- Revenue 2025
- $284,709,120
- Expenses 2025
- $230,788,273
Program services were 95.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- E99
- Classification
- 1000
- Street
- 8427 SOUTH PARK CIRCLE BUILDING D S
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
TO HELP INSURED PEOPLE WITH LIFE-CHANGING DISEASES OVERCOME THE FINANCIAL BARRIERS PREVENTING THEM FROM ACCESSING TREATMENT.
Activities or mission (Part I)
TO HELP INSURED PEOPLE WITH LIFE-CHANGING DISEASES OVERCOME THE FINANCIAL BARRIERS PREVENTING THEM FROM ACCESSING TREATMENT
-
IN 2025, THE ASSISTANCE FUND (TAF) PROVIDED OVER $213 MILLION IN FINANCIAL ASSISTANCE TO APPROXIMATELY 73,000 PATIENTS. TAF LAUNCHED NINE NEW DISEASE PROGRAMS IN 2025, BRINGING THE TOTAL NUMBER OF DISEASES COVERED TO OVER 100 (INCLUDING 65 RARE DISEASES). TAF ASSISTED NEARLY 5,000 PATIENTS WITH HEALTH INSURANCE PREMIUMS AND OTHER INCIDENTAL MEDICAL EXPENSES. TAF PROVIDES ASSISTANCE TO PATIENTS ON A CALENDAR-YEAR BASIS AND OFFERS ANNUAL REENROLLMENT FOR MOST DISEASE PROGRAMS, SUBJECT TO AVAILABILITY OF FUNDING. NINETY-FIVE PERCENT (95%) OF PATIENTS WHO APPLIED FOR REENROLLMENT FOR 2025 WERE APPROVED. NEARLY ONE-QUARTER OF TAF PATIENTS RECEIVE ASSISTANCE ACROSS MULTIPLE YEARS.
Expenses $219,427,594 · Grants $213,200,863
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Linda HowardLINDA HOWARD
CHAIRMAN, BOARD OF DIRECTORS
- Total calculated
- $0
- Hours/week
- 2
-
Sharon PattersonSHARON PATTERSON
VICE CHAIR, BOARD OF DIRECTORS
- Total calculated
- $0
- Hours/week
- 2
-
Daniel KleinDANIEL KLEIN
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Frank D'AcostaFRANK D'ACOSTA
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Jeff MilfordJEFF MILFORD
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
John RushingJOHN RUSHING
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
John WagnerJOHN WAGNER
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Julie JudgeJULIE JUDGE
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Justin AronsonJUSTIN ARONSON
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Lawrence HatchLAWRENCE HATCH
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Tom BaileyTOM BAILEY
BOARD OF DIRECTORS MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Danielle VizcainoDANIELLE VIZCAINO
CHIEF EXECUTIVE OFFICER
- Total calculated
- $567,706
- From this org
- $524,820
- From related orgs
- $0
- Other
- $42,886
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $365,995
- Bonus
- $157,025
- Other
- $1,800
- Deferred
- $21,000
- Nontaxable benefits
- $21,886
- Filer's total
- $567,706
-
Steven AlseneSTEVEN ALSENE
CHIEF FINANCIAL OFFICER
- Total calculated
- $457,421
- From this org
- $404,403
- From related orgs
- $0
- Other
- $53,018
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $287,836
- Bonus
- $114,767
- Other
- $1,800
- Deferred
- $19,296
- Nontaxable benefits
- $33,722
- Filer's total
- $457,421
-
Dalia KacenauskaiteDALIA KACENAUSKAITE
VP, OPERATIONS
- Total calculated
- $162,713
- From this org
- $148,913
- From related orgs
- $0
- Other
- $13,800
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $147,113
- Bonus
- $0
- Other
- $1,800
- Deferred
- $6,467
- Nontaxable benefits
- $7,333
- Filer's total
- $162,713
-
Gerald LauriaGERALD LAURIA
CHIEF DEVELOPMENT OFFICER
- Total calculated
- $514,068
- From this org
- $459,346
- From related orgs
- $0
- Other
- $54,722
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $325,036
- Bonus
- $132,510
- Other
- $1,800
- Deferred
- $21,000
- Nontaxable benefits
- $33,722
- Filer's total
- $514,068
-
Jacqueline PernierJACQUELINE PERNIER
SENIOR DIRECTOR COMPLIANCE
- Total calculated
- $216,853
- From this org
- $172,235
- From related orgs
- $0
- Other
- $44,618
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $157,935
