAL OPERATING SUPPORT
-
2022 For grant recipient's exempt purposes
-
2022 FOR RECIPIENT'S EXEMPT PURPOSE
-
2024 For grant recipient's exempt purposes
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.