- Bonus
- $12,500
- Other
- $1,800
- Deferred
- $10,896
- Nontaxable benefits
- $33,722
- Filer's total
- $216,853
-
John D'AngeloJOHN D'ANGELO
SR. VP, BUSINESS INTELLIGENCE
- Total calculated
- $313,107
- From this org
- $290,256
- From related orgs
- $0
- Other
- $22,851
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $212,329
- Bonus
- $76,127
- Other
- $1,800
- Deferred
- $11,084
- Nontaxable benefits
- $11,767
- Filer's total
- $313,107
-
Akhilash PennamAKHILASH PENNAM
DIRECTOR OF CRM DEVELOPMENT
- Total calculated
- $214,352
- From this org
- $179,862
- From related orgs
- $0
- Other
- $34,490
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $165,562
- Bonus
- $12,500
- Other
- $1,800
- Deferred
- $11,058
- Nontaxable benefits
- $23,432
- Filer's total
- $214,352
-
Amanda KesslerAMANDA KESSLER
DIRECTOR, HUMAN RESOURCES
- Total calculated
- $213,023
- From this org
- $174,507
- From related orgs
- $0
- Other
- $38,516
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $162,707
- Bonus
- $10,000
- Other
- $1,800
- Deferred
- $7,035
- Nontaxable benefits
- $31,481
- Filer's total
- $213,023
-
Dilip PariharDILIP PARIHAR
SOLUTIONS ARCHITECT
- Total calculated
- $202,285
- From this org
- $158,661
- From related orgs
- $0
- Other
- $43,624
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $144,361
- Bonus
- $12,500
- Other
- $1,800
- Deferred
- $9,902
- Nontaxable benefits
- $33,722
- Filer's total
- $202,285
-
Leena PatelLEENA PATEL
VP, BUSINESS DEVELOPMENT
- Total calculated
- $277,750
- From this org
- $229,499
- From related orgs
- $0
- Other
- $48,251
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $193,199
- Bonus
- $34,500
- Other
- $1,800
- Deferred
- $14,529
- Nontaxable benefits
- $33,722
- Filer's total
- $277,750
-
Margaret FigleyMARGARET FIGLEY
SR. DIRECTOR, COMMUNICATIONS
- Total calculated
- $270,214
- From this org
- $222,721
- From related orgs
- $0
- Other
- $47,493
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $208,421
- Bonus
- $12,500
- Other
- $1,800
- Deferred
- $13,771
- Nontaxable benefits
- $33,722
- Filer's total
- $270,214
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $284,709,120
- Expenses
- $230,788,273
- Contributions
- $267,874,042
- Grants paid
- $213,200,863
-
2023
- Revenue
- $278,965,875
- Expenses
- $314,463,857
- Contributions
- $268,292,695
- Grants paid
- $298,583,310
-
2022
- Revenue
- $288,357,934
- Expenses
- $269,288,161
- Contributions
- $284,392,657
- Grants paid
- $253,725,841
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $295,767,415
- Expenses
- $304,758,468
- Assets (EOY)
- $376,112,089
-
2020 · 990
- Revenue
- $383,403,392
- Expenses
- $328,746,087
- Assets (EOY)
- $388,553,113
-
2019 · 990
- Revenue
- $374,973,159
- Expenses
- $227,201,494
- Assets (EOY)
- $330,085,994
-
2018 · 990
- Revenue
- $213,978,451
- Expenses
- $160,708,473
- Assets (EOY)
- $176,389,134
-
2017 · 990
- Revenue
- $165,100,555
- Expenses
- $125,594,966
- Assets (EOY)
- $123,481,487
-
2015 · 990
- Revenue
- $92,618,853
- Expenses
- $83,197,029
- Assets (EOY)
- $82,171,524
-
2014 · 990
- Revenue
- $79,282,506
- Expenses
- $61,029,755
- Assets (EOY)
- $70,633,947
-
2014 · 990
- Revenue
- $79,282,506
- Expenses
- $61,029,755
- Assets (EOY)
- $70,633,947
-
2013 · 990
- Revenue
- $63,476,785
- Expenses
- $60,865,475
- Assets (EOY)
- $52,301,396
-
2012 · 990
- Revenue
- not reported
- Expenses
- $49,602,055
- Assets (EOY)
- $49,284,598
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
DONOR ADVISED CHARITABLE GIVING
$23,000
2023 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$11,200
2022 HEALTH
-
$10,000
2024 1 grant(s) for varying purposes
-
2024 GENERAL SUPPORT
-
$6,414
2024 GENERAL SUPPORT
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